Inoue Y, Wakabayashi C; International Conference on AIDS.
Int Conf AIDS. 1998; 12: 104 (abstract no. 12456).
Japanese AIDS Foundation, Tokyo, Japan.
OBJECTIVES: To study the views of HIV infected persons and their medical careers in Japan on involvement in decision making and information seeking. SUBJECTS AND METHODS: 318 clients who are registered for the SHIP NEWSLETTER (the only newsletter dealing HIV treatment information for HIV positive persons in Japan) mailing subscription received questionnaire sheets by mail to complete for themselves anonymously. The survey was conducted from June to July 1997 and 171 clients responded (53.8%) by mail. Out of respondents, 49 (28.7%) were HIV positive, 52 (30.4%) were staffs of HIV medical teams. RESULTS: Compared to HIV positive persons majority of staffs had higher preference for choosing decision making related categories of 'by doctor rather than by patient' and 'by patient rather than by doctor' instead of 'by doctor alone' and 'by patient alone'. HIV medical staffs underestimate symptomatic patients' self-desire for decision making for going to hospital. In spite of HIV positive persons' high preference for decision making in case of having abnormal vital sign, abnormal lab date tend to have lower influence on it. Approximately 40% of both HIV positive persons and HIV medical staffs have strong autonomy for decision making of over-the-counter medication. CONCLUSION: HIV positive persons and HIV medical staffs in Japan subscribing SHIP Newsletter reported high level (more than 80%) of desire for information seeking. Patients' preference for involvement in their treatment decision was also high, which was conjectured lower by medical staffs. HIV medical staffs might wish to make joint decisions for medical issues with HIV positive persons.
Publication Types:
Keywords:
- Acquired Immunodeficiency Syndrome
- Decision Making
- HIV Infections
- HIV Seropositivity
- Humans
- Japan
- Medical Staff
- Patient Satisfaction
- Personal Autonomy
- Physicians
- Questionnaires
- ethics
Other ID:
UI: 102227484
From Meeting Abstracts