[Federal Register: October 24, 2008 (Volume 73, Number 207)]
[Notices]
[Page 63495]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr24oc08-93]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration
Advisory Committee on Heritable Disorders in Newborns and
Children (ACHDNC); Notice of Meeting
In accordance with section 10(a)(2) of the Federal Advisory
Committee Act (Public Law 92-463), notice is hereby given of the
following meeting:
Name: Advisory Committee on Heritable Disorders in Newborns and
Children.
Date And Time: November 24, 2008, 1 p.m.-4 p.m. EST
Place: Webcast.
The ACHDNC will meet on Monday, November 24, 2008 from 1 p.m. to 4
p.m. EST. The general public can join the meeting via webcast by
logging onto http://altarum.na3.acrobat.com/achdnc/; next select
``enter as a guest,'' type in your full name, and click ``enter room.''
Participants must also dial the toll free phone number for audio
(listen only). The dial-in number is 1 (877) 705-6006; when prompted
say the password ``HRSA Genetics''. Participants should call no later
than 12:50 p.m. EST in order for the logistics to be established for
participation in the call.
Meeting Registration: General public participants are asked to
register for the conference by going to the registration Web site at
http://events.SignUp4.com/ACHDNC1124. The registration deadline is
Friday, November 21, 2008. If there are technical problems gaining
access to the call, please contact Brigitte Abu-Hamed, Meetings
Coordinator, Conference and Meetings Management, Altarum Institute,
telephone (202) 828-5100, or e-mail Brigitte.AbuHamed@altarum.org.
Special Accomodations: Attendees requiring special needs such as
large print materials or additional special needs may make comments
when registering at the online Web site. Or you may wish to contact
Tamar R. Shealy, Senior Meetings Manager, Conference and Meetings
Management, Altarum Institute; telephone (202) 828-5100, or e-mail
Tamar.Shealy@altarum.org.
Agenda: The meeting will include presentations and continued
discussions on the nomination/evaluation process for newborn screening
candidate conditions for review by the ACHDNC for inclusion on the
uniform newborn screening panel. Agenda items are subject to change as
priorities dictate. You can also locate the Agenda, presentations, and
meeting materials at the home page of the Web site at http://
events.SignUp4.com/ACHDNC1124.
Public Comments: Members of the public can present oral comments
during the public comment period of the conference call. Those
individuals are required to register at the web site, http://
events.SignUp4.com/ACHDNC1124. Requests will contain the name, address,
telephone number, and any professional or business affiliation of the
person desiring to make an oral presentation. Groups having similar
interests are requested to combine their comments and present them
through a single representative. The allocation of time may be adjusted
to accommodate the level of expressed interest. Each public commentator
will be notified by email of their assigned presentation time.
Members of the public are required to submit written comments that
will be distributed to Committee members prior to the conference call.
Parties wishing to submit written comments should ensure that the
comments are postmarked or emailed no later than Friday, November 21,
2008, for consideration. Comments should be submitted to Tamar R.
Shealy, Meetings Manager, Conference and Meetings Management, Altarum
Institute, 1200 18th Street, NW., Suite 700, Washington, DC 20036;
telephone (202) 828-5100, fax (202) 785-3083, or e-mail
Tamar.Shealy@altarum.org.
For Further Information Contact: Anyone requiring information
regarding the ACHDNC should contact: Jill F. Shuger, M.S., Maternal and
Child Health Bureau, HRSA, Parklawn Building, Room 18A-19, 5600 Fishers
Lane, Rockville, Maryland 20857; telephone (301) 443-1080, fax (301)
594-0878, or e-mail jshuger@hrsa.gov.
Supplementary Information: The ACHDNC was chartered originally
under Section 1111 of the Public Health Service (PHS) Act, 42 U.S.C.
300b-10 in February 2003 to advise the Secretary of the U.S. Department
of Health and Human Services and as amended in the Newborn Screening
Saves Lives Act. The Committee is governed by the provisions of Public
Law 92-463, as amended (5 U.S.C. App. 2), and 41 CFR Part 102-3, which
sets forth standards for the formation and use of advisory committees.
The ACHDNC is directed to review and report regularly on newborn and
childhood screening practices for heritable disorders and to recommend
improvements in the national newborn and childhood heritable screening
programs.
Dated: October 17, 2008.
Alexandra Huttinger,
Director, Division of Policy Review and Coordination.
[FR Doc. E8-25449 Filed 10-23-08; 8:45 am]
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