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Ethical, Legal, and Social Issues
- 1997 Program Report in the DOE Human Genome Project
- 2000 DOE Microbial Genome Report
- A Revolution in Progress: Human Genetics and Medical Research
- Action Bioscience Examines bioscience issues. Includes peer-reviewed articles and educator resources.
- American Journal of Bioethics The American Journal of Bioethics and bioethics.net provide the clinical, legal, academic, scientific, religious and broad community-at-large with a rapid but comprehensive debate of issues in bioethics.
- American Prosecutors Research Institute's (APRI) DNA Forensics Program
- American Society of Law, Medicine, and Ethics
- Behavioral Genetics
- Bioethics Resources on the Web from NIH
- Center for Bioethics, University of Pennsylvania This site contains detailed text of all existing legislation on cloning from around the world, including recent Penn contributions to the literature in ethics and genetics
- Center for Genetics and Society in English, Spanish, Portuguese
- Center for the Integration of Research on Genetics and Ethics (CIRGE) one of four interdisciplinary Centers of Excellence in Ethical, Legal, and Social Implications (ELSI) research created by the National Human Genome Research Institute of the U.S. National Institutes of Health
- Centre for Law and Genetics
- Conversations About Plant Biotechnology video discussions on the benefits of genetically modified foods from Monsanto
- Council for Responsible Genetics non-profit/non-governmental organization devoted to fostering public debate about the social, ethical, and environmental implications of the new genetic technologies
- Cuadernos de Bioética in Spanish
- DNA Forensics
- DNA Interactive Dolan DNA Learning Center
- Duke Institute for Genome Sciences & Policy
- ELSI in Science discussion modules for educators and students at middle school through high school levels
- ELSI in the Human Genome Project
- ELSI Retrospective of the DOE Human Genome Program
- Entomologist E.O. Wilson's lecture On the Relation of Science and the Humanities discusses link between genetic evolution and cultural evolution
- Ethics of Genetics
- Eubios Ethics Institute nonprofit group that aims to stimulate the international discussion of ethical issues.
- Explore DNA A site exploring DNA and its relevance for society today, explained in layman's terms.
- FRONTLINE: The Case for Innoocence from PBS
- Gene Letter A newsletter on societal issues in genetics
- Genetic Counseling
- Genetic Privacy Act Model legislation written with support of the DOE Human Genome Program.
- Genetic Research: Decisions to be Made lesson plans (grades 9-12); from PBS
- Genetic Testing - Health Care Issues: An Interview with Dr. Neil Holzman an excerpt from an interview at the "Winding Your Way through DNA" symposium at the University of California, San Francisco, in 1992
- Genetics & Ethics Includes people, careers, conferences, literature
- Genetics and Birth Defects from Healthopedia
- Genetics and Patenting
- Genetics and Public Policy Center
- Genetics from Google
- Genetics in the Courtroom
- Genetics Privacy and Legislation
- Genome Symposia Contents and Introductions for symposium proceedings published in Risk
- Genome Technology & Reproduction: Values & Public Policy
- Genomics and the Future of Health and Society proceedings of the National Academies Institute
of Medicine Annual Meeting 2002
- Genomics:GTL Program from the U.S. Department of Energy The next step at the Department of Energy to accelerate understanding of dynamic living systems
- HGPI ELSI Research page Includes project goals related to ELSI, DOE-funded ELSI research and products.
- Human Genome Project Benefits current and potential applications of genome research
- Human Genome Project: A Public Health Perspective from CDC
- HumGen Canadian Bioethics Web Site
- Ifgene: International Forum for Genetic Engineering encourages a deeper dialogue about genetic engineering
- Judaism and the Human Genome Project Commentary
- Judges' Journal special genetics issue
- Judicature special genetics issue
- Library and Information Services, Kennedy Institute of Ethics
- Little People of America FAQs addresses genetic conditions and ethical, legal, and social issues
- Medicine and the New Genetics
- National Bioethics Advisory Commission (NBAC) provides advice and makes recommendations to the National Science and Technology Council and to other appropriate government entities on bioethical issues arising from research on human biology and behavior
- National Institutes of Health National Human Genome Research Institute
- NIH Funded Grants and Grant History
- NIH Office of Biotechnology Activities Background information on advisory committees that provide policy advice to the Secretary of Health and Human Services on gene therapy, genetic testing, and xenotransplantation.
- NOVA program "The Killer's Trail"
- Obesity and Genetics: A Public Health Perspective
- Office of Population Health Genomics, Australia
- Patent law for non-lawyers
- Patenting article: Signals Magazine "Homestead 2000: The Genome"
- President's Council on Bioethics
- Promoting Safe and Effective Genetic Testing in the United States (1997) Principles and recommendations by a joint NIH-DOE group that examined the development and provision of gene tests in the United States.
- Public Responsibility in Medicine and Research (PRIM&R)
- Putting food on the table from WhyFiles
- Question of Genes an intimate look at the social, ethical and emotional consequences of genetic testing for individuals and families.
- Reproductive Cloning Network discussion site on scientific, social and ethical aspects of reproductive and therapeutic human cloning
- Research Abstracts from the DOE Genome Program Contractor-Grantee Workshop IX (2002)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop IV (1994)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop V (1996)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop VI (1997)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop VII (1999)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop VIII (2000)
- ScienCentral: Making Sense of Science science and technology news and video
- Springboard: Genetics at the Crossroads from PBS
- Stanford Center for Biomedical Ethics (SCBE)
- The American Journal of Bioethics Online
- The Gene Letter Archive of online newsletter about genetics, society, and culture.
- Understanding Gene Testing booklet from DHHS
- What is Genetic Engineering?
- What Jennifer Saw from PBS, FRONTLINE
- Yahoo's Disabilities List
- Yahoo's Diseases and Conditions List
- Yahoo's Genetics List
- Your Genes Your Choices Booklet written in simple English, describing the Human Genome Project; the science behind it; and how ethical, legal, and social issues raised by the project may affect people's everyday lives.
Legal and Patenting
Forensics
Education
- 1999 Gene Map
- A Historical Timeline: Cracking the Code of Life The history of genomics, from Darwin to the completion of the Human Genome Project.
- A Revolution in Progress: Human Genetics and Medical Research
- Access Excellence A place in cyberspace for Biology teaching and learning.
- Action Bioscience Examines bioscience issues. Includes peer-reviewed articles and educator resources.
- Alfred P. Sloan Foundation philanthropic nonprofit
- AllRefer Health: Genetics
- American Scientist Article on the invention of the genetic code.
- An Introduction to Genomics: The Human Genome and Beyond
- Ask a Scientist Submit questions in biological disciplines; some answers posted online.
- Ask NOAH About: Genetic Disorders
- Assembly Exercise Make your own genome assembly, and discover reads, contigs, quality scores, and BLAST
- Bad Bug Book basic facts regarding foodborne pathogenic microorganisms and natural toxins
- Bay Area Biotechnology Education Consortium hands-on biotechnology curriculum
- Beginner's Guide to Molecular Biology
- Best of the Web Genetics Directory of websites
- Bio Link Educating the Biotechnology Workforce
- BioLogica hypermodel for teaching high school genetics
- Biological Basis of Heredity An Introduction to Basic Cell Structures Related to Genetic Inheritance
- Biological Sciences Curriculum Study A curriculum study group concerned with the teaching and learning of science
- Biology Education Software reviews of software for teaching college biology.
- Biology Labs Online Biology Simulations and exercises for college and AP high school students.
- Biology Student Workbench
- Biosciences and Health from Berkeley Lab Research Review
- Biotechnology Institute Site dedicated to education and research about the present and future impact of biotechnology. Includes downloadable .pdf files of current and past issues of Your World student magazine and links to FAQs, teacher workshops, and career profiles.
- Blazing a Genetic Trail illustrated booklet on hunting for disease genes.
- Bugs in the News! Microbiology information and a nice collection of images of biological molecules
- CancerQuest includes tutorials on the genetics of cancer
- CDC Office of Genomics and Disease Prevention
- Cell Biology Animation requires Macromedia Flash Player
- Cells Alive! images (some moving) of different types of cells
- Center for Bioethics, University of Pennsylvania This site contains detailed text of all existing legislation on cloning from around the world, including recent Penn contributions to the literature in ethics and genetics
- Chromosome Chooser Maps of all human chromosomes with a list of disease genes found on each.
- Cloning Sheep: Cloning People? An article from the Stanford Technology Law Review, an online high-technology law journal from Stanford Law School
- CME Continuing Medical Education in Genomics
- Cracking the Code of Life NOVA
- Crick, Francis Francis Crick's Nobel biography
- Deciphering the Genetic Code: An Exhibit Honoring
the Work of Nobel Laureate Marshall Nirenberg National Institutes of Health
- Desktop Laboratories, Inc.
- Did You Ever Wonder? from Lawrence Berkeley National Laboratory
- DNA Chips from Science NetLinks lesson plan (grades 9-12) exploring DNA microarray technology
- DNA Files from National Public Radio
- DNA from the Beginning: Online Animated Genetics Primer Dolan DNA Learning Center at Cold Spring Harbor Laboratory
- DNA Interactive Dolan DNA Learning Center
- DNA Learning Center information about genetic education
- DNA Structure Tutorial
- DNA-B-C's; A Primer to Understanding Fundamental Facts about DNA New York Times one-hour lesson designed for sixth-12th grade students
- DOE HGP Genomics Primers
- Education in Genetic Health Australian Genetics Training Centre (AGTC)
- Educational and Research Experiences Lists a number of federal laboratory opportunities all over the country.
- Educational Links from JGI
- Educational Resources from National Human Genome Research Institute Curriculum supplements, genetic education modules, talking glossary, and information on training, careers, internships, and mentorships.
- Educator's Reference Desk: Genetics Lesson Plans
- Electronic Scholarly Publishing Classic Papers in Genetics
- ELSI in Science discussion modules for educators and students at middle school through high school levels
- European Science Education Media films on European genomics research
- Exploratorium Exhibit, San Francisco "Diving Into the Gene Pool"
- Exploratorium's Cloning Page
- Explore DNA A site exploring DNA and its relevance for society today, explained in layman's terms.
- Folding@home distributed computing project which studies protein folding, misfolding, aggregation, and related diseases
- Forensics from About.com
- Foundation for Genetic Education & Counseling
- Foundations of Classical Genetics from Electronic Scholarly Publishing
- Franklin, Rosalind Rosalind Franklin - Photographer of DNA
- Franklin, Rosalind Biosketch of Rosalind Franklin from Access Excellence
- Franklin, Rosalind Focus on Rosalind Franklin -- PBS Science Odyssey: People and Discovery
- Franklin, Rosalind Anne Sayre Collection of Rosalind Franklin Materials from the American Society of Microbiology
- GEEE! in Genome exhibit Canadian Museum of Nature
- Gene Gateway Guides and tutorials to aid the novice or layperson in finding and using the wealth of genetic information available on the Internet.
- Gene School a large overview of the genetics field and a starting place for finding out more
- Genes and History
- GeneTests:? medical genetics information resource GeneReviews publication, directory of genetic testing laboratories and diagnosis clinics, and educational materials
- Genetic Dilemmas in Primary Care educational program
- Genetic Research: Decisions to be Made lesson plans (grades 9-12); from PBS
- Genetic Science Learning Center teacher resources, activities, and information
- Genetic Science Learning Center En Español Ayudando a la gente a comprender como la genética afecta sus vidas y a la sociedad.
- Genética Websites en Español
- Genetics and Your Practice Educational resource for medical professionals
- Genetics at Merlot Searchable collection of online learning materials
- Genetics Education Center Educational information on human genetics and career resources
- Genetics Education Problem Sets and Tutorials
- Genetics from Discovery Channel (animation)
- Genetics from Google
- Genetics from OpenCourseWare, MIT a genetics course designed for undergraduates
- Genetics Glossary
- Genetics Glossary in Spanish
- Genetics in Primary Care (GPC) Training Program Curriculum Materials
- Genetics Program for Nursing Faculty
- Genetics Societies
- Genetics: Decoding Life Exhibit Guide [PDF] Museum of Science and Industry, Chicago
- Genetics-Related Audio Files
- Genetics-Related Images images and links to other image galleries
- Genetics-Related Videos
- Genome News Sources Web sources of news and headlines related to genetics and the HGP.
- Genome Science
- Genome@home users lend idle computer time to run calculations for research
- Genomics Course Outline Outline, syllabus, and student Web pages to accompany the book Discovering Genomics, Proteomics, and Bioinformatics (Cold Spring Harbor Press, 2002), used in a Davidson College course taught by one of the books authors, A. Malcolm Campbell.
- GENSCOPE Learning environment that uses the computer rather than textbooks.
- Glossary of Genetic Terms
- Glossary of Genetics
- Graduate School Training Programs Guide
- Hello Dolly: A WebQuest This exercise challenges students to consider the ethics, politics, and science of cloning.
- HGP Education Resources for Students
- HGP Education Resources for Teachers
- HHMI Holiday Lectures on Science
- High School Human Genome Program Resources for teachers and students.
- How Sequencing is Done Steps in JGI's process of whole-genome shotgun sequencing
- How to Become Certified in the Genetics Field
- Human Genetics collaborative projects for classrooms
- Human Genome Acronyms
- Human Genome Interactive Centre from Wellcome Trust
- Human Genome Project FAQs
- Human Genome! by all of the top editorial cartoonists
- Human Molecular Genetics Education Directory university resources protal
- HUM-MOLGEN Online Journals of Bioinformatics
- Influenza 1918; The American Experience from PBS Critical gene from 1918 flu epidemic found
- Insights Learned from the Sequence: Papers from Science and Nature
- Library and Information Services, Kennedy Institute of Ethics
- Linus Pauling and the Race for DNA
- LocusLink Single-query interface for accessing sequence data and descriptive information about genetic loci from human, cow, mouse, rat, zebrafish, fruit fly, nematode, and HIV-1 genomes.
- March of Dimes Birth Defects Information
- Medicine and the New Genetics
- Meiosis Tutorial A tutorial on the relationship between chromosome movements in meiosis and the segregation of alleles in meiosis
- Mendel, Gregor Biography of Gregor Mendel from Access Excellence
- MendelWeb: Educational resource built around Gregor Mendel's 1865 paper "Experiments on Plant Hybrids"
- Micro*scope tool for exploring microbes presented by Marine Biological Laboratory
- Microbe Zoo Digital Learning Center
- MicrobeLibrary peer reviewed resource collection
- MicrobeWorld Learn about microbiology, what microbiologists do, how
they do it, and current microbiology topics in the news
- Microbiology
- MIT Knowledge Updates educational briefings on life science topics
- Molecular Biology Notebook for teaching and learning molecular biology
- Molecular Medicine in Action
- National Human Genome Research Institute Includes information on training, careers, internships, and mentorships.
- National Institutes of Health National Human Genome Research Institute
- National Science Teachers Association The largest organization in the world committed to promoting excellence and innovation in science teaching and learning for all
- New Genetics: A Resource for Students and Teachers
- New Scientist - Genetics
- NIH Office of Science Education Online, downloadable, and printed materials are available free
- Online Education Kit: Understanding the Human Genome Project
- Online Macromolecular Museum
- PALAEOS: The Trace of Life on Earth
- PBS Science Odyssey: People and Discovery Focus on Francis Crick
- Populations to Molecules Resources for Educators (1994)
- Proteomics Glossaries and Taxonomies Evolving terminology for emerging technologies from Cambridge Healthtech Institute.
- Public Health Genetics at University of Michigan
- Putting DNA to Work:
The Gene Scene from the Koshland Science Museum; interactive activities and games for kids
- Putting food on the table from WhyFiles
- Question of Genes an intimate look at the social, ethical and emotional consequences of genetic testing for individuals and families.
- Quick Guide to Sequenced Genomes Sequenced genome projects from the Genome News Network.
- Quiz on Molecular Biology These pages were designed as part of a basic course in molecular biology at the Department of Medical Biochemistry at the Göteborg University, Sweden
- Research and Training Opportunities at NIH For high school, college, postdoctoral, and medical and dental students. Also Continuing Medical Education for physicians and psychologists.
- Science and Mathematics Resources Includes Frank Potter's Science Gems and Martindale's Health Science Guide. For teachers at all levels.
- Science Friday Kids' Connection(tm) 11/15/2002: The Hungry Gene
- Science Lesson Plan database
- ScienCentral: Making Sense of Science science and technology news and video
- Southwest Biotechnology and Informatics Center (SWBIC) links to biotechnology sites
- Springboard: Genetics at the Crossroads from PBS
- Textbooks in BioSciences Oxford University Press
- The Genomic Revolution Interactive 20012002 exhibit at the American Museum of Natural History. Simple explanations of genetics basics as well as information on comparative genomics research at the museum.
- The Molecules of Life Simple interactive introduction to laboratory techniques used to understand the structure of protein molecules. For general audiences.
- To Know Ourselves
- Top Science Stories Science stories from the Los Angeles Times, links to archives since 1990.
- Tree of Life A distributed Internet project containing information about phylogeny and biodiversity
- Understanding Gene Testing booklet from DHHS
- Virtual Labs from the Howard Hughes Medical Institute
- Watson and Crick 1962 Nobel Prize
- Watson, James James Watson's Nobel biography
- Watson, James "A Visit With Dr. Watson" Access Excellence Interview
- What is Genetic Engineering?
- What is the Human Genome Project?
- Why Files Illustrated explanations of the science behind the news
- Workforce Development for Teachers and Scientists Information on undergraduate internships, Science Bowl competitions, and other programs such as fellowships for teachers. From DOE Office of Science.
- WWW Virtual Library: Instructional Resources in Biology
- Your Genes Your Choices Booklet written in simple English, describing the Human Genome Project; the science behind it; and how ethical, legal, and social issues raised by the project may affect people's everyday lives.
- Your Genome from Wellcome Trust Sanger Institute. Provides information
about genome science for various levels of awareness.
University Programs
Images
Support
- AllRefer Health: Genetics
- American Hemochromatosis Society (AHS)
- Angelman Syndrome
- Ask NOAH About: Genetic Disorders
- Ask the Geneticist Answers questions about genetic concepts, and the etiology, treatment, research, testing, and predisposition to genetic disorders.
- Beckwith-Wiedemann Support Group
- Cadasil Foundation Cerebral Autosomal Dominant Arteriopathy with Sub-cortical Infarcts and Leukoencephalopathy
- Canadian Organization for Rare Disorders
- Cancer Risk and Prevention Program Dana-Farber Cancer Institute
- CarePlace
- Chromosome 18 Clinical Research Center University of Texas Health Science Center
- Chromosome 18 Registry & Research Society
- Chromosome Deletion Outreach, Inc.
- Congenital Diaphragmatic Hernia Research Advocacy and Support
- CyberFiber Newsgroups check the Health, Support, and Recovery and the Science and Technology areas.
- Disease InfoSearch[TM] from Genetic Alliance
- Down Syndrome Information
- European chromosome 11q network For parents/caretakers to contact each other, collect information about these rare anomalies, and to follow the latest scientific developments
- Family Village: Rare Genetic Diseases
- GeneClinics: Clinical Genetic Information Resource a knowledge base relating genetic testing to the diagnosis, management, and counseling of individuals and families with specific inherited disorders
- Genetic / Rare Conditions Support Groups & Information Site
- Genetic Alliance non-profit organization dedicated to helping individuals and families who have genetic disorders
- Genetic and Rare Diseases Information Center National Institutes of Health
- Genetic Centers, Clinics, and Departments
- Genetic Disease Information
- Genetic Disorders and Birth Defects - Sri Lanka Collection makes available information about genetic disorders and birth defects most relevant to Sri Lanka
- Genetic Support Groups Directory
- Genetics and Birth Defects from Healthopedia
- Healthopedia.com Genetics and Birth Defects
- Human Gene Testing Summary from Beyond Discovery
- Jewish Genetic Diseases: A Resources
- Kids Health for Parents: Genetic Counseling
- Mountain States Regional Genetic Services Network
- MUMS National Parent-to-Parent Network Support Group
- National Organization for Rare Disorders NORD, a nonprofit organization, serves as an international clearinghouse of information on over 5,000 rare disorders
- National Society of Genetic Counselors The leading voice, authority and advocate for the genetic counseling profession
- Online Health Resources -- Genetic Disorders
- Online Mendelian Inheritance in Man (OMIM) Database of human genes, traits, and genetic disorders.
- SERGG: SouthEastern Regional Genetics Group
- Support Organization for Trisomy 18, 13 and Other Chromosome Disorders
- Tetrasomy 18 p information sharing system on abnormalities of Chromosome 18
- The Arc's Human Genome Education Project Many good resources for families of people with genetic diseases, including fact sheets and Q&As.
- Trisomy 13 Support and Resources
- Unique Rare Chromosome Disorder Support Group
- Yahoo's Disabilities List
- Yahoo's Diseases and Conditions List
Genetic Disorders
- 1998 Gene Map
- 1999 Gene Map
- AllRefer Health: Genetics
- American Hemochromatosis Society (AHS)
- American Society for Histocompatibility and Immunogenetics (ASHI)
- Ask NOAH About: Genetic Disorders
- Ask the Geneticist Answers questions about genetic concepts, and the etiology, treatment, research, testing, and predisposition to genetic disorders.
- Beckwith-Wiedemann Support Group
- Behavioral Genetics
- Blazing a Genetic Trail illustrated booklet on hunting for disease genes.
- Breast Cancer Mutation Data Base Open Access On-Line Breast Cancer Mutation Data Base
- BTKBase mutation registry for X-Linked agammaglobulinemia
- Cadasil Foundation Cerebral Autosomal Dominant Arteriopathy with Sub-cortical Infarcts and Leukoencephalopathy
- Canadian Organization for Rare Disorders
- Cancer Genetics from Cancer.gov
- Cancer Genetics and Developmental Biology BC Cancer Research Centre
- Cancer Genetics Services Directory lists professionals providing services related to cancer genetics (cancer risk assessment, genetic counseling, genetic susceptibility testing, and others).
- Catalogue Of Somatic Mutations In Cancer (COSMIC) designed to store and display somatic mutation information and related details
- Chromosomal Variation in Man: A Catalog of Chromosomal Variants and Anomalies and the Online Database
- Chromosome 18 Clinical Research Center University of Texas Health Science Center
- Chromosome 18 Registry & Research Society
- Chromosome Chooser Maps of all human chromosomes with a list of disease genes found on each.
- Chromosome Deletion Outreach, Inc.
- Congenital Diaphragmatic Hernia Research Advocacy and Support
- Cystic Fibrosis Mutation Data Base Compiled with information collected by the Cystic Fibrosis Genetic Analysis Consortium
- Disease InfoSearch[TM] from Genetic Alliance
- Eleanor Roosevelt Institute at the University of Denver
- European Directory of DNA Laboratories (EDDNAL) intended mainly for clinical geneticists and molecular biologists. Contact names and addresses for DNA laboratories and details services on genetic diseases
- Explore DNA A site exploring DNA and its relevance for society today, explained in layman's terms.
- Family Village: Rare Genetic Diseases
- GeneCards Database human genes, products, and involvement in disease
- GeneClinics: Clinical Genetic Information Resource a knowledge base relating genetic testing to the diagnosis, management, and counseling of individuals and families with specific inherited disorders
- GeneTests:? medical genetics information resource GeneReviews publication, directory of genetic testing laboratories and diagnosis clinics, and educational materials
- Genetic / Rare Conditions Support Groups & Information Site
- Genetic Alliance non-profit organization dedicated to helping individuals and families who have genetic disorders
- Genetic and Rare Diseases Information Center National Institutes of Health
- Genetic Disease Information
- Genetic Disorders and Birth Defects - Sri Lanka Collection makes available information about genetic disorders and birth defects most relevant to Sri Lanka
- Genetic Support Groups Directory
- Genetics and Birth Defects from Healthopedia
- Genetics from Google
- Genetics Home Reference consumer information about genetic conditions and the genes responsible
- Genetics in Primary Care (GPC) Training Program Curriculum Materials
- Healthopedia.com Genetics and Birth Defects
- Hereditary Disease Foundation
- Human Gene Mutation Database (HGMD) Provides practical diagnostic information to researchers, diagnosticians, physicians, and genetic counselors
- Jewish Genetic Diseases: A Resources
- List of genetic disorders from Wikipedia
- Little People of America FAQs addresses genetic conditions and ethical, legal, and social issues
- March of Dimes Birth Defects Information
- Mitochondria Project Database for mitochondria-related genes, proteins and diseases
- Mountain States Regional Genetic Services Network
- MUMS National Parent-to-Parent Network Support Group
- National Newborn Screening and Genetics Resource Center
- National Organization for Rare Disorders NORD, a nonprofit organization, serves as an international clearinghouse of information on over 5,000 rare disorders
- Online Health Resources -- Genetic Disorders
- Online Mendelian Inheritance in Man (OMIM) Database of human genes, traits, and genetic disorders.
- Phenylalanine Hydroxylase Locus Database
- Polygenic Signaling Pathways lists of genes associated with Alzheimer's disease, Bipolar disorder or Schizophrenia.
- SERGG: SouthEastern Regional Genetics Group
- Society for the Study of Inborn Errors of Metabolism The aims of the Society are to foster the study of inherited metabolic disorders and related topics
- Support Organization for Trisomy 18, 13 and Other Chromosome Disorders
- Tennessee Mouse Genome Consortium
- Tetrasomy 18 p information sharing system on abnormalities of Chromosome 18
- The Arc's Human Genome Education Project Many good resources for families of people with genetic diseases, including fact sheets and Q&As.
- The Cancer Genome Atlas effort to accelerate understanding of molecular basis of cancer through the application of genome analysis technologies
- Trisomy 13 Support and Resources
- UK Biobank project epidemiological data to investigate contribution of genes and environment to health
- Unique Rare Chromosome Disorder Support Group
- World Health Organization: Genetic techniques
- Yahoo's Disabilities List
- Yahoo's Diseases and Conditions List
Genetic Counseling
Careers and Professions
- Alfred P. Sloan Foundation philanthropic nonprofit
- American Board of Genetic Counseling
- American Board of Medical Genetics
- American Society for Human Genetics
- Association of Professors of Human or Medical Genetics
- Bio Link Educating the Biotechnology Workforce
- BioCareer@elegansNet - Biomedical, Biotech, & Pharmaceutical Job Resources
- Bioethics jobs Lists open bioethics positions in the United States, Canada, and Great Britain.
- Brandeis University Genetic Counseling Masters Program
- Careers in Biochemistry and Molecular Biology From the American Society for Biochemistry and Molecular Biology.
- Careers in Biotechnology Includes job descriptions, selected resources, and interviews with scientists in a variety of fields.
- Careers in Genetics
- Careers in Human Genetics
- Careers in the Genetics Field Online booklet from the Genetics Society of America, including several profiles of geneticists
- Careers in the Microbiological Sciences From the American Society for Microbiology.
- Duke University Molecular Genetics and Microbiology
- Eccles Institute of Human Genetics University of Utah
- Educational Resources from National Human Genome Research Institute Curriculum supplements, genetic education modules, talking glossary, and information on training, careers, internships, and mentorships.
- FASEB Career Resources
- Genetic Counseling Graduate School Directory
- Genetic Counseling Training Programs
- Genetic Counseling Training Programs Accredited by the American Board of Genetic Counseling
- Genetics Education Center Educational information on human genetics and career resources
- Genetics from Google
- Genetics Professional Societies Addresses
- Genetics Societies
- Genetics Society of America
- Graduate Program for Genome Science and Technology University of Tennessee-Oak Ridge National Lab
- Guide to Career Opportunities in Ecology and Environmental Science Describes possible jobs, courses to take, and preparing for and applying to graduate school.
- Health Informatics Jobs
- hireBio biotechnology jobs (including bioinformatics,
biomedical research) and career resources
- How to Become Certified in the Genetics Field
- Information for Genetic Professionals
- Library and Information Services, Kennedy Institute of Ethics
- National Human Genome Research Institute Includes information on training, careers, internships, and mentorships.
- National Science Teachers Association The largest organization in the world committed to promoting excellence and innovation in science teaching and learning for all
- National Society of Genetic Counselors The leading voice, authority and advocate for the genetic counseling profession
- Science Careers Web Numerous valuable resources on science careers, including geoscience, biological and marine science, news, and professional societies.
- SciWeb Biotechnology Career Center Information about careers in biotechnology and advice on all aspects of job searching.
- Southwest Biotechnology and Informatics Center (SWBIC) links to biotechnology sites
- The Job Reporter: Biotechnology Jobs
- University of Pennsylvania: Master of Biotech
- University of Pittsburgh Department of Molecular Genetics and Biochemistry
- University of Wisconsin Biotech Center
- Virginia Tech Center for Biotechnology
Publications
- Bibliography on Computational Gene Recognition
- Bioinformatics full-text of selected papers in 'bioinformatics' or 'genomics' from Donald Forsdyke, Queen's University, Canada
- BIOSCI/Bionet Newsgroups BIOSCI is a set of electronic communication forums - the bionet USENET newsgroups and parallel e-mail lists - used by biological scientists worldwide.
- Biosciences and Health from Berkeley Lab Research Review
- Bio-Web: Resources for Molecular and Cell Biologists life sciences news, sequence analysis tools, journals and publishers, research institutions, software, and bio-links
- Blazing a Genetic Trail illustrated booklet on hunting for disease genes.
- Careers in the Genetics Field Online booklet from the Genetics Society of America, including several profiles of geneticists
- Cold Spring Harbor Laboratory Press
- Current Bibliographies in Medicine National Institutes of Health
- Electronic Library of Microarray Publications
- Electronic Scholarly Publishing Classic Papers in Genetics
- Elsevier Science Publications
- EurekAlert! Gateway to science, medicine, and technology news
- European Molecular Biology Network newsletters
- Foundations of Classical Genetics from Electronic Scholarly Publishing
- Gene Letter A newsletter on societal issues in genetics
- Genes 2000 Online version of Genes general life sciences resource
- Genes and Genomes Issue The Scientist VOLUME 13, No:15 July 19, 1999
- Genetics from Google
- Genome News Network
- GenomeWeb -- New Media for the New Biology print and electronic provider of news and information on the business and technology of genomics and bioinformatics
- Human Genome News
- Human Genome Project Publications
- Journal of Proteome Research
- Judicature special genetics issue
- Library of Congress
- Linkage Newsletter archive only (1990-1998)
- March of Dimes Birth Defects Information
- Molecular Biology Gateway
- Molecular Biology Today
- Nature Genetics
- Nature publications
- New Scientist
- Proceedings of the National Academy of Sciences
- Research Abstracts from the DOE Genome Program Contractor-Grantee Workshop IX (2002)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop IV (1994)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop V (1996)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop VI (1997)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop VII (1999)
- Research Abstracts from the DOE Human Genome Program Contractor-Grantee Workshop VIII (2000)
- Reuters Medical News Daily updates of clinical news; drug and device development; epidemiology; and ethical, legal, policy, and regulatory aspects of medical news
- Science Now daily news from Science Magazine published by the American Association for the Advancement of Science.
- ScienceDaily Magazine breaking news about the discoveries and research projects in everything from astrophysics to zoology.
- SciWeb Short summaries of major stories, some with links to related articles in other sources.
- Understanding Gene Testing booklet from DHHS
- Wiley Genetics Wiley publications in genetics.
- World Scientific A publisher of science and technology.
- Your Genes Your Choices Booklet written in simple English, describing the Human Genome Project; the science behind it; and how ethical, legal, and social issues raised by the project may affect people's everyday lives.
Journals
- American Journal of Bioethics The American Journal of Bioethics and bioethics.net provide the clinical, legal, academic, scientific, religious and broad community-at-large with a rapid but comprehensive debate of issues in bioethics.
- American Society for Histocompatibility and Immunogenetics (ASHI)
- Anthrax: pre-publication and special issue from Nature this issue freely available
- Bioinformatics Journal
- BMC Bioinformatics Journal
- Cell
- Chromosome Research International Journal for Chromosome and Nuclear Biology
- Cold Spring Harbor Laboratory Press
- Current Issues in Molecular Biology
- EHP Toxicogenomics Journal
- Elsevier Science Publications
- EMBO Journal Online
- European Journal of Human Genetics
- Free medical journals from Hardin MD
- Genetics in Medicine journal of the American College of Medical Genetics
- Human Molecular Genetics Journal
- HUM-MOLGEN Online Journals of Bioinformatics
- Insights Learned from the Sequence: Papers from Science and Nature
- Journal of Biological Chemistry
- Journal of Biomedical Informatics
- Journal of Medical Genetics
- Journal of Molecular Biology
- Journal of Molecular Microbiology and Biotechnology
- Journal of the American Medical Women's Association
- Judges' Journal special genetics issue
- Lab on a Chip Journal
- Lancet Online International journal of medical science and practice
- Mammalian Genome Journal devoted to mammalian genomics and genetics in the field of functional genomics
- Microbes Rule: With a few genomes completed, some foresee a better world with bacteria Article from The Scientist, Mar. 10, 2003
- Molecular Biology Gateway
- Molecular Vision A peer-reviewed web journal covering molecular biology, cell biology, and genetics in vision
- Nature International weekly journal of science
- Nature April 2003 Genome Issue
- Nature Genetics: A Ten-Year Retrospective 1992-2002
- Nature Reviews: Genetics covers the full scientific breadth of modern genetics, capturing its excitement, diversity and implications.
- Nature's Focus on Systems Biology collection of Review-type articles
- New England Journal of Medicine On-line A weekly journal reporting the results of important medical research worldwide; includes archived issues
- New Scientist - Genetics
- Nucleic Acids Research
- Papers from Science and Nature
- Physiological Genomics
- PLoS Biology is a peer-reviewed, open-access journal
- Protein Science a publication of the Protein Society
- Science
- Science April 2003 Genome Issue: Building on the DNA Revolution
- Science Article: "Realizing the Potential of the Genome Revolution: The Genomes to Life Program," Marvin E. Frazier, Gary M. Johnson, David G. Thomassen, Carl E. Oliver, and Aristides Patrinos, Science 300, 290 (2003)
- Science Article: "The Human Genome Project: Lessons from Large-Scale Biology," Francis S. Collins, Michael Morgan, Aristides Patrinos, Science 300, 286 (2003)
- Science February 2001 Genome Issue
- Science Magazine: Functional Genomics
- Science October 1996 Genome Issue
- Science October 1997 Genome Issue
- Science October 1998 Genome Issue
- Science October 1999 Genome Issue
- Science October 2001 Genome Issue
- Science October 2002 The Mosquito Genome: Anopheles gambiae
- Science Special Issue: Caenorhabditis elegans -- Sequence to Biology
- The American Journal of Bioethics Online
- Wiley Genetics Wiley publications in genetics.
- World Scientific A publisher of science and technology.
Newsgroups
Chromosomes
News Sources
- All DNA Info DNA Directory Directory of DNA information, source, companies, products and services
- BioBeat Online Magazine how Applied Biosystems products and technologies are helping life science researchers, pharmaceutical companies, and private enterprise unravel the mysteries of life, disease, and human identity encoded in our DNA
- BioInform news service focused exclusively on the global bioinformatics community.
- BioNews news, information, and comment in human genetics and assisted reproduction
- Bioresearch Online source for professionals in the bioresearch and life sciences industry. Information on drug discovery, laboratory systems and equipment, molecular and cell biology, genetic sequencing, and more
- CDC Genomics Weekly a weekly update of information on the impact of human genetic research on disease prevention and public health
- EurekAlert! Gateway to science, medicine, and technology news
- Genetic Engineering News covers the industrial biotechnology, biopharmaceutical, agricultural, chemical, enzyme, and environmental markets from applied research through commercialization.
- Genetics and Biotech Information Network
- Genome News Sources Web sources of news and headlines related to genetics and the HGP.
- GenomeBiology devoted to biology in the post-genomic era
- GenomeWeb -- New Media for the New Biology print and electronic provider of news and information on the business and technology of genomics and bioinformatics
- HHMI Research News Index
- MIT Knowledge Updates educational briefings on life science topics
- NY Times Human Genome Project special index of genetics-related
articles
- Online Sources of Life Science
Information
- Science News Online
- Science Now daily news from Science Magazine published by the American Association for the Advancement of Science.
- ScienceDaily Magazine breaking news about the discoveries and research projects in everything from astrophysics to zoology.
- Signals Magazine online magazine that provides analysis of trends of interest to biotechnology, medical device, and pharmaceutical companies involved in the pursuit of medical products
- The American Journal of Bioethics Online
- The Scientist (News Journal for the Life Scientist) provides an open forum for examination and discussion of issues in research, technology, employment, funding, policy, and other subjects important to the life scientist
- Top Science Stories Science stories from the Los Angeles Times, links to archives since 1990.
- World Science newsletter of science
Spinoff
Toxicology
Structural Biology
Other
Links updated 16-Mar-09
This Web site is being
continuously updated, and HGMIS appreciates your
input. Please send updates, questions, or comments to martinsa@ornl.gov.
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