[NIFL-HEALTH:4050] Websites re: health

From: Debbie Yoho (dwyoho@earthlink.net)
Date: Fri Jul 18 2003 - 09:40:13 EDT


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Although this is a long post, I felt it worth sending to the list anyway. 
What follows is a categorized listing of websites connecting you to the
latest journal articles on a variety of health topics. Scroll down to
locate an entire section on health communications.  The list was compiled
by Marcia Zorn, National Library of Medicine. Best to all, Debbie Yoho,
moderator 

SENT JULY 17, 2003

A new Pew Internet & American Life Project report on the scope of health
topics Americans are searching online Internet Health Resources:  Health
searches & email are more commonplace, but there is room for improvement in
searches & overall Internet access. 
>From Susannah Fox (Dir of Research): “In the first comprehensive national
survey on the scope of health topics that Americans are searching online,
the Pew Internet & American Life Project finds that one in five Internet
users has looked for mental health information, one in four has looked for
health insurance information, and one in three has looked for drug
information online.  In all, 80% of Internet users have looked for at least
one of 16 health topics.  This study was conducted via random digit dial
telephone polling in Dec 2002, & also draws on comments gathered from 1,971
Internet users who participated in an online survey. “ 
Page with links to full rept, summary, etc
http://www.pewinternet.org/reports/toc.asp?Report=95  
Full rept
http://www.pewinternet.org/reports/pdfs/PIP_Health_Report_July_2003.pdf
Summary
http://www.pewinternet.org/reports/reports.asp?Report=95&Section=ReportLevel
1&Field=Level1ID&ID=403 
Questionaire
http://www.pewinternet.org/reports/pdfs/PIP_Health_Topline_2003.pdf 

AGED / AGING

The Greying of Society in the Age of Connectivity
http://www.developmentgateway.org/node/133831/sdm/docview?docid=544884 

Getting older? Be cautious with medication in 16 languages (only last
paragraph specific to Australia.)
http://www.mhcs.health.nsw.gov.au/health-public-affairs/mhcs/publications/49
80.html 

BIOETHICS / ETHICS

“Primer on Ethics & Human Cloning
http://www.actionbioscience.org/biotech/mcgee.html 

Medical Ethics (Medicine Online from The Int J of Medicine. Jul 2001)
http://www.priory.com/ethics.htm

CANCER

2003 Global Action Against Cancer Facts&Figures; causes, prevention,
detection, etc.
Booklet at: http://www.uicc.org/news/global-action.pdf   
Other International Union Agst Cancer links http://www.uicc.org/  

Conference Sep 15-18, 2003: Comprehensive Approaches to Cancer Control: The
Public Health Role, CDC 2003 Cancer Conf, Atlanta 1,000+ participants
http://www.cancerconference.net/Attendees/regist.aspx  Registration before
July 21, 2003 is $200, $275 after 

Ca Facts & Figures for African Americans 2003-4 (ACS)
http://www.cancer.org/downloads/STT/861403.pdf  

BreastCancerSource.com for breast ca tx options
http://hcp.breastcancersource.com/Article/10418.aspx

CLINICAL COMM

The Evolution of the Patient-Physician Relationship in the United States:
Emancipation, Empowerment, and Engagement 
http://www.positiveprofiles.com/about_us/evolution.htm 

Managing communication with young people who have a potentially life
threatening chronic illness: qualitative study of patients and parents BMJ
2003; 326: 305 http://bmj.com/cgi/content/full/326/7384/305 

CLINICAL TRIALS

Exploring Challenges, Progress, & New Models for Engaging the Public in the
Clinical Research Enterprise: Clinical Research Roundtable Workshop Summary
(2003) http://www.nap.edu/books/0309089468/html/

COMMUNICATION COMPETENCE

NCA’s Criteria for the Assessment of Oral Communication
http://isis2.admin.usf.edu/UGRADS/AdviseaBull/assessing_oral_communication_c
om.htm 

The important new NAS book entitled Health Professions Education: A Bridge
to Quality (2003)
has 10 chapters that that “hit” on communication, including chapters about
the Core Competencies needed for health care professionals 
http://books.nap.edu/nap-cgi/chaphits.cgi?term=communication&isbn=0309087236
&submit.x=13&submit.y=7

Communication Initiative “window” for Health Comm-
http://www.comminit.com/healthcomm/

Supportive Communication U.S. Pharmacist (Mar 2000)
http://www.uspharmacist.com/oldformat.asp?url=newlook/files/phar/mar00commun
ications.htm 

Persuasive Communication (US Pharmacist April 2000)
http://www.uspharmacist.com/oldformat.asp?url=newlook/files/phar/apr00rel.ht
m

Immediacy: Part 1—Verbal Immediacy  (U.S. Pharmacist)
http://www.uspharmacist.com/oldformat.asp?url=newlook/files/phar/jul00rel.ht
m 

COMPLIANCE / ADHERENCE

Adherence to Long-Term Therapies: Evidence for Action (WHO, Jan 2003) ”…the
consequences of poor adherence for health & economics…options …potential
impact …” Chaps at:
http://www.who.int/chronic_coCOMMUJNnditions/adherencereport/en/.   
Full rept (211p) pdf
http://www.who.int/chronic_conditions/adherence_report.pdf  

DISABILITY / ASSESSIBILITY

"Authoring for Accessibility with Adobe PDF Documents" & "Accessibility and
Usability with Macromedia Flash" 
http://www.htctu.fhda.edu/publicat/publicatmain.htm 

ICTs & people with disabilities UNESCO meeting
http://portal.unesco.org/ci/ev.php?URL_ID=11014&URL_DO=DO_TOPIC&URL_SECTION=
201 

The CPB/WGBH National Ctr for Accessible Media (NCAM) and Ohio State U
developed Cornerstones, an approach to literacy development for children
who are deaf and hard of hearing. Cornerstones teaching units at 
http://pbskids.org/lions/cornerstones  
Reading & Deaf Children article at
http://www.readingonline.org/articles/art_index.asp?HREF=/articles/loeterman
/index.html

“Life Behind the Label” guidance to writers re: language when writing about
mental or physical disabilities.
http://www.poynter.org/content/content_view.asp?id=36851

Disability on the Net, AJC V3#3
http://acjournal.org/holdings/vol3/Iss3/rogue4/scoopman.html 

Does someone you know need a speech pathologist?
http://www.mhcs.health.nsw.gov.au/health-public-affairs/mhcs/publications/49
65.html in 13 languages

DIVERSITY /  CROSS-CULTURAL / CULTURAL COMPETENCE / MULTICULTURAL /
ETHNICITY

BMJ Editorial: Racial/ethnic disparities in medical care bmj.com, 3 Jul
2003; 
html http://bmj.com/cgi/content/full/bmjusa.03060002v1 
pdf http://bmj.com/cgi/reprint/bmjusa.03060002v1.pdf

Resources in Cultural Competency (includes links & bibliographies) fm
Neiswanger Inst.
http://www.meddean.luc.edu/ssom/depts/bioethics/resources/cultural/index.htm
Includes links to Professional Agencies with Established Standards and
Initiatives Promoting Cultural Competence,  Noteworthy Links,  a Selected
Bibliographis for Cross-Cultural Health Care, Cross-Cultural Ethics, and
Training in Cross-Cultural Health Care Delivery  

National Council on Interpreting in Health Care list of local and regional
interpreter associations around the country that focus on health care
interpreting http://www.ncihc.org/hciaus.htm 

Hispanic Patients' Double Burden: Lack of Health Insurance & Limited
English. Commonwealth Fund  (Fe 2003)
http://www.cmwf.org/programs/insurance/doty_hispanicdoubleburden_592.pdf 

Hispanic Population Reaches All-Time High of 38.8 Million, New Census
Bureau Estimates Show (6/18/03)
http://www.census.gov/Press-Release/www/2003/cb03-100.html 
See also http://www.census.gov/pubinfo/www/multimedia/LULAC.html

Does One Size fit all? Exploring Asynchronous Learning in a Multicultural
Environment JALN 7(1) Fe 2003
http://www.aln.org/publications/jaln/v7n1/pdf/v7n1_morse.pdf 
http://www.aln.org/publications/jaln/v7n1/v7n1_morse.asp 

US Latino Websites: Diversity & Ethnic Studies
http://www.public.iastate.edu/%7Esavega/us_latin.htm 

Reznet U.S. online newspaper from Native Am Journalists Association (NAJA)
http://www.reznetnews.org/about/
http://www.comminit.com/pdskdv72002/sld-5186.html

OJJDP Tribal Youth Program:The US DOJ, Office of Juvenile Justice &
Delinquency Prev (OJJDP) information/resources for assisting tribal youth.
The OJDDP Bulletin describes initiatives:
www.ncjrs.org/html/ojjdp/193763/contents.html 

This is an amazing resource for multicultural groups!
http://www.mhcs.health.nsw.gov.au/health-public-affairs/mhcs/

Healthy Roads.org is a MULTIMEDIA, multicultural Web site with remarkable
links http://www.healthyroadsmedia.org/ 

Multilingual-Health-Educationnet 
http://www.multilingual-health-education.net/faq.asp 
Information in  English ; French ; Farsi ; Hindi ; Punjabi ; Korean ;
Spanish ; Chinese  ; Japanese ; Vietnamese ; Darshan ; Italian 

Conexión Migrante Health and Education Services site links to agencies
offering educational, health, & other supportive services to seasonal &
migrant farmworkers http://www.stcc.cc.tx.us/Library/guides/migrante.htm 


E-HEALTH / TELEMEDICINE / INFORMATICS

Working Session on Health Information and Virtual Media Congress CRICS VI -
BIREME May 8, 2003 (33p)
http://www.paho.org/English/DD/IKM/rippen-mexico.pdf

Quality of Health Information on the Internet: Achievements, Lessons & the
Future presentation CRICS VI - BIREME May 8, 2003
http://www.paho.org/English/DD/IKM/risk.pdf 
 
Infodemiology – The Epidemiology of (Mis) Information 
http://www.paho.org/English/DD/IKM/gunther.pdf  

Promoting Prevention Through Information Tech. Assessment of Information
Tech in ACHP Plans. (23p Alliance of Community Health Plans Feb 2003)
http://www.achp.org/cdc/it.pdf 

“Bridging the Digital Divide:  Informatics & Vulnerable Populations,”  2003
Am Medical Informatics Assn 
(AMIA) Spring Congress May 28-30 has  links to recommended reading, slide
presentations & workgroup sessions under "Spring Congress Schedule" section
http://www.amia.org/meetings/spring/current/info.html 

Challenges in e-health Service Delivery: 2d Health Online Summit 3/03/03 
http://www.health.gov.au/healthonline/docs/summit2/brommeyer.pdf

E-Health: Empowering Clinicians & Consumers (Slides)
http://www.himss.org/content/files/proceedings/2001/roundtab/rhouts/rslho08.
pdf 

Informatics Worldwide “The First and Most Comprehensive Health Informatics
Index Site” 
 http://www.hiww.org/index.html

E-LEARNING / ED TECH  / DIGITAL & DISTANCE LEARNING

Is “As Good as Face-to-Face” As Good As it Gets? (2003) JALN V6# 2 Aug 2002
http://www.aln.org/publications/jaln/v6n2/pdf/v6n2_macdonald.pdf 
http://www.aln.org/publications/jaln/v6n2/v6n2_macdonald.asp

Web Center Learning Networks Effectiveness Research Learning Networks
Effectiveness R Asynchronous Learning Networks (ALN)  & to build &
strengthen the ALN evaluation research community, to create & share
improved research methods, theoretical frameworks, & instrumentation for
assessing the outcomes of online learning.
http://www.alnresearch.org/index.jsp  It has an amazing data base of links
to papers about CMC effectiveness, asynchronous ed, etc
http://www.alnresearch.org/JSP/papers_frame_1.jsp 

Measuring Learning effectiveness Web Tutorial
http://www.alnresearch.org/JSP/tutorial_frame.jsp 

Links to e-articles http://www.aln.org/publications/view/index.asp 

Tutorial Learning for the New Century re: learning paradigms past & present
Journal of Science Education & Tech  V10#1 Mar 2001 
http://www.ics.uci.edu/~bork/tutorial_learning.pdf

Links to blogs re: online learning http://www.aln.org/resources/index.asp

E-JOURNALS / E-NEWSLETTERS (only free ones)

Journal of Asynchronous Learning Networks
http://www.aln.org/publications/jaln/index.asp 
(“a resource for knowledge about online learning”  
 
Sloan-C View (online learning)
http://www.aln.org/publications/view/index.asp

World Health News Online, an online digest
http://www.worldhealthnews.harvard.edu/index.html
About it: http://www.worldhealthnews.harvard.edu/about/index.html

The Evaluation Exchange is a periodical from the Harvard Family Research
Project that addresses current issues facing program evaluators of all
levels, with articles written by the most prominent evaluators in the
field…etc http://www.gse.harvard.edu/hfrp/eval.html 

Directory of Open Access Journals (DOAJ, http://www.doaj.org) Lund Univ
Libraries, supported by the
Information Program of the Open Society Institute
(http://www.osi.hu/infoprogram/ 
& SPARC http://www.arl.org/sparc). Describes about 350 open access journals 


EMPOWERMENT / INFORMED PATIENT / PT/CONSUMER-CENTERED / PROBLEM-SOLVING

Health InSight: Taking Charge of Health Information (Harvard Sch Pub Health
Ctr for Risk Analysis proj) http://www.health-insight.com/ie/index.html 

Do Patients need to read research?
http://bmj.com/cgi/reprint/326/7402/1307.pdf

Informed patient consent: a historical perspective Radiol Technol 1995
Nov-Dec 67(2):119-24 reviews the concept of informed patient consent 
http://www.dc.peachnet.edu/~shale/humanities/composition/assignments/experim
ent/dowdabs.html

Has the Web Really Empowered Today's Health Consumers? (Acrobat PDF)  AMA's
Marketing Health Services - Fall
http://www.pathinstitute.com/Articles/Empowerment%20Article.pdf

“The Synapse Between Silos” compares a healthcare system to dendrites in
the human nervous sys.  These “nerve ctrs” are  often called "silos" in
business slang.
http://www.ihi.org/pursuingperfection/projectparticipants/whatcom/story1.asp

See also http://www.amanet.org/editorial/silos_advice.htm 

Evidence-based Decision Making (fm UK’s Nat’l Electronic Library for
Health) http://www.nelh.nhs.uk/ebdm/

Informed consumer gets the best health care
http://www.idiotsguides.com/Chapters/0028621654_CIG_Managed_Health_Care/file
.htm

Telemedicine: New Horizons for the Informed Patient (Lifeline to Better
Care Conf presentation)
http://www.cisco.com/warp/public/3/emea/ent/industry/lifeline/presentations/
john_parker.pdf 

EVALUATION / OUTCOMES ASSESSMENT

Scientifically Based Research Special Report of expert commentary re:
challenges & opportunities of the current federal policy’s emphasis on
sci-based research for the practice & evaluation of education reform
Evaluation Exchange v9#2 Summer 2003
http://www.gse.harvard.edu/hfrp/eval/issue22/special.html 

Designing Evaluations to Match Program Development (Evaluation Exchange
v9#2 Summer 2003
http://www.gse.harvard.edu/hfrp/eval/issue22/eval2.html 

Flexibility & Feedback in a Formative Evaluation Importance of flexibility
& feedback in conducting formative evaluation.
http://www.gse.harvard.edu/hfrp/eval/issue22/eval3.html

Balancing Priorities in the Evaluation of Ed Tech  (importance of research
rigor & local validity Evaluation Exchange v9#2 Summer 2003
http://www.gse.harvard.edu/hfrp/eval/issue22/eval1.html 

The Sloan Consortium creates benchmarks for effective current learning
practices & incorporates them in Quality Framework goals (Effective
practices are solicited & shared) http://www.aln.org/effective/index.asp  
Quality Framework model http://www.aln.org/effective/framework.asp

GENDER

AdiosBarbie.com http://www.adiosbarbie.com/  “a body image site for every
body…!”  See especially the link to the Feed the Model Game & the Science
of Barbie (Barbioloogy) http://www.adiosbarbie.com/bology/) 

Killing Us Softly 3: Advertising’s Image of Women
http://www.mediaed.org/videos/MediaGender&Diversity/KillingUsSoftly3   
Story Guide:
http://www.mediaed.org/videos/MediaGender&Diversity/KillingUsSoftly3/studygu
ide/html
 
Learning to read gender in ads:
http://www.ltcconline.net/lukas/gender/background/howto.htm

Kaiser Family Foundation Capitol Hill Briefing Series on Women's Health
Policy links http://www.kff.org/docs/sections/women/briefing_series.html 
The newest archived Web cast is co-sponsored by the National Women's Law
Center & the Kaiser Family Foundation re: the role of state-based policy in
access to care for women and findings from a new report, "Women's Access to
Care: A State-Level Analysis of Key Health Policies."
http://www.kaisernetwork.org/healthcast/kff/09jul2003

GENETICS / GENOMICS
   
U.S. Genetic Policy Panel Forms “Composition draws criticism for
conservative stances on embryonic stem cell research “
http://www.biomedcentral.com/news/20030611/03 

About the Genetic Information Nondiscrimination Act of 2003, a bipartisan
agreement ratified by a Senate committee oin May 21,
2003.http://www.nationalpartnership.org/Content.cfm?L1=5&L2=2.0

UK Health Sec”y John Reid announced £50 Mil Genetics Strategy for the NHS.
Genetics White Paper 'Our Inheritance, Our Future  (a major UK initiative)
http://www.doh.gov.uk/genetics/whitepaper.htm 

Does Genetic Research Threaten Our Civil Liberties? Genomics: genetic
information & privacy 
http://www.actionbioscience.org/genomic/bereano.html

National Academies reports re: genetic science & its applications.
http://www.national-academies.org/headlines#sh0530

The Genetics of Autism 
http://www.actionbioscience.org/genomic/dougherty.html 

Ethics of Pharmacogenetics
http://www.actionbioscience.org/genomic/barash.html

What Do You Know about genetics…Test your knowledge (at pbs.org) (KQUE)
http://www.pbs.org/fredfriendly/ourgenes/what_do_you_know.html 

Public Health Genetics (UK) http://www.phgu.org.uk

Human Genome Project (HGP) Resources for Educators & Students (DOE)
http://www.ornl.gov/TechResources/Human_Genome/education/education.html 

Genomics Glossaries & Taxonomies Glossary homepage last rev May 20, 2003,
3750+ definitions
Cambridge Healthtech Inst  http://www.genomicglossaries.com/  
Searching for Communication brings up all kinds of links, including one for
Bioinformatics. 
http://www.genomicglossaries.com/content/printpage.asp?REF=/content/Informat
ics_Overview.asp 

GLOBAL / INTERNATIONAL / DEVELOPMENT

International Health Care Survey: Widespread Error, Uncoordinated Care, & 
Missed Communication a survey done in the US, Australia, Canada, New
Zealand, & the UK. Findings are also discussed in "Common Concerns Amid
Diverse Systems: Health Care Experiences in 5 Countries," (Health Affairs,
May/Jun 2003. More  findings on each country are in 5 data briefs on the
Commenwealth Fund's website
http://www.cmwf.org/publist/quarterly/spr03qrt.pdf  12p pdf The
Commonwealth Fund Quarterly Spring 2003, V9#1 See also
http://www.cmwf.org/publist/quarterly/spr03qrtonline.asp?link=6#link1 

Ensuring Valid Consent in Developing Country Context 
http://www.scidev.net/dossiers/index.cfm?fuseaction=policybrief&dossier=5&po
licy=31

WHO Macroeconomics & Health Web site (new in May 2003)
http://www.who.int/macrohealth/ 

Organisation for Econ Co-op & Dev (OECD) new Web site 
http://www.oecd.org/home/
OECD Data Show Health Expenditures at an All-time High
http://www.oecd.org/document/39/0,2340,en_2649_37407_2789735_1_1_1_37407,00.
html

eHealth in Latin America and the Caribbean: Development & Policy Issues May
2003 
http://www.jmir.org/2003/1/e4/index.htm  

Ethics and Equity in Health - Survey of Health Information websites in
Mexico 
http://www.paho.org/English/DD/IKM/mex-eng.pdf   

HEALTH  LITERACY & NUMERACY

Health Literacy http://www.kqed.org/w/healthdialogues/topics/literacy.html
(guests:  Dr. Dean Shillinger, MD
Sheila Krigler, Ann Monroe) call-in program that you can still listen to
online . Also
Nutrition  http://www.kqed.org/w/healthdialogues/topics/nutrition.html 
 
ToothWoman Network provides free info & support (interactive Wwebsite)
www.ToothWoman.net 
& http://www.toothwoman.net/press/fightagainst.htm

"Reading Between the Lines:Focusing on Health Information Literacy"
teleconf sponsored by Health Information Literacy Teleconference, the Med
Libr Assn (MLA) 9/10/03 1 PM THE NLM WILL BE A VIEWING SITE—please let me
know if you are interested in seeing this at the NLM
http://www.mlanet.org/education/telecon/healthlit/index.html

HEALTH CARE DELIVERY / QUALITY / DELIVERY /  ACCESS / POLICY

House Committee on Energy & Commerce Hearings, 108th Congress Serial No.
108-8 -- A Review of the Administration FY2004 Health Care Priorities, Fe
12, 2003  PDF 
http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=108_house_hearings
&docid=f:86046.pdf or TEXT
http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=108_house_hearings
&docid=f:86046.wais

How Good Is the Quality of Health Care in America? (RAND 6/25):
http://www.rand.org/hot/press.03/06.25fact.html  Chart
http://www.rand.org/health/mcglynn_appa.pdf 
  
A User’s Manual for the IOMs’ Quality Chasm Report  (which is a frequently
cited report) http://www.healthaffairs.org/freecontent/v21n3/s11.htm 
(Health Affairs May/Jun 2002)

Towards a New Politics of Health (UK) Politics of Health Group Discussion
Paper no. 1 
June 2003 
http://www.liv.ac.uk/PublicHealth/Publications/publications01.html 
pdf http://www.liv.ac.uk/PublicHealth/Publications/pog2.pdf 

"Hidden Costs, Value Lost: Uninsurance in America" IOM June, 2003 
http://search.nap.edu/books/030908931X/html/ 
he report is part of a series examining the consequences of being
uninsured. More at:
http://www4.nationalacademies.org/onpi/webextra.nsf/web/uninsured?OpenDocume
nt

What Other Programs Can Teach Us: Increasing Participation in Health
Insurance Programs 
Am J Public Health (Jan2003 (http://www.ajph.org/cgi/content/full/93/1/67)

"Public Reporting on Quality in the United States and the United Kingdom,"
Health Affairs 22 (May/June 2003): 134-48
http://www.healthaffairs.org/readeragent.php?ID=/usr/local/apache/sites/heal
thaffairs.org/htdocs/Library/v22n3/s19.pdf 

Connecting for Health = a collaboration of 100+ public & private
“stakeholders” representing every part of the health care system
http://www.connectingforhealth.org/index.html
Also http://www.connectingforhealth.org/ 
Press release:
http://www.connectingforhealth.org/news/pressrelease_060503.html

American Health Care: Why So Costly? Testimony for the Senate
Appropriations Subcommittee. Karen Davis, June 2003. (Commonwealth Fund
#654) 
http://www.cmwf.org/programs/quality/davis_senatecommitteetestimony_execsum_
654.pdf 
 News release:
http://www.cmwf.org/media/releases/davistestimony654_release06112003.asp

Health Economics Core Library, a project of the National Information Center
on Health Svcs Research & Health Care Tech, NLM, & Academy Health, 1/13/03
[44p.] http://www.nlm.nih.gov/nichsr/corelib/hecon.pdf

HIV / AIDS 

Visualizing Viral Activities: An Accurate Look into HIV Featured:
 http://www.sdsc.edu/GatherScatter/GSsummer96/larsen.html 
Also http://www.scripps.edu/pub/olson-web/people/larsen/  & click on Theater

IAT Newsletter Update (semimonthly) by the International AIDS Trust tracks
global AIDS development information to educate & “galvanise the public &
decision makers” http://www.internationalaidstrust.org

HIV Medicine 2003 (352 pages) http://HIVMedicine.com/textbook/download.htm
1.5 MB

HIV at Work CDC Web site http://www.hivatwork.org/

Communication Initiative “window” for HIV/AIDS -
http://www.comminit.com/hivaids/

Manual of Psychosocial Support re: psychological impact on children whose
parents are dying/died from AIDS for teachers in schools & day care ctrs &
members of local NGOs http://www.comminit.com/Materials/sld-4533.html

INTERNET / IT /  INFORMATION RETRIEVAL/ INFO LITERACY / WEB ISSUES

Online Consumer Health Use: the Internet is not as commonly used for
health-care purposes as reported 5/13/03
http://mednews.stanford.edu/news_releases_html/2003/mayrelease/Internet.htm
The paper is in the May 14 2003 JAMA

Explaining Variations in Health Care Web Use: The Role of Consumer Health
Care "Valuegraphics" (PDF)
http://www.pathinstitute.com/Articles/ValuegraphicsandWeb.pdf Managed
Health Quarterly - Fall 2002   

Has the Web Really Empowered Health Care Consumers?
http://www.pathinstitute.com/Articles/Empowerment%20Article.pdf 

eEurope 2002: Quality Criteria for Health related Websites J Med Internet
Res 2002; Dec 7; 4(2 http://www.jmir.org/2002/3/e15/index.htm

Quality of Online Health Information: A Critical Ingredient for the Use of
the Internet  fm Quality of Health Information on the Internet Workshop on
Health Information and Virtual Media Puebla Mexico, May 8, 2003 CRICS VI –
BIREME http://www.paho.org/English/DD/IKM/rippen-mexico.pdf 

Quality of Health Information on the Internet: Achievements, Lessons and
the Future Workshop on Health Information and Virtual Media Puebla Mexico,
May 8, 2003 CRICS VI – BIREME http://www.paho.org/English/DD/IKM/risk.pdf 
False Oracles: Consumer Reaction to Learning the Truth About How Search
Engines Work
Results of a Consumer WebWatchEthnographic Study June 30, 2003
http://www.consumerwebwatch.org/news/searchengines/index.html 
Pdf rept (66p)
http://www.consumerwebwatch.org/news/searchengines/ContextReport.pdf 

"Building Trust on the Web" transcript fm Consumer WebWatch's lst Nat’l
Summit on Web Credibility
http://www.consumerwebwatch.org/summit2003/transcript_searchengines.htm 

Web searchers measure web sites' appeal in seconds & are picky & impatient,
typically visiting only the lst 3 results from a query, with 1 in 5
searchers spending 60 seconds or less on a linked Web document
http://www.psu.edu/ur/2003/websiteappeal.html 
http://news.bbc.co.uk/1/hi/technology/3023514.stm

Selected Sources Related to Website Evaluation 
http://istweb.syr.edu/~mcclure/Web.Eval.Bibl.May20.html 

CHI’s Information Mgt & Interpretation Glossary Evolving Terminology for
Emerging Technologies (definitions of blogosphere, communities of practice,
etc. www.genomicglossaries.com/content/Informationmgt.ASP  
To view all glossaries  www.genomicglossaries.com

Technology & Change bibliography (Technology Integration in Higher Ed: An
Annotated Bibliography & Resource List to Support Systemic Reform)
http://www.pt3.org/technology/technology_change.html 

Projects under development pg of (CTSB) Computer Science
&Telecommunications Board (CTSB) of the National Academics”
http://www7.nationalacademies.org/cstb/projects_under_development.html 
The CTSB most recent newsletter at
http://www7.nationalacademies.org/cstb/newsletter-200302.pdf 


LITERACY  / INFORMATION COMPETENCE / 21st C SKILLS

A Partnership for 21st  Century Skills http://www.21stcenturyskills.org/ 
report & free planning guide  
Learning in the 21st  C (36p) 
http://www.21stcenturyskills.org/downloads/P21_Report.pdf 
Mile (Milestones for Improving Learning and Education) Guide fir 21st C 
http://www.21stcenturyskills.org/downloads/P21_Mile_Guide_Printable.pdf 

Competency in network use as a resource for citizenship: implications for
the digital divide http://informationr.net/ir/8-3/paper153.html 
Information Research  V8#3 Apr 2003
network competency is defined as people's capabilities to use the Internet
in order to communicate and seek information and to utilize electronic
public services. The findings are explored with regard to the digital
divide vs. digital inclusion, discussing the prospects for future research.

21st century literacy national opinion survery finds concern that young
people aren’t adequately prepared for 21st C. success…favor increased
emphasis on “basics plus” approach to ed (AOL-Time-Warner). 
http://aoltimewarnerfoundation.org/pdf/P21_Report.pdf  
Survey Summary
http://aoltimewarnerfoundation.org/pdf/keyfindingssummary.pdf 
http://media.aoltimewarner.com/media/fn_press_view.cfm?release_num=55253235 
Other links http://aoltimewarnerfoundation.org/

Benton Foundation 21st Century Skills Initiative
http://www.benton.org/initiatives/skillsinitiative.html 

21st C Literacy Document (102p pdf) Mar 2003
http://www.21stcenturyliteracy.org/white/WhitePaperEnglish.pdf

“Popular Culture, Textual Practice & Identity”
http://www.aare.edu.au/00pap/bea00495.htm  "If literacy is changing, in the
context of the new technologies, schools & teachers need to find ways to
work productively with students to help them become critical users &
producers of new texts and literacies."  A paper with analyses of
text-based communication in the context of online gaming environments
implying that literacy is changing. Cited by Stephen Downes' (OLDaily
6/27/03) who agrees that  "Teachers need frameworks for reconceptualising
literacy and curriculum that will both reflect and build on the digital
literacies students have already acquired."  

Literacy in American Lives (25 p. book chap)
http://assets.cambridge.org/0521783151/sample/0521783151WS.PDF 

Information and Its Counterfeits: Propaganda, Misinformation and
Disinformation
http://www.library.jhu.edu/elp/useit/evaluate/counterfeit.html

MASS MEDIA / JOURNALISM  / MARKETING / ADVERTISING

Medicine & the Media: Medicine, the media and monetary interests: the need
for transparency & professionalism 
http://www.mja.com.au/public/issues/173_11_041200/moynihan/moynihan.html

Educ & Digital Television: Seizing the Opportunity to Realize the Medium's
Potential Jan 1999 http://www.benton.org/publibrary/television/edtv.html 

Multimedia Training Kit “In the global effort to harness information &
knowledge for sustainable development at the community level, there is an
increasing realisation of the creative potential of linking the Internet to
more traditional communication technologies, particularly radio and
television.” http://www.itrainonline.org/itrainonline/mmtk/

The Society of Professional Journalists Code of Ethics
http://www.spj.org/ethics_code.asp

The Medium Vanishes? The Resurrection of the Mass Audience in the New Media
Economy 
This article first appeared in M/C: A Journal of Media and Culture, 3.1,
(2000), http://www.media-culture.org.au/0003/mass.html. It is republished
in JEP: J Electronic Publishing 7/03
http://www.press.umich.edu/jep/07-03/downes.html 

Penn State selling Mass Media Article Index to EBSCO
http://www.libraries.psu.edu/pubinfo/news/MassMediaIndex_703.html 
Jack Pontius (1940–2000) was the Univ Libraries' liaison to Penn State's
College of Communications (was the School of Journalism) for 20 yrs. His
death Apr 5, 2000, left a legacy with national significance—the Mass Media
Article Index, a Web-based index to 40,000 articles on mass media
(1984-April 2003) in 60+ res jnls,  journalism reviews, recent
encyclopedias & handbooks in comm. Studies..The Libraries recently sold the
index to EBSCO... Gary Price, adds in his ResourceShelf post that at least
for now the public can still search the Mass Media Index  free Direct LINK
to This ResourceShelf Post 
The Other Parent: The Inside Story of the Media's Effect on Our Children
explores effects of TB, video games, & the Internet
http://www.comminit.com/Materials/sld-5199.html

Communication Initiative “window” for Radio - http://www.comminit.com/radio/

U.S. Hispanic youth get more alcohol advertised to them than non-Hispanic
youth across major youth-oriented media, according to a Center on Alcohol
Marketing & Youth rept. 
Press release  http://camy.org/research/hispanic0403/ 
Summary  + Rept (16p) http://camy.org/research/files/hispanic0403.pdf  
Summary only (3p) http://camy.org/research/files/hispanic0403execsum.pdf 

Exposure of African-American Youth to Alcohol Advertising
Exec Summary http://camy.org/research/afam0603/
Whole Rept http://camy.org/research/files/afam0603.pdf

Commercial Alert health links (Ralph Nader is Chair of Commercial Alert’s
Board)
http://www.commercialalert.org/index.php/category_id/5/subcategory_id/64/art
icle_id/150  for 
Obesity -- Children
http://www.commercialalert.org/index.php/category_id/5/subcategory_id/72/art
icle_id/176 
Obesity -- Laws and Bills
http://www.commercialalert.org/index.php/category_id/5/subcategory_id/73/art
icle_id/177 

Blue Cross of CA TV Ad is a “Hit” with the Family Centered Health Care
Consumer Segment
PATH Inst Market Intelligence Rept 
http://www.pathinstitute.com/Articles/MarketIntelReport1.pdf 

MEDIA LITERACY

What is media literacy? (incl. glossary of media literacy terms . Part of
Media Literacy (KQED topic: education & learning) site
)http://www.kqed.org/topics/education/medialiteracy/  

Media literacy modules part of an Issues in Media, Literature & the arts
course  http://ruby.fgcu.edu/courses/tdugas/IDS3305/  See esp module 5
Consumr Culture http://ruby.fgcu.edu/courses/tdugas/IDS3305/module5.html  ;
module  6, Advertising Literacy
http://ruby.fgcu.edu/courses/tdugas/IDS3305/module6.html  ;  &7 (internet
Literacy)

Teen Health & the Media Web site links to info re: Violence, tobacco,
alcohol & other drugs, etc.
http://depts.washington.edu/thmedia/  Under violence, for example, you can
link to current news 

NEW MEDIA

Stephen Downes argues that the traditional approach to using learning
objects (stringing them together into lessons & courses) is misguided bec.
it misuses new media, described as “a new language, with its own semantics
& grammar, that informs how we should use the 'words' (learning objects) in
that language”. Links to slides, refs
etc.http://www.downes.ca/cgi-bin/website/research.cgi?item=1055276989 

Mlearning: A consortium of cos working with universities & colleges to
explore new ways of using the latest tech to enhance learning. Mobile
Learning (mLearning) uses such innovations as wireless comm, PDAs, digital
content fm traditional textbooks, etc… (cited by Stephen Downes’ OLDaily
6/9/03). http://www.mcgrawhill.ca/college/mlearning/

Best Practices for Digital Media by the Am Society of Magazine Editors
(ASME)
http://asme.magazine.org/guidelines/new_media.html 

MEDICAL ED / PHYSICIAN ROLE

Problem-Based Learning: A Paradigm Shift or a Passing Fad? (Medical
Education Online V1#2, 1996) HTML  http://www.med-ed-online.org/f0000003 or
PDF version of the article. http://www.msu.edu/~dsolomon/f0000003.pdf 

Explaining the de-prioritization of primary prevention: Physicians'
perceptions of their role in the delivery of primary care
http://www.biomedcentral.com/1471-2458/3/15 

Sleep Deprivation, Fatigue and Effects on Performance—The Science and Its
Implications for Resident Duty Hours talk at the ACGME Annual Educational
Conference, Mar 2003  http://www.acgme.org/New/Dinges.pdf 

ORGAN DONATION

Not Enough Information: Study Says Families Need More Information on Organ
Donation
ABCnews.com 
http://abcnews.go.com/sections/living/DailyNews/org&onor010703.html

Organ Donor information in 14 languages
http://www.mhcs.health.nsw.gov.au/health-public-affairs/mhcs/publications/51
95.html 

Living Donor Kidney Transplant streaming video
http://www.stanfordhospital.com/media/winMedia/wmmDonorKidney.html

TransWeb  “All about transplantation and donation…”
http://www.transweb.org/  

PHARMACEUTICALS / DRUG MARKETING DTC

Commercial Alert links for Drug Marketing
http://www.commercialalert.org/index.php/category_id/5/subcategory_id/74/art
icle_id/178)

Talking the Talk  survey conducted to determine the level of understanding
of some common medicine-related terms found that many people do not know
the meaning of words such as hypertension & decongestant.
http://www.medsafe.govt.nz/Profs/PUarticles/talk.htm 
Prescriber Update article about Prescriber Update Article: I've Missed a
Dose; What Should I Do? http://www.medsafe.govt.nz/PUArticlesPage.htm 
List of other articles: http://www.medsafe.govt.nz/PUArticlesPage.htm 
More info (re: drugs) for consumers http://www.medsafe.govt.nz/cons.htm

Education & Debate: Unhealthy Spin BMJ 2003;326:1205-1207 (31 May) “Public
relations companies are experts at "third party technique"—helping the drug
industry separate the message from what could be seen as a self interested
messenger…”  http://bmj.com/cgi/content/full/326/7400/1205 

CommercialAlert news release re: drug-sponsored “patient channel” in
hospitals
http://www.commercialalert.org/index.php/category_id/5/subcategory_id/74/art
icle_id/180

CommercialAlert Health Overview fact sheets re: Drug Marketing links
http://www.commercialalert.org/index.php/category_id/5/subcategory_id/74/art
icle_id/178

Medicare Drug Benefit Calculator lets you enter a prescription drug costs &
determine what you would pay under leading Medicare reform proposals being
considered in Congress http://www.kaisernetwork.org/static/kncalc.cfm 

PRIVACY / HIPAA

HIPAA links  http://www.educause.edu/issues/hipaa.html

Protecting Personal Health Information in Research: Understanding the HIPAA
Privacy Rule (NIH Pub# 03-5388)
http://privacyrule&research.nih.gov/pdf/HIPAA_Privacy_Rule_Booklet.pdf

Accreditation Council for Graduate Medical Ed HIPAA Compliance documents
http://www.acgme.org 
Includes  FAQs  http://www.acgme.org/HIPAA/HIPAA_FAQ.asp 

"Myths & Facts about the HIPAA Privacy Rule” re: myths about  HIPAA Privacy
Rule & what the law says.    A condensed version was published on 5/21/03
by iHealthBeat & is at www.ihealthbeat.org. (must register) Full doc at 
http://www.healthprivacy.org/info-url_nocat2303/info-url_nocat_show.htm?doc_
id=173435 

The Health Privacy Project links to websites by some federal agencies &
professional & trade associations for HIPAA privacy regulation guidance 
http://www.healthprivacy.org/newsletter-url2306/newsletter-url_list.htm?sect
ion=HIPAA%20Privacy%20Regulation%20%3Cbr%3EGuidance%20by%20Other%20Organizat
ions 

HIPAA Compliance for Healthcare Providers
http://www.activitytherapy.com/hipaa.htm

NAS Computer Science and Technology Board (CTSB) Extending Law into
Cyberspace Series info
http://www7.nationalacademies.org/cstb/series_extendinglaw.html  
Links to white papers
http://www7.nationalacademies.org/cstb/project_ciip_whitepapers.html

PUBLIC HEALTH  

Due to a misunderstanding over the meaning of a single word ("procurement")
Anthony Fauci states that Congress refused to authorize $250 mil meant to
fund development of a 2d-generation anthrax vaccine 
http://www.biomedcentral.com/news/20030506/01

The Epidemic Information Exchange (Epi-X) is a new forum to “instantly”
notify others (CDC & “various” health professionals) of an outbreak,
research, & will create reports on specific health topics/track
information. 
http://www.fcw.com/fcw/articles/2003/0707/web-cdc1-07-07-03.asp 

“SARS in the Context of Emerging Infectious Threats” [pdf]
http://www.nyas.columbia.edu/sars/index.html 
(proceedings from the NY Acad Sci ): 

Review of  CDC's Smallpox Vaccination Prog Implementation: Letter Rept 3
http://www.nap.edu/catalog/10714.html?onpi_listserv053003

Social Capital as a Health Determinant:  How is it Defined? Health Policy
Research Working Papers
http://www.hc-sc.gc.ca/iacb-dgiac/arad-draa/english/rmdd/wpapers/engsocial2.
html

 RISK / SAFETY

Risk Comm: Lessons from Communication Science  (by Don Zimmerman, Colorado
State U)
http://www.stc.org/proceedings/ConfProceed/2001/PDFs/STC48-000064.pdf

Health Risk Communication in the Anthrax Vaccine Immunization: Lessonsfor
the Future Apr 2001
http://www.aepi.army.mil/Publications/Health%20Risk%20Communication%20in%20t
he%20Anthrax%20Vaccine.pdf

Risk Communication bibliography with links to fulltext articles
http://www.comm.cornell.edu/comm486/RISK%20Bibliography.htm  Homepage for
the risk comm. course the bibliography is for
http://www.comm.cornell.edu/comm486/risk1.html

How Do You Communicate Risk? In Sept the BMJ will publish a theme issue on
communicating risk. The emphasis will be on drs communicating risks to
individual patients, though communication of population risks to mass
audiences will also be covered. More at
http://bmj.com/cgi/content/full/327/7405/DC1 

Risk Communication for Companies: Thriving and surviving in an age of risk
contents:
 http://www.fz-juelich.de/mut/vdi/vdi_bericht_e/inhalt_e.html
Title page http://www.fz-juelich.de/mut/vdi/vdi_bericht_e/index_e.html

Patient Safety Conferences, Events, Presentations, Meetings,
etc.http://www.vipcs.org/natlconf.htm

The NINR, NIAAA, & the NHLBI invite applications for research related to
health promotion/risk reduction amg adolescents. Application Deadline:
October 1, 2003. For more information, visit
http://grants1.nih.gov/grants/guide/pa-files/PA-02-159.html. Additional
questions, contact Cindy McDermott by phone at 301/ 594-6869 or email at
cindy_mcdermott@nih.gov. 

Risk Literacy & the Public http://www.doh.gov.uk/risk/risklit.pdf
Communicating about risks to public health: Pointers to good practice
http://www.doh.gov.uk/pointers.htm 

Interactive DES Self Assessment to determine risk
http://www.cdc.gov/DES/consumers/guide/index.html part of DES Update
http://www.cdc.gov/DES/ 

Risk (Environmental Literacy Council)
http://www.enviroliteracy.org/article.php/415.html 

It’s Natural, but is it Safe?  US Pharmacist
http://www.uspharmacist.com/oldformat.asp?url=newlook/files/cred/acf681.htm 

Household Products Database http://householdproducts.nlm.nih.gov/  links
brand name items to health effects records for 4,000+ products  

Theoretical Aspects of Risk Communication
http://www.inspection.gc.ca/english/corpaffr/publications/riscomm/riscomm_ch
2e.shtml

A socio-psychological model for analyzing risk communication processes
http://www.massey.ac.nz/~trauma/issues/2000-2/rohrmann.htm

Risk Communication & the Challenge of Hormesis (Oct 2002)
http://www.belleonline.com/oct_02.pdf 

Risk Communication, News Media Communication (slides, May 2003)
http://www.spd.usace.army.mil/cwpm/public/plan/pdact/03workshop/6_com.ppt 

Human Behavior and WMD Crisis/Risk Communication Workshop - Final Report
(2001)
http://www.dtra.mil/about/organization/finalreport.pdf

SCHOLARLY COMM / PUBLISHING

BMC (BioMed Central) Public Health publishes original res. on all aspects
of epidemiology & public health medicine
http://www.biomedcentral.com/browse/browse.asp?abbrev=bmcpublichealth&about=
y&
Reasons to submit papers are outlined at
http://www.biomedcentral.com/info/authors/reasons
See also http://www.biomedcentral.com/bmcpublichealth 
Related: Fees waived for university researchers publishing through BioMed
Central http://bmj.com/cgi/content/full/326/7403/1350-d?etoc 

Publishing Online-Only Peer-Reviewed Biomedical Literature: 3 Years of
Citation, Author Perception, and Usage Experience (JEP: J Electronic
Publishing 6/03 http://www.press.umich.edu/jep/06-03/anderson.html

Read before you cite! (cited by Stephen Downes’ OLDaily 5/29/03) Authors
report a method of estimating what % of people actually read a cited paper.
http://arxiv.org/ftp/cond-mat/papers/0212/0212043.pdf 

Peter Suber’s Free Online Scholarship (FOS) newsletter is now called "SPARC
Open Access Newsletter" & is sponsored by SPARC (The Scholarly Publishing &
Academic Resources Coalition) 
https://mx2.arl.org/Lists/SPARC-OANews/Message/95.html 

New-Model Scholarship: How Will it Survive? [pdf] 55p
http://www.clir.org/pubs/reports/pub114/pub114.pdf

Building Systems Responsive to Intellectual Tradition and Scholarly Culture
by (Intensive disciplinarity in electronic svvs for research)
http://www.press.umich.edu/jep/08-01/stephen.html 

“Because It's Time” about the rationale for starting Medical Education
Online & thoughts re: how electronic networks & other advances in
communication will impact scientific journals & scholarly communication in
general. HTML  http://www.med-ed-online.org/f0000002 . PDF
http://www.msu.edu/~dsolomon/f0000002.pdf 

Sharing Publication-Related Data & Materials: Responsibilities of
Authorship in the Life Sciences.
NRC, NAS, 2003 http://www.nap.edu/books/0309088593/html/ 

SCIENCE LITERACY

Learning Scientific Reasoning with the Interactive Computer (1994)
http://www.ics.uci.edu/~archive/documentation/learning_scientific_reasoning/
learning_scientific_reasoning.html

Foundation for Scientific Literacy homepage
http://www.scientificliteracy.org/ 

Improving Science Literacy & Conservation in Developing Countries 
http://www.actionbioscience.org/newfrontiers/delarosa.html

THEORY / METHODOLOGY

The Nature of Theory (theory defined) slides
http://bama.ua.edu/~droskos/Chapter%201/index.htm 
( from Comm 300 Human Comm course
http://bama.ua.edu/~droskos/courses_taught.htm )

Social Marketing and Health Communications
http://p2001.health.org/THEORY/communications.htm
  
Social-Cognitive Influences on the Use of  Persuasive Message Strategies
among Health Care Team Members Am Comm J V3#2 20
http://acjournal.org/holdings/vol3/Iss2/articles/cognition.html

Developments in Constructivist Work in Communication Studies, Psychology,
and Education: Introduction to the special section on Constructivism” Am
Comm J V5#3 Spr 2002
http://acjournal.org/holdings/vol5/iss3/special/waltman.htm 

“The Impact of Constructivism on Education: Language, Discourse, and
Meaning” Am Comm J V5#3 Spe 2002
http://acjournal.org/holdings/vol5/iss3/special/jones.htm

Social network analysis (SNA) = the study of patterns of communication and
the transmission of ideas. 
http://www.elearningpost.com/features/archives/001962.asp 

Effective Public Health Communications (slides)
http://www.phs.ualberta.ca/staff/CindyJardine/PHS%20505%20Jardine.ppt 

VIOLENCE

Teen Health & the Media Violence links
http://depts.washington.edu/thmedia/news.cgi?section=violence , resources
at
http://depts.washington.edu/thmedia/view.cgi?section=violence&page=resources
etc

Grant $ Available fm Women’s Div, General Board of Global Ministries, The
United Methodist Church to support projects addressing 5-18 yr olds’ needs
in the areas of violence &/or abuse prevention &/or treatment. More info
http://gbgm-umc.org/umw/BFCY_grant.html 

Violence as a Public Health Issue
http://www.kqed.org/w/healthdialogues/topics/violence.html 

Links to research on the effects of violent media on kids: More links
www.lionlamb.org/research.html

The World report on violence and health, a PAHO/WHO collaboration with the
Program for Appropriate Technologies in Health (PATH) June 2003  Full
report in English (also in Fre & Spa):
http://www.who.int/violence_injury_prevention/violence/world_report/wrvh1/en
/

Violence Against Women: The Health Sector Responds
http://www.paho.org/English/DPM/GPP/GH/VAWhealthsector.htm
Chap 1 - Gender-Based Violence: a Public Health &Human Rights Problem
http://www.paho.org/English/DPM/GPP/GH/VAWChapter1.htm
Chap2 - The "Critical Path" Studies: From Research to Action
Chap 3 - Joining Forces to Address Gender-Based Violence in the Americas
Chap 4 - Policy and Legal Reforms on Gender-Based Violence
Chap 5 - The Health Sector: Building an Integrated Approach
Chap 6 - What Happens at the Clinic?
Chap 7 - Beyond the Clinic: Violence Prevention with Other Community Partner
Chap 8 - Global Implications: The PAHO Approach to Gender-Based Violence
GBV Resources Section ;  Bibliography & References ;  
Full rept in French: 
http://www5.who.int/violence_injury_prevention/download.cfm?id=0000000591 
Full rept in Spanish: http://www.paho.org/Spanish/AM/PUB/Violencia_2003.htm 

Building Bridges between Domestic Violence Advocates & Health Care
Providers (Jun, 1999) http://www.vaw.umn.edu/documents/bridges/bridges.html
 





Deborah W. Yoho
Co-moderator, NIFL-Health Listserv
President, SC Adult Literacy Educators
Executive Director, Greater Columbia Literacy Council
2728 Devine Street,  Columbia, SC  29205
803-765-2555   Fax  803-779-8417   dwyoho@earthlink.net



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