Newsletter 2007
Volume 6 - Issue 3

In This Issue:
 

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onsumer Health Information Coordinator  Chat





Can CAM Help Me?
Deciphering Truth from Myth About Complementary and
Alternative Medicine

By Michelle Eberle

Complementary - together with
Alternative - in place of

Guaranteed, we all have a story of how complementary and alternative medicine (CAM) has helped us or someone close to us to cope with illness and improve our health. The CDC gathers statistics on how many people have used a form of CAM to cope with a health condition. According to the latest report, over one out of every three persons used CAM in the last 12 months. This statistic becomes one out of every two persons when prayer, a mind body therapy is included.

The headlines are full of constantly changing information about complementary and alternative medicine. In just the last couple weeks, the following headlines were released in MedlinePlus Health News.

  • Acupressure May Ease Dementia Patients' Agitation
  • Taking the Hype Out of Hypnotherapy
  • 'Natural' Remedies May Interfere with Clinical Trials

With the constant flux of new information on Complementary & Alternative Medicine and with so many unanswered questions about CAM, how can we find the evidence that is available and guide our patrons to quality information on this topic?

A little healthy skepticism goes a long way. We have heard ads for different supplements that guarantee dramatic weight loss or enhance your pleasure. We can help our patrons to learn how to recognize these scams. Here is an example of a Web site that will surely give you a chuckle: http://www.getslimslippers.com/ It these slippers only worked, I would certainly be wearing these.

It is good to get a bit of background information about use and categorization of complementary and alternative medicine. Here are some interesting facts about CAM according to the CDC.

The top reasons people seek CAM treatments:      The top 5 alternative therapy treatments:
1. Back pain or problem 1. Natural products / dietary supplements
2. Head or chest cold 2. Deep breathing exercises
3. Neck pain or problem 3. Meditation
4. Joint pain or stiffness 4. Chiropractic
5. Anxiety or depression 5. Yoga
6. Arthritis, gout, lupus or fibromyalgia
7. Stomach or intestinal illness
8. Severe headache or migraine

Top 10 herbal supplements:
1. Echinacea                                      6 St. John's Wart
2. Ginseng                                      7. Peppermint
3. Ginkgo biloba                                      8. Fish Oil
4. Garlic                                      9. Omega 3's / Fish oil
5. Glucosamine                                      10. Ginger
                                     11. Soy


The National Center for Complementary and Alternative Medicine categorizes CAM into 5 areas:

Alternative Medical Systems

  • Chinese medicine, Ayurveda, homeopathy, naturopathic medicine

    Mind Body Interventions

  • Relaxation, hypnosis, visual imagery, meditation, yoga, biofeedback, tai chi, group support, and spirituality

    Biologically based therapies

  • Botanicals, functional foods, whole diet therapy, osteoarthritis

    Manipulative and body based therapies

  • Chiropractic, manipulation, massage therapy, reflexology, rolfing, Alexander technique, Feldenkraus method

    Energy therapies

  • Qi gong, reiki, healing touch, intercessory prayer, magnetic therapy, light therapy

    Some interesting facts about the history of CAM:

    • In ancient China the doctor is paid as long as the patient is healthy. The doctor stopped getting paid when the patient became sick.
    • Claims against chiropractors, massage therapists and acupuncturists occur less frequently then claims against medical doctors
    • In the 1850s, 80% of medicines in the United States Pharmacopeia were derived from plants. Today, approximately 20-30% of the drugs listed are plant-derived
    • The World Health Organization reports that approximately 75% of the world's population depends on botanical medicines for their basic health care needs.

    When asked at classes for public librarians about the top three online resources for CAM, I recommend the National Center for Complementary and Alternative Medicine (NCCAM), the Memorial Sloan Kettering Herbs and Botanical Resource and PubMed on CAM. The NCCAM shares information about how to be an informed consumer of CAM including selecting a CAM practitioner and paying for CAM.

    The take home message is there are lots of ways CAM can help you - but don't think it can't hurt you too. There are many dangerous interactions between CAM treatments and medications. Certain CAM therapies are not suitable for persons with particular health conditions. A recent study by the AARP and the NCCAM showed that three out of four older adults are not informing their care providers about their use of CAM. Be sure to talk with your doctor about any CAM treatments you are considering or currently using.

    This article is first in a mini-series of "summarizations" of National Network of Library of Medicine/ New England Region consumer health classes.

    Interested in this topic? Call me at 508-856-2435 or by e-mail to inquire about course offerings.




    Here is a list of resources that are highlighted in the NN/LM class,
    "Will duct tape cure my warts?
    Examining Complementary and Alternative Medicine."

    Complementary and Alternative Medicine
    Recommended Websites

    General

    MedlinePlus
    http://medlineplus.gov
    MedlinePlus provides extensive information from the National Institutes of Health, Department of Health and Human Services, and other trusted sources on over 600 diseases and conditions. The Complementary and Alternative Therapies Topic section contains links to information on common complementary and alternative medicine therapies.


    National Center for Complementary and Alternative Medicine
    http://nccam.nih.gov
    One of the Institutes at the National Institutes of Health (NIH), NCCAM is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training researchers, and disseminating authoritative information to the public and professionals. The site contains general information on complementary and alternative medicine, research and clinical trials.

    Alternative Medicine Foundation
    http://www.amfoundation.org
    The Alternative Medicine Foundation is a nonprofit organization that provides consumers and professionals with responsible, evidence-based information on the integration of alternative and conventional medicine. The site contains resource guides on a variety of alternative treatment modalities, health issues and a primer on medical research studies. It is also the home of HerbMed

    CAM on PubMed
    http://pubmed.gov
    PubMed provides access to citations from the MEDLINE database and additional life science journals. It also includes links to many full-text articles at journal Web sites and other related Web resources. Users can limit their results to journal articles related to complementary and alternative medicine (CAM) by selecting "Complementary Medicine" under the Limits option. PubMed is an excellent resource for locating research article citations.

    Cochrane Collaboration
    http://www.cochrane.org
    Produces and disseminates systematic reviews of healthcare interventions and promotes the search for evidence in the form of clinical trials and other studies of interventions. Although a subscription is required to read the full text of a review, abstracts can be viewed online for free.

    NOAH-Complementary and Alternative Medicine
    http://www.noah-health.org/en/alternative/
    NOAH (New York Online Access to Health) provides access to high quality consumer health information. NOAH volunteers (librarians and health professionals) find, select, and organize full-text consumer health information that is current, relevant, accurate and unbiased.

    Acupuncture

    American Academy of Medical Acupuncture
    http://www.medicalacupuncture.org
    AAMA is a physician-only professional acupuncture society. The "Learning Center" on this Web site provides general information on acupuncture as well as analysis of clinical evidence and research.

    Cancer

    Office of Cancer Complementary and Alternative Medicine (OCCAM)
    http://www.cancer.gov/cam/
    OCCAM was established to coordinate and enhance the activities of the National Cancer Institute (NCI) in the arena of CAM. Information is available on CAM issues related to cancer, research and clinical trials.

    Chiropractic

    American Chiropractic Association
    http://www.acatoday.com
    The largest chiropractic professional organization, the American Chiropractic Association Web site includes an overview of the field, information on finding a chiropractor and health and wellness tips.

    Dietary Supplements

    Dietary Supplements - US Food and Drug Administration
    http://www.cfsan.fda.gov/~dms/supplmnt.html
    The FDA regulates dietary supplements under a different set of regulations than those covering "conventional" foods and drug products. Although manufacturers do not need to register their products with FDA nor get FDA approval before producing or selling dietary supplements, they must make sure that product label information is truthful and not misleading.

    International Bibliographic Information on Dietary Supplements (IBIDS) Database
    http://dietary-supplements.info.nih.gov/Health_Information/IBIDS.aspx
    The IBIDS database is a free database from NIH which provides reliable information from the published scientific literature on dietary supplements including vitamins, minerals and botanicals. Full-text is not available.

    Office of Dietary Supplements - NIH
    http://ods.od.nih.gov
    The mission of the Office of Dietary Supplements is to strengthen knowledge and understanding of dietary supplements. The Web site includes information on dietary supplement use and safety, nutrient recommendation reports and tables and vitamin supplements.

    Food and Nutrition Information Center
    http://www.nal.usda.gov/fnic/
    The Food and Nutrition Information Center (FNIC) at the National Agricultural Library (NAL) provides a directory to credible, accurate, and practical resources for consumers, nutrition and health professionals, educators and government personnel. FNIC nutrition information specialists review all site content to ensure top quality resources.

    Herbal Medicine

    About Herbs - Memorial Sloan Kettering Cancer Center
    www.mskcc.org/mskk/html/11570.cfm
    This Web site for consumers and healthcare professionals provides objective information and a clinical summary for each agent and details about constituents, adverse effects, interactions, and potential benefits or problems. Evaluations of alternative or unproved cancer therapies also are given.

    AGRICOLA
    http://agricola.nal.usda.gov/
    A bibliographic database of citations to the agricultural literature created by the U.S. National Agricultural Library and its cooperators, AGRICOLA contains citations for journal articles, books, audiovisuals and other resources.

    HerbMed
    http://www.herbmed.org/
    HerbMed is a searchable database which provides hyperlinked access to the scientific data underlying the use of herbs for health. It is an evidence-based information resource for professionals, researchers and the general public.

    Medicinal Herb Garden - Images
    http://nnlm.gov/pnr/uwmhg/
    Located on the campus the University of Washington in Seattle, the Medicinal Herb Garden is a resource for herbalists, medics, and botanists of all levels. The site contains high quality photographs of a wide variety of herbs.

    Native American Healing

    American Indian Health
    http://americanindianhealth.nlm.nih.gov/
    This Web resource on American Indian Health, sponsored by the National Library of Medicine, is designed to bring together health and medical resources pertinent to the American Indian population including policies, consumer health information, and research.

    Tribal Connections
    http://www.tribalconnections.org/
    This database developed by the National Library of Medicine provides health related resources for Native Americans and Alaska Natives. Content includes columns from Native American health specialists that combine western and Indian approaches to healing and healthy living and that focus on nutrition and diet.

    Consumer Protection

    MedWatch
    http://www.fda.gov/medwatch/
    MedWatch, the FDA Safety Information and Adverse Event Reporting Program, provides important and timely clinical information about safety issues involving medical products, including special nutritional products (e.g., medical foods, dietary supplements and infant formulas).

    Quackwatch
    http://www.quackwatch.org/
    This nonprofit organization was created by a physician to battle health fraud and promote consumer awareness. The Web site consists of links to articles and information on suspicious treatments, diagnoses and therapies. The articles are written by medical, scientific or legal specialist

    Sources:

    Barnes PM, et al. Complementary and alternative medicine use among adults: United States CDC, 2002.

    Barrett B. Kiefer D, Rabago D. Assessing the risks and benefits of herbal medicine: an overview of scientific evidence. Altern Ther Health Med. 1999 Jul;5(4):40-9.

    Studdert DM, Medical malpractice implications of alternative medicine. JAMA. 1998 Nov 11; 280(18):1610-5.




    Consumer Health Library Profile
    Fallon Clinic Foundation Lifetime Center
    Author: Robin McCoy - Ramirez




    The Fallon Clinic Foundation Lifetime Center is a health education and information resource center that is open to the public. Our mission is to connect, educate, and empower individuals, families and communities to improve health throughout a lifetime.

    A health library, free Internet access to health information, health education classes, and support groups are just some of the services available. The Lifetime Center is located in the atrium of Worcester Medical Center, and is comfortable, private, and welcoming. Parking validation is available.

    The Fallon Clinic Foundation Lifetime Center offers:

    • Full-service Health Library - books, magazines and videos…read on site or take home on loan. (Free to join.)
    • Free Pamphlets, Brochures, and Handouts on a wide variety of health topics.
    • Free Internet Access to Health Resources - If you are unable to come to the Lifetime Center, just call. Our staff can help you by conducting the research and mailing it to your home.
    • Free Blood Pressure Screening held each month at the Worcester Medical Center.
    • Monthly Information Tables that highlight different health issues or concerns.
    • Corporate, School, and Community Activities, including health fairs and lectures.
    • Support Groups held each month for people dealing with infertility issues or coping with cancer.
    • Health Education Classes and Lectures - CPR and Home Blood Pressure Monitoring, etc.
    • Internship Programs and Much More - Contact us to see what's new at the Lifetime Center, or check out the program calendar and program offerings on our website--www.fallonclinicfoundation.org/lifetime/indexlifetime.aspx

    We invite you to visit, call, or email us at Lifetime.center@fallonclinicfoundation.org for more information.

    Fallon Clinic Foundation Lifetime Center
    (800) 891-2300 or (508) 363-3192
    Hours of Operation: Monday-Friday, 8:30AM-500PM
    www.fallonclinicfoundation.org/lifetime/indexlifetime.aspx




    Consumer Health Outreach Profile
    GRASP - Grandparents and Relatives As Surrogate Parents
    Rutland Regional Medical Center
    Author: Claire LaForce


    The Health Sciences Library at Rutland Regional Medical Center became aware in 2004 of a population within the community in need of consumer health information - grandparents raising their grandchildren. Serendipitously, this awareness coincided with an invitation from the NN/LM NER to consider applying for outreach subcontract funds, targeting an underserved section of our community.

    The diversity and urgent need of this population led us to immediately partner with other community organizations to develop the methods to respond to the issues and needs of these individuals and families. This collaboration was facilitated through the Rutland County Caregivers Coalition, of which the RRMC Librarian is a founding member. Ultimately, we have engaged the regional Council on Aging, community social services and family support personnel to develop, implement and continue to grow Grandparents and Relatives As Surrogate Parents (GRASP), an information-based support program for the adults and children in this emerging social situation.

    In Vermont, as across the nation, the issue of grandparents raising their grandchildren has been growing and has begun to garner attention as a distinct social issue needing community, state and national support. In many cases, laws have not been re-visited to reflect the reality of kinship care needs. In Vermont, 4,067 children live in grandparent-headed households and 966 children live in households headed by other relatives.

    I recognized the varied need for physical and mental health care information that would benefit the caregivers as well as the children being cared for. Developing a comprehensive information program supported by direct and easy access to such information through handouts, guidance and instruction on Internet access and searches, and topic specific speakers has proven to be a fundamental asset for these individuals and families.

    Even prior to receiving notification of the NER outreach education award, the Southwestern Vermont Council on Aging provided a small grant to begin a support group for grandparents. A location was found that afforded both adult meeting space and a separate area for the children to play under supervision. The provision of childcare is critical to the ability of grandparents to attend the meetings, and the provision of a healthy meal for all supports the educational goals while also alleviating a major stress and additional barrier to attendance.

    The NN/LM NER funds were used to hire a social worker with experience in group facilitation, who was able to handle the planning, scheduling, and promotional work for the first year. Ads were placed in the local paper, flyers posted in libraries, senior centers, and any public place we could think of, and a descriptive information letter was sent to local pediatricians.

    The group meets twice a month from 5:00 - 7:30 p.m. Each meeting begins with a light congregate meal; then the adults break off to a separate room to discuss issues of interest. One meeting per month usually is dedicated to a particular topic, or features a guest speaker. Some of the topics presented include: bullying, stress reduction, incarcerated parents, the probate/court system, daycare subsidies, behavioral issues in children, substance abuse and family dynamics, and use of the public library's online catalog.

    During the first year, I attended almost every meeting, bringing handouts on topics relating to parenting, as well as sharing resources purchased with the grant money. She provided presentations on evaluating health information on the web, demonstrated the library link on the hospital's public website (www.rrmc.org), shared information on preventing medical errors and patients' rights, and promoted MedlinePlus as one-stop-shopping for reliable health information.

    Since the group began, the numbers have been small, varying from 4-6 regular attendees up to a dozen sparked by interest in a particular topic. Continued promotion and raised awareness throughout our community, has garnered attention and interest, including a planned editorial series in the local newspaper.

    The project has not been without difficulties. Challenges have included:

    • Inability to meet requests for care for children with severe behavioral issues
    • Confidentiality concerns, especially inevitable in a small rural community
    • Instilling sense of ownership rather than entitlement
    • The fact that the stress of grand-parenting contributes to depression, anger, separation, among the grandparents themselves

    When there is a true need in the community, ways must be found to continue the project once started, and I again turned to our Development Officer & Grants Coordinator to help find further funding for GRASP. Within a few months, we applied for a grant from the Vermont Community Foundation. Our award came through in December! Along with continued support from the Southwestern Vermont Council on Aging, the group has another strong year ahead.

    I am fortunate to have the support of my hospital in the outreach work that I do, and a lot of autonomy in how my time is spent. The Community Education and Public Relations Departments of the hospital have provided in-kind support in the form of advertising our meetings on a regular basis, which demonstrates their support and the importance of this project to our community.

    I continue to be involved and the project does require a fair amount of time. The role I have chosen to assume at this point is to attend planning meetings with the facilitator and co-facilitator, help establish goals for the group, arrange for guest speakers as needed, submit expenses and quarterly reports for all grants, bring health information topics of interest to the group and share resources.

    This is time well repaid, because the project has allowed promotion of the Library and other hospital services not only within the group itself, but with guest speakers and with members of other community organizations. Best of all, I have connected to an underserved part of our community deserving of improved health information and health care access. What price Good Will?

    Future plans include:

    • Promote the group by a mailing to daycares, physicians, and schools in the county to spread the word about GRASP and seek referrals to grow the group.
    • Plan special events such as a summer picnic
    • purchasing access to online parenting classes offered through a local university account finding new space for the group
    • helping the group define itself by stating a mission, establishing group guidelines and rules, structure the time available for the meeting, share roles such as time-keeper, etc provide a bit more structure for the children's time together, incorporating a story, a beginning or ending activity that will help them transition from leaving the grandparents at the start of the meeting, and leaving each other at the end of the meeting.

    In addition, the group has become affiliated with a newly formed statewide grassroots group called "Vermont Kin as Parents," that has become incorporated, formed a board of directors and captured the ear of the Director of the Department of Children & Family Services of the State of Vermont, all within the past year. Their third annual Kinship Care Conference will take place on April 19, 2007. At this conference, grandparents, other kin, and all sorts of professionals and interested organizations come together to share stories, swap ideas and form partnerships that last well beyond the conference. This year, two members of GRASP will participate in the conference: one is a teenager who will join other teens to tell attendees what it's like to be raised in a household without parents, and the other is a very young grandmother who has had to take on a legal fight against her own substance-abusing daughter to win custody of the grandchild for whom she has served as primary caregiver since birth.

    It's wonderful to think that an initial grant from NN/LM NER has provided the foundation at a very local level for these individuals to find the confidence and the voice to speak out at a statewide conference on behalf of their peers.




    Michelle Eberle, Consumer Health Information Coordinator
    michelle.eberle@umassmed.edu


  • NLM | NN/LM | NER


    Comments to:
    Rebecca.Zenaro@umassmed.edu
    University of Massachusetts Medical School
    222 Maple Avenue Shrewsbury, MA 01545
    Phone:  800-338-7657
    508-856-5979
    Fax:  508-856-5977