NATIONAL LIBRARY OF MEDICINE REGIONAL MEDICAL PROGRAMS Bethesda, MD December 6, 1991 Session III [Video shown] Lindberg: My friend Charles Flagle uses the metaphor of John Le Carr 's novel The Looking Glass War. For those of you who know it, it's about a bunch of old warriors who reassemble to set off on a picturesque mission. I hope we don't fall in that category, but Charlie tweaks us every once in a while with that thought. I won't delay further. I've said enough about Vern Wilson already. He is going to head the next panel. The panel will be focused on, but doesn't have to limit its attention to, the question, "How did RMPs get terminated?" Dr. Wilson. Wilson: I don't know whether I should introduce this as the Missouri Mafia Programs, since we have the director of the library, but I think I won't. [General laughter] I have thoroughly enjoyed the opportunity to both see all of these folks and to relive some parts of the RMP program, kind of like a flashback in time, or maybe more appropriately it's sort of a computerized window in which we're examining one part of something that is at least officially completed. Our task in this panel, if we can accomplish it, is to provide a post mortem analysis of the body, and we won't bother to eulogize the program. We could take all the time in the afternoon and probably not accomplish much by that. Karl Yordy, of course, will draw the conclusions. He's the pathologist. So we don't have to interpret what we find. We'll simply restrict ourselves to looking at some of the causes. The film was excellent, and I'm not sure that we can make major contributions beyond that, but we'll at least share what we know. Dr. C.H. William Ruhe and I go back more years than I like to think. During the time that he was involved with RMP, he was secretary to the Council on Medical Education and he was chairman of the Review Committee of RMP. My guess is that if anyone could give us the history of RMP, both in its rise and fall, Bill's probably it. I threatened him by giving him the whole time and the rest of us would just sit still, but I guess I can't quite take that much latitude. Dr. William McBeath I have not really had the opportunity to meet, who was coordinator of the Ohio Valley Regional Medical Program and represents the trenches. Herb Pahl, who will be doing some of the questioning, was a fine commissioned officer, served with distinction. He took over the program from '73 to '75 and got the task of being the funeral director, or whatever, as the program kind of winded into oblivion. Gordon Barrow, who is also going to comment, was coordinator of the Georgia program. My comments, I think, will be restricted to only one or two. The Missouri program has been described, so I'll not describe that further. Buck has covered that. HSMA, I think we need to spend just a couple of minutes on because it's been loosely addressed, usually with epithets. It was a short-lived government program that was produced as a result, really, of the decision by HEW to have no surgeon general. In that process they developed the tactic of producing what was called HSMA. Mental Health Administration chose to be joined with HSMA instead of with NIH, and that's another story. But there were seventeen programs, each of which were in place when I replaced Joe English as head of the agency. That was the second step from Bob Marston. Those seventeen programs each had a categorical responsibility and categorical appropriations. All of them were underfunded and, of course, the scene was set for real competition for funds. If one looks at the government money spent on health, as I recall it, 85 percent of that government money went into entitlement programs. That's Medicare, Medicaid, programs in which the money was spent and Congress didn't have to act upon it. That left roughly 15 percent of the health money for the rest of us to scramble for. In that setting, RMP did not have friends enough to politically persist. I'll drop my comments there. I hope somebody else disagrees, and I'm sure they will, but it seems to me that one can encapsulate the problems of RMP rather simply into Cap [Caspar] Weinberger and unfriendliness and the fact that there was so much competition for funds. Ruhe: First of all, I want to tell everybody how nice it is to be here and see so many of you again. If we haven't accomplished anything else, it's probably been worth it for that. I am pleased to be here. I think Vernon has moved me up in at least one respect. I was never chairman of the Review Committee in the RMP. I was a member of that committee from the beginning, I think, to the end, and spent a great deal of time in activities related to it. I don't know that I have any greater insight into the problems than anybody else has. In a sense, I was a token AMA person on the Review Committee and in the discussions. It was always viewed wise to have somebody from AMA there, and I usually got asked. I'm not quite sure why. Perhaps I was considered the least noxious of the people. But my first relationship came when I was asked to work with the representative of our legislative department to analyze the proposed legislation and, Vern, that same time also the proposed legislation for CHP. It was a dreadful task. It was almost impossible to tell what was being proposed from the proposed legislation. Knowing, of course, that the basis for it was the report of the DeBakey Commission, we went back and reread that and studied it again, yet we found in some cases it was rather difficult to trace the commission report to the legislation and connect the two. But the point in referring to this is to emphasize something I think has not been emphasized enough. I think it has been alluded to once or twice, but I want to strengthen that by saying that the RMP program was many things to many different people, and it was easy to find a whole variety of views on what it was supposed to do. This was not only true out in the field before the planning grants were organized extensively and the operational grants came on board, but it was true in the staff as well. There was, in fact, as was related earlier, a feeling of excitement among those who were working for the Regional Medical Programs, and many people moved into that staff group from other areas in HEW. I found in the meetings frequently the attitudes of persons who had moved into the program would differ from person to person. On the Review Committee, when we were reviewing both planning grant applications and operational grants applications, it became clear that in looking at what a given region was proposing to do, the reactions to it were quite various on the part of both committee members and staff members. That was always puzzling because it meant that there was not a single unified direction for the forward movement of the total program. That was partly deliberate, as has been pointed out repeatedly, because the intent was to allow the regions to initiate their own ideas and to present them so that there would be a varied and diversified program. That's a good thing in some ways, but when it comes time to call for unified support of a program like this, it's difficult to marshal constituents unless they're all facing in the same direction and to get behind a program. I think that the very variety and disparate nature of the individual programs in the individual regions made it difficult to have a concerted support posture. I believe that if one wants to reduce this to its simplest terms, I think you can say that the reason for the demise was pretty much the reason for the establishment. Both were political in nature. I don't mean this in a disparaging way. I'm not saying it in terms of the narrow sense of political parties or even of individual political goals of individuals, but rather in the broader sense of what was going on in society, what was going on in the country at the time RMP was established. It's been mentioned that the RMP could be viewed as having been the health part of the Great Society program of President Johnson, and this, of course, was one reason for the great speed with which it was launched. As Mike [DeBakey] said earlier, the president told him, "You can't take so long. We have to get it going and get it started sooner." I think that gave it a projectile force when it began, impelled it, and I believe that the reception in Congress was partly favorable because of that, because it was regarded as being urgent, and that was a good thing. But on the other hand, you always lose something when you take that kind of position and that kind of approach, because, again, you do not have everybody facing in the same direction, everybody understanding what is being done, and having a chance to sift and sort out the best parts of it from the less good and, consequently, to get the kind of really community support from the health workers that have them completely involved with it. The program was imaginative in the sense that it was viewed as a bright, new, exciting overture, a change in the way things had been done, and an opportunity to strike a major blow at the major killer diseases. I think personally that it was oversold, but that's the way political positions are often established and programs are often oversold. But it's always bothered me, Mike, I'm sure I never mentioned it to you, but the commission report, when it was issued, announced that it was to conquer heart disease, cancer, and stroke. I don't really think that many people thought that this approach was going to conquer any of these diseases, and as a previous speaker has pointed out, they are still the leading killer diseases today, just as they were in those days, although the numbers are somewhat improved. So the program reaped some of the success of early initiation of strong impetus, strong leadership from the administration, supported pretty strongly by the Congress, and yet at the same time there was no assurance that these forces would endure for very long. What happens with any bright new shining program, I think happened here, in that the luster wears off a little bit. When an administration changes, obviously there isn't much enthusiasm for improving funding of a program that was started by a previous administration, and so it could have just been allowed to die for that reason alone. But I think there was also a changing emphasis, as you recall, a major push in the new administration toward cancer, to the point where it was separated out in the government halls. Consequently, that was putting a different image on the major federal programs. The concept that this would eventually lead to demise of RMP, I have no idea whether that was a target from the beginning or whether it was simply a matter of trying to save money and this was a natural target which had been established by previous administration. It was already beginning to lose its excitement. When one attempted to evaluate it, it was very difficult. There were two things that could be done. You could count the number of programs you had in the number of regions, and if you evaluated it that way, inevitably it was going to get a very high rating because eventually every region had a program. If you evaluated it on the basis of whether it conquered heart disease, cancer, and stroke, it was going to get a very poor rating because that was not going to happen. In between, there were hosts of things that could have been done and might have been done better. I also had the opportunity to serve on the committee which helped the surgeon general with his design of the report to the Congress in 1967, I believe it was. The committee wrestled very hard with this thing, how to evaluate something so disparate, so different in different regions and in terms that the public was going to be able to understand and in terms that the Congress would understand as far as getting additional support was concerned. This was before anybody really thought that things were going to be phased out. The committee waxed fairly enthusiastic in its report, perhaps more so than I would have personally, and it recommended extension for five years, which was not done. Support was extended for three years. Not unusual for that kind of thing to happen. But inevitably it suffered from difficulty in explaining what was being done, what ultimately would be the goal. What are we working toward? Are we working toward complete elimination of heart disease, cancer, and stroke? Are we simply working toward the establishment of solid cooperative relationships in each of the regions of the country? That, I'm afraid, was not completely understood. Another thing which hurt a little bit was that the programs had been channeled. I think the AMA had something to do with this, but it was not the only group, channeling a lot of the energy into the subject of continuing education not only for physicians, but also for nurses, for allied health workers, for all health providers. Many people seized on this and many of the good things which came out of RMP were the result of initiation and continuation of good, effective continuing education programs. But as inevitably happens in something like this, when people begin to examine how much money there is and what it's being spent for, the facts stuck in many people's craw that the government was putting up money for the continuing education of rich physicians who could easily afford to provide their own continuing education. That was seized upon and was one of the bases of attack. Whatever the reason, obviously the sum and substance was that it made it a convenient target to shoot at and, of course, the best way to hit that target or to bring it down is, I think, to use the Rogers metaphor, is to strangle it, which it seemed to me is what happened. It was strangled by cutting off the funds. It doesn't really matter whether you gain the day in your arguments or your justification if somebody at the same time is shutting off your funds. You're not going to live very long. I think probably that was the thing that happened. While there were some people in the programs around the country who were annoyed and antagonized by this, some of them chose to fight it, and those who entered the suit to recover the money which had been not provided, the fact was that there was not a single concerted effort by a large group of people who had effective political power through their regions. I don't know whether this was never tried or whether it was done imperfectly or perhaps thought of too late, but the relatively minor and--it's unfair to call them trivial, but the ineffective things which were done to fight it were never supported by a massive movement in the grass roots. Consequently, the issue was politically dead. The concept of combining RMP with Hill-Burton and CHP, when I first heard about that, I thought, "That's the kiss of death," because you're tying it to two other things which have very little to do with it. The goals are different. Hill-Burton goals had been met. There really wasn't much enthusiasm for building more hospitals. The CHP program, if anything, the legislation was more difficult to read and understand than was the proposed legislation for RMP. In my contacts with at least the practicing physician community, I don't think the medical community ever understood the CHP legislation. To put the RMP in with it, instead of strengthening either or both, I think weakened both. I think it really resulted in the RMP being killed. Sorry to be so long, but that's the story as it appeared to me. Wilson: Thank you, Bill. Dr. McBeath. McBeath: I'd like to begin by raising the name of Leona Baumgartner, who was one of our distinguished colleagues among the coordinators of Regional Medical Programs and one of our colleagues who in recent years I've had opportunity to occasionally have contact with. She died a few months ago, but if she were here today, she would repeat a chorus that she gave to me two or three of those times about how important it would be and what a contribution it would be if somebody would get together some of those who were involved in RMP and look at its history and some of its contributions, some of its life cycle. So Dr. Lindberg, I'm sure that she would be one who would be commending you along with the rest of us today for having done this. It's probably appropriate at this time to issue some disclaimer about the fact that certainly on this panel none of us have not only not had any collusion, we haven't had any communication about what we were going to say, and we follow this great video which Bill Leonard and others have put together. You may see an awful lot of common strains in it that make you think that somebody's plagiarizing. But I came up with some of the same kinds of conclusions in my thinking about the factors that have influenced the termination of RMP as a national program. I emphasize "as a national program." I found myself finding it very hard, having been a coordinator of one program, to keep from translating things that might have been unique to our situation to the national scene. I came up with three factors that I thought were important enough to mention to this group. One of them was the uncertain programmatic focus, another was the inadequate program constituency, and the final one was the changing political context. Those are themes that will not be new to any of you. I tried to force them, after I'd chosen them, into some kind of a model or a metaphor or paradigm, maybe a death certificate. You know, immediate cause and contributing cause and mechanisms, or maybe even more an epidemiological causal tree or something. But I thought of John Pahl's [phonetic] book about clinical epidemiology, which was influential to me back when I started in these games, in which he focused on seed, soil, and climate. Maybe with a little pressing, I pressed these three factors into seed, soil, and climate, kind of a picturesque way of getting the rather traditional triad of any ecological study. I will list them in that order, the way John Pahl did, of seed, soil, and climate, but I think their importance is just inverse. The first having to do with the seed. I think the uncertain programmatic focus was something that persisted throughout the life of RMP, and the lack of any consensus as to the purpose of the national effort which we could uniformly communicate to others, I think was a persistent nagging irritant to all of us. We seem to need, in retrospect, a more focused purpose that was better able to be communicated and conceptually presented to a large group of audiences that became important for not only the planning and the implementation of the program, but for its defense in its final days. That focus, of course, had pros and cons to it, and all of us who were coordinators certainly used the advantages of such a diffusion of goals. It's as if we had a seed package that had a great variety in it, and we enjoyed in each garden planting to beauty and to varieties that appealed to our local needs. I think, in looking deeper, the seed might be better compared to hybrid seed, because, as has been pointed out today, the nature of the changes that came as we went from commission, as we went to legislation, as we went to implementation, at least to my view, clearly carried forward two major kinds of classifications that you could have made for the seed. One were those who wanted to focus and emphasize some kind of system rationalization which they thought would bring the best of care to all the people, and others who continued to want to emphasize the categorical initiatives that were emphasized also, most particularly the commission activity and continuing in the legislation and implementation. I'm long removed from my rural grandfather who came from Missouri, but I understand that a lot of hybrid seed doesn't reproduce. It makes a lovely produce, but doesn't reproduce. I am convinced that was one of the factors. Among our friends, it was okay. It was always an advantage. It was a strength. But among the skeptics, among the critics, and, in the end, among the Congress and others, it was difficult to live with. The soil. I use the soil as the constituency, the groups that we wanted not only to benefit from RMP and to be involved in it, but to nurture and support its continuation. I don't think we really ever had a strong, persistent, clearly identified RMP-specific constituency, and the uneven kind of support that came about in NIH and certainly in the PHS, and in the regions certainly some of us experienced that diffusion, and in the Congress, where it finally counted, I think we really were losing a constituency that was effective in the Congress. I would think maybe it's because it's the one that I had least influence over, at least the part of participating in, but the most important, though, was the changing political climate. There's been much reference to that already. The competition for the funds in the Nixon administration was a dramatic change from what we'd seen before. When I really got to thinking about these, I changed my topic that I had written here, "Factors influencing RMP's termination," to "RMP's life cycle," because the political climate, as we've seen and talked about here today, was very instrumental in the generation of RMP. The support of a Texas president who had a great interest in new health programs was a great, positive initiative in the initiation just as "Cap the Knife" was in his termination. So I feel that the shifting ideological grounds are very important today. I could go on, but my time is probably about up. I'll close with a story which I think may be appropriate. There was this local politician who had been out celebrating till too late in the evening and came home inebriated. As he was tiptoeing in to avoid detection, he tripped over an umbrella stand and created quite a havoc. The lights came on, and at the top of the stairs appeared an irate spouse. He looked up from the floor and said, "I have decided to dispense with my prepared remarks and take questions from the floor." [General laughter] Wilson: I don't believe that needs further comment, Herb. [Laughter] Pahl: That's very good. I represent that hidden part of the agenda which says that there was a Washington contingent living through all this catastrophic end. I first want to say that it's really a privilege for me to be here. I'm sorry my predecessor, Dr. Margolese, was not able to be located to be here, because he was both my predecessor and my mentor, and he led me into a wonderful world of people and programs. For that I would like to thank him even at this very late stage. I'd like to start with a bit of an anecdote, because we've seen some very wonderful pictures of what happened. I'd like to go back to 1973 at another meeting that I attended, where I stood before the assembled coordinators, fifty-six Regional Medical Program coordinators. We also had invited the chairmen of the various regional advisory groups, and we also said they could bring certain key staff members, particularly in their evaluation activities. This took place in a ballroom over in Crystal City across the highway in Virginia, and at that time that we held the meeting, the National Association of Regional Medical Programs had engaged a lawyer and had instituted a lawsuit for the impounded funds, some $126 million of fiscal '73 and fiscal '74 funds. The coordinators assured me that they were not angry with me personally. However, I was the spokesman there at the meeting. Upon reflection, having received a copy of the lawsuit in due course, I felt I should make known my position on this matter to everyone in the audience, so I noted that the face page of the lawsuit, since it's the first one I've ever received (and hopefully the last one I ever receive), had on it, since they couldn't sue President Nixon directly, they struck as somewhat lesser individuals, and the first one was the Right Honorable Caspar Weinberger, Secretary of Health, Education and Welfare. The second individual was George Humphrey, Secretary of the Treasury, obviously providing the funds. The third name on the face page was Roy Ash, Director, Office of Management and Budget. All of them right honorable. The last one was Herbert B. Pahl, Ph.D., Director, RMP. I thought what I might do is file a countersuit of discrimination, because I did feel I was trying to be as right honorable as the other gentlemen. [General laughter] However, I was too busy in those days to do so. It is interesting, however, that the lawsuit, in a way, brought us together in a wonderful way because we had been working well. I think one of the things I would like to say here is that it was one of the most enriching times in my life to be in charge of a program and to work with such a group of people. That feeling holds today. I have never before worked with a group that's stayed friends, close associates, as has happened with the Regional Medical Programs. It's a rich personal experience for me. I did tell them that. I phrased it in different words since the lawsuit was on everybody's mind and they wanted to know what I was going to say, so at that time I said, after going though this litany of who was on the face page, "I would like you to know that my feeling is I have never before been sued by such a wonderful group of people." [General laughter] Now to a second point. I would like to take just a moment before raising a question. An individual who is not here today is Paul Ward. I'm one of his younger associates. Everyone holds him in highest regard, and I found him to be a pillar of strength and a source of wisdom for me throughout my tenure. I'm sorry he's not here, and I hope you will excuse me if I take the privilege of reading a short section from a piece that he wrote in May of 1974 called "The Curious Odyssey of Regional Medical Programs." It's several pages, but I did not intend to read that. I do want to read just the opening two paragraphs. This has to do with the topic under consideration, and it's called "The Curious Odyssey of Regional Medical Programs." "During its eight years of existence, Regional Medical Programs (RMP) has developed a history marked by many changes of fortune. No social program enacted after World War II has experienced the ups and downs, the changes in direction, or the praise and vilification that have befallen RMP. Some programs like model cities and the Offices of Economic Opportunity have peaked and then fallen from grace, but none have had the spectacular roller coaster ride of RMP. Those involved in the program believe RMP has proven its worth and provided many improvements in the health care system, but it has also served to test the stamina of those directly involved in the program, for it has been like riding the roller coaster through a wind tunnel with the wind direction changing every few minutes." I think this is why I'm reading it to you, because that's the way I felt. "The changes of fortune have resulted mostly from an unusual number of changes in philosophy at the top level of the Department of Health, Education and Welfare, the multitude of quarrels HEW has had with Congress, and the intrusion of the Office of Management and Budget into program decisions (which OMB is ill- equipped to enter, especially in the health care field, where its expertise barely equals zero). Finally, the courts have entered the scene with the ruling that the program should be returned to the course charted by Congress and that the funds appropriated by Congress should be made available for the purposes of the program. If we could end the story on that note, it would be like the classical novel plot: the beginning, the problems faced in the middle, and the happy ending. But in real life, there's probably more trauma to come. You'll have to read the odyssey to know the ending." You know the ending, but you'll have to read it to find out Paul Ward's inimitable fashion of explaining what happened. There are so many questions that could be raised, and I do want to ask one or two. First, I hope people from the floor, particularly those who have been involved with the Regional Medical Programs directly, will feel free to respond. Before asking the question, I want not to lose this, because from my point of view as director of the program, I want to say how much I value the work of the earlier and the later initial review committees, scientific review committees, that did such magnificent work throughout the entire life of the program to establish standards of quality. I want to commend the staff of RMP, both those who were there before I came and those who were there during my tenure, of translating the discussions of those meetings back to the regions, because I truly believe that one of the reasons we are enjoying the meeting today is because we're all proud to have been associated with it, and it was a give and take between professionals, some in government, some in the regions. The regions couldn't operate without us and we couldn't get anything done without all of the dedicated people. It is the communicators back and forth, from the review groups, the national advisory councils, and the staff and the workers in the regions that made this possible. I believe that it was one of the best programs that I have seen in government, where funds were sent directly from the Washington offices to community groups and held them responsible on a competitive basis for their own activities and renewals. I would think we could solve more problems if we could have that similar thing today. The question that I have, I guess I would like to direct to Bill McBeath, but to others in the audience. I find it strange, for example, that Secretary Finch, under President Nixon, with his staff developed a national plan of health priorities for the nation. No one could quarrel with the importance of the priorities that were listed, the health care of migrant workers and minorities and the disadvantaged and so forth. The other side of it is, to the best of my knowledge, and I would like comments on this, I have yet to come across a single Regional Medical Program director who had any input whatsoever, directly or indirectly, into informing the plan developers as to what the actual priorities are as seen by the citizens of this country in fifty-six ongoing regional activities supported by the secretary's office. So we have the right hand developing worthwhile national goals, and then when you match those stated goals with what the Regional Medical Programs are doing, many of the same things are being accomplished, but not under those titles. Again, it's a political framework because we all were trying to do the same thing: improve the health services to the communities and citizens of the communities. So I would like to ask Bill what was your experience in trying to inform your own local congressmen, senators, not lobbying for specific funds, but just informing them as to what Regional Medical Programs were doing in your area, and what, if any, experience did you ever have of any inquiry coming from such an office as to what kinds of activities you were doing with this secretary's funded program? Ruhe: I think that in the last years of RMP, from '72 on, I think that was an effort that was trying to give an alarm call to all of us that it was time for us to do more in the area of preparing material that could be used, even in direct lobbying, but in many ways to work with our constituencies. Barrow: I only want to ask one question. Should we have begun to pay more attention to the rising cost of medical care in RMP earlier than we did? I think it's what finally terminated us. I think that the poor economy that was going on at that time, Congress having to cut back somewhere, and the fact that, as most of you have already mentioned, there was not any good consensus of what the program ought to be, all these had a factor. But I think that if earlier on we had done the same kind of job of looking at the cost of medical care in our communities in the same in-depth way we did in cooperative programs with the other medical schools and the practicing physicians, I think it would have been a different proposition. What do you think, Dr. Wilson? Wilson: I was going to turn that over to Bill Ruhe. Ruhe: The answer is yes. Wilson: That's not quite fair, though, because my guess is that while we could have addressed the question, I don't think we would have found a solution anywhere near in time to meet the needs of perpetuating RMP. I think the problem was too large, resources too small, and the discussion too complicated, really, to solve it. Barrow: I'm in agreement with you, but the fact that we were looking at it and trying to do something about it and bringing it to the forefront, instead of apparently dodging the question, I think might have been one of the finishing blows. Lindberg: Questions from the floor? Thanks very much, Vern. I might add to that that you don't want to underestimate the importance of the American Cancer Society, American Heart Association, and those kinds of groups, which are tremendously important in this town and are really listened to. There wasn't anything comparable at all, but had there been, I think it would have been listened to. That's my own guess. Dr. DeBakey? DeBakey: I'd like to direct this question to Dr. Ruhe, because he referred to the report. Dr. Ruhe, let me first say that you're quite correct that while the term "conquer" was used, it was obviously for political reasons. We were realistic about the fact that we're not going to do it in our lifetime. But hopefully that was the direction. The term was simply used for political purposes. The question that I want to ask you, since you did refer to the report, in connection with the matters that you've very well explained, in your opinion, the cause for the demise of the program, is this: had the recommendations of the report itself been implemented in the formal legislation, as some of them were--for example, regional medical libraries--rather than the way the RMP legislation was developed, do you think it would have made a difference in terms of both the program and its survival? As you may recall, one of the most important aspects--and this is what really provided the concept for the Regional Medical Programs--was the centers of excellence and the development of the other aspects of the centers of excellence in the recommendations were to provide funding for communication and education of the public. This was never a part of RMP. In fact, it never has been done, to be perfectly honest with you. That recommendation was never followed through. I was wondering if you'd comment, since you did read the report, obviously, even though you said you didn't understand some of it, if you'd comment upon the part you understood. Ruhe: I didn't understand the proposed legislation. It was difficult to track from the report to the proposed legislation, even to be sure that the proposed legislation was written with the report as a base. DeBakey: You're quite right about that. Ruhe: I think the report was well done. I don't mean to be critical about it. I think you did what you were asked to do and had to do in a remarkably short period of time. I can't think of any similar report of such far- reaching comprehension as this one has been done in such a short period of time and then followed almost immediately by proposed legislation and a bill signed and programs in existence in a relatively [short time]. Altogether I think the first operational grants were only about fifteen months or something like that. DeBakey: That's right. Ruhe: From the time that the president gave his first health message. That's breakneck speed for something as complicated as this was. I think that's one of the things that resulted in being pushed through quickly, but it's also one of the things that came back to be a problem later on. Wilson: You've given us the AMA approach. Mike asked another question. Supposing that the legislation had been in agreement with the commission's report. Ruhe: Well, it wouldn't have passed. [General laughter] Wilson: That's still an AMA answer. Ruhe: Well, there would have been too many bulls being gored if all those thirty-five recommendations had been enacted into law. There's just too many people who would have gotten together and defeated it. DeBakey: On the other hand, I think it's important to point out that while the centers of excellence never got anywhere except in cancer, and the only reason they got in cancer was because, as you know, the cancer establishment, after Nixon came in, took it over. Ruhe: See, that was the next push, and it narrowed down to one categorical section and got behind it, and the rest was just allowed to languish. Wilson: I think that may be a tactic that Karl Yordy and his panel ought to think about. Perhaps this broad program is not the strategic way. Lindberg: Question? Unidentified: This question is for Dr. Wilson. It seemed to me not just with RMP, but that's a specific example we want to address, there's a propensity on the part of the federal government as needs change, as perceived by the federal government, to insert into existing programs various other programs and initiatives which have the effect of diffusing the purposes of that initial program, therefore making it much more difficult to, as Dr. Ruhe has said, for everybody to face in the same direction. I believe that contributed to the demise of RMP, not the primary cause, but contributed, because the constituency was then very much diffused. My question is, how do we learn from that? What can we do with that? It's a political fact, I guess. Wilson: I don't think in this instance that it really had anything to do with the demise of RMP other than perhaps affecting the time. There were some funds diverted to other activities. But in my measured opinion, the decision had already been made two years before that RMP was going to be closed down, and very methodical steps had been taken to get that done, many of which were not discussed outside. You ask, "What was the bureaucracy doing, tampering with the funds when they were too small?" That's really your question. All I'm saying is that it was looking, at that stage of the game, for other outs that might accomplish the same purpose, but had accepted the fact that RMP was going to disappear. Lindberg: Dr. Flagle? Flagle: This is a question for the whole panel. Is it true that the Regional Medical Programs were killed in fact, or perhaps only in name? Because it was a short time after the demise of the RMP program formally that large funding was available to the institutes. The National Heart, Lung, and Blood Institute, for example, had a very large outreach program, and those of us working in the field, who began our work in high blood pressure, for example, with grants from RMP were able, in short order, to continue that work funded by NHLBI. For us, the only difference was that the check came from a different agency. When we say that the work we did in RMP is alive today, it's because there was a continuity of funding, and only the names were changed. Lindberg: We're doing a long-range plan for NIH right now, and these matters are under consideration, but it turns out that NCI and NHLBI are outstanding in their long-term outreach programs, and they're unique. The other institutes really don't have that either in legislative language or in reality. So you've identified the two hot ones. Wilson: I think the programs persisted because there was a constituency out there that wanted them. RMP really died in the organization of which it was supporting and operating. It died. I think that's what we're concerned with. We're happy that the programs persisted. Herb Lewis? Lewis: Still staying more or less on this same subject, Bill McBeath, you talked in your analogies about the lack of programmatic focus. That probably is a subject which has been with us for most of the day and will be with us in the final session. In your judgment, what should have been, or what could have been, the programmatic focus for RMP? If you are able to identify it, why, in your judgment, was that focus not politically--in a good sense of the word--acceptable? What could or should have been the programmatic focus of RMP and what were the political problems behind having that programmatic focus accepted? McBeath: We've talked about the great diversity among the programs. So if you ask me what I think it should have been-- Lewis: In the legislation. McBeath: I would give you my unique (maybe) viewpoint of that and it would almost demand equal time from all the others. I will tell you, in our region we wanted to focus on system rationalization, much more classical regionalization. That's what we would have liked to have seen greater emphasis and attention given to. If you say, "Should it have been that?" or, "Could it have been that?" you know, the honest answer may well be that Congress would be no more willing to pass that, maybe even less willing, than they were to pass centers of excellence. It's what I meant when I said that these things that I was talking about weren't only factors that influenced the demise of RMP, they probably influenced, in like manner, the generation of it. If we hadn't had that appeal of being all things to all persons, we might never have gotten the approving authorization. Lewis: Let me see if I understand you. In your region, in your area where you had a program, system rationalization could or should have been the programmatic focus. Why wasn't Congress ready to buy that programmatic focus? McBeath: I think that's a very abstract thing in some sense. Lewis: Not abstract. It's very political. McBeath: That's what I would come to. It clearly couldn't be done without interfering or influencing the patterns of medical practice and the normal relationships that even existed then. When we talk about maybe doing that today, after twenty years of market-oriented operation within the health care system, I couldn't help but think, as Stan was talking about his son-in-law, who under private auspices and without any kind of system has developed a center of excellence for radiology--I'm willing to give him that; I don't know his son-in-law-- but I would imagine that it would be much more difficult today to try to find all of those types of centers of excellence that are generating large amounts of income, greatly increasing the cost of care in this country, and to make for a more rationalized regionalized system. I think the dreams that we had in RMP would probably be harder to come about today. Lindberg: There is one country that has boards of rationalization, and that's Sweden, but I wonder if anybody here would get a big parade behind that. DeBakey: I'm not sure they're happy with it. Lindberg: No, they aren't. They aren't, but they've done it for forty years. Dr. Creditor? Creditor: I'd like to follow up on Bill McBeath's response, because I think we came to believe, towards the end, that systems rationalization should be our primary goal. Then if you looked at regionalization as being the pathway to systems rationalization, one had to be very honest and say that although we had lots of regional cooperative arrangements, we really didn't have true regionalization. Very few of those cooperative arrangements included people who didn't have something to gain by it, certainly nothing to lose. In any attempt at rationalization, there have to be some losers as well as winners. Particularly at a time when health care costs were becoming an issue, we could not really demonstrate that we had been involved in rationalization in a sense that would really affect health care costs. Lindberg: It seems to me regionalization and rationalization are means to achieve an end. I may have been the only guy in RMP who was trying to get first-class care for everyone. Creditor: Come on. Lindberg: Too bad I was a pathologist. [General laughter] McBeath: I think that those of us who had any effort put forth about regionalization probably were looking to models that were largely rural. I've been struck by the fact that I don't know what would have happened in these urban areas, as I've heard people talk about that today. That would have been a big problem. I think a big thing that overtook us as part of these changing political climates was that about the same time, as has been pointed out, came along Medicare and Medicaid. RMP and whatever it was trying to do began to become more and more peripheral to the organization and financing efforts to the one big granddaddy, and maybe grandparents, of them all. Lindberg: One brief thing before we break for coffee. Bob Maynard, please stand up. He is director of the Office of Public Information. If you can steal twenty or thirty minutes for a tour of our National Library of Medicine, Bob will arrange it today or some other time. Bill Leonard made the TVs, and I think he did a wonderful job. [General applause] We will reconvene at 3:15, please.