Six years a o, was loved % C. Everett Koop y conservatives and vilified by liberals. Now it's the other way around. W ARNING: THE SURGEON GENERAL IWiY BE GOOD FOR YOUR HEALTH by Paul Glastris I n 1977 C. Everett Koop, an anti-abortion activist who believes so passionately in "the sanctity of life" that a colleague once said "he would ventilate an amoeba," faced an excruciating choice A set of Siamese twins had been brought into Philadelphia's Children's Hospital, where Koop was chief of surgery. The twins were joined at the chest, sharing one-and-a-half hearts, which could support only one child. The choice was between doing nothing and having two deaths, or, through surgical separation, killing one so the other might live. Koop waited 11 days as the girls' parents, from a deeply religious Orthodox Jewish family, discussed the issue with rabbinical scholars for hours each day before making a decision. For Koop the decision was easy. "It took me about ten minutes after I knew all the facts to make up my mind about what should be done," Koop recalls. He recommended surgery. When it came time to tie off the carotid artery feeding the brain of the infant who would die, Koop, zealous hd Gfastris is an editor of The Washington Monthly. Research asdance by Alex Friend THE WASHINGION MONTHLY/MARCH 1967 defender of infants and the unborn, did the job himself. A decade later, Koop, now surgeon general of the U.S. Public Health Service, made another remarkable medical decision. Last October 23, he released his now-famous report on AIDS. Some had feared that the intensely religious Koop might use the oazasion to moralize about the disease's wicked ames. Even the most knowledgeable out- side observe had expected the kind of vague and euphemistic warnings about AIDS that Health and Human Services (HHS), under its conser- vative management, had been offering. Instead, Koop was compassionate and extremely frank. "It is time to put self-defeating attitudes aside," Koop announced at the news conference that day, "and recognize that we are fighting a disease, not people." Without embarrassment, he advocated the use of condoms. He denounced ideas, popular among many of his conservative friends, about quarantining AIDS victims. Most shock- ing of all, he called for an intensive program of sex education, beginning "at the lowest grade possible!' ? o Conservatives were furious. -`They had sup- 13 ported Koop for surgeon general in 1981 over the fierce opposition of liberals, believing that his strong conservative views would guarantee a politically eormct public health policy. Now they felt betrayed. The Washington Times called for him to shape up or resign. Beagan administra- tion officials in the Department of Education protested elements of Koop's call for sex educ- tion. "The very people who supported me in my tough times of `81," Koop says, "are the people who don't seem to understand what I'm trying to say." T&lay it is the liberals who appreciate what Koop has to say. Somehow, the integrity of the man-his wiIlingness to make the medically cor- rect decision, not the politically correct one- had eluded them in 1981. Back then, he seemed a right-wing crank, an intolerant right-to-lifer whose reactionary views on abortion, homosex- uality, and religion made him incapable of serv- ing the larger public interest. Now, Senator `Rd Kennedy, who led the Senate opposition to Koop's appointment, applauds Koop's activities on AIDS and his vigorous campaign against both smoking and cigarette companies. And Rep. Henry Waxman, Koop's most bitter enemy on Capitol Hi in 1981, is now his biggest fan. "I just have the very highest regard for Dr. Koop," says Waxman. "He's a man of tremendous in- tegrity. He's done everything a surgeon general should do, and more, to protect the health of the public." House arrest Koop came to Washington in 1981 with the reputation of being one of the finest pediatric surgeons in the world, but it was as an anti- abortion crusader that he was best known. He had sat on the boards of three national right-to- life groups and was one of the movement's ma- jor theorists. In a series of books and articles he wrote in the seventies, Koop propounded the theory that society's tolerance of abortion leads directly to tolerance of infanticide and euthanasia, first of congenitally deformed in- fants and the consenting terminally ill, then of babies with the wrong skin color or the elderly who have become too much of a drain on the pension fund. In the late seventies, Koop toured the country with a lavish multimedia show he co-wrote, nar- rated, and starred in. The show's centerpiece was the film series, "What Ever Happened to the Human Race?" Shot on 50 locations in five coun- tries at a cost of $1 million, the film is particularly famous for a scene in which a thousand black and white dolls lie scattered on the salt wastes of the Dead Sea, a gruesome representation of the six million abortions said to have been per- formed in the U.S. since the 1973 Supreme Court ruling legalized the practice 21 the right-to-life m-art, Koop was a hero and a chip they wanted cashed in when Ronald Reagan took office in 1981. In February of that year the administration slipped him into HHS as deputy assistant secretary of health, a job that doesn't require Senate confumation, with the idea of bumping him up to surgeon general as soon as possible The surgeon general's post carries little statutory authority. Koop would be largely held on a leash by his superior, the cautious, conser- vative assistant secmmry of health, Dr. Edward N. Brandt Jr. The sharpqed in Washington saw this as an early sign of the new administration's strategy of placating the Ear right while steer@ a more moderate course on social issues. But Democrats, already panicked over the prospect of Jesse Helms loose in a Republican-controlled Senate and an anti-abortion president in the White House, were not relieved. The surgeon general's office carried the weight of medical authority, and they feared C. Everett Koop would use that position to lead a crusade against abortion. The new Bepublican Senate, everyone knew, would almost surely support Koop's nomination. A small problem, however, stood in the way. Be- ing a few months past his 64th birthday, Koop was tdniadly sewral months too old for the job. Jesse Hehns tried to remove this potential snag with an amendment chaqing the age restriction, which he attached to legislation on credit cards aheady approved by the House The Senate ap- provedthechangeafterHelmsmisinformedtlrem that the House had no objections. His effort to bypass the House backfired, however, when Speaker Tip O'Neill, angry at the slight and sen- sing a prime opportunity to embarrass the ad- ministration, used an obscure parliamentary rule to send the credit card bill to the House health subcommi~ chaired by liberal proxhoicer Rep. Henry Waxman. Bepublicans on the subcommittee tried to limit the discussion to the age issue; Waxman and the Democrats, however, proceeded to conduct a de facto confirmation hearing. Koop, with strong advice from his superiors, refused to testify, on the grounds that the House was usurping a Senate responsibility. So Koop's writings and past statements were allowed to $eak for him. At a 14 THE WHINGTON MONTHLY/MARCH 1987 right-to-life seminar in 1979, for cxampls Koop had referred to the "women's lib movement" and the "gay pride movement" as propelling "anti- bmilytrendsp comments women's and gay rights groups pointed to as evidence Koop would . . . dscmmnate against them and decimate abortion- related medical programs. In an article used by Mxman to show Koop's intolerang the surgeon had written, "Sadly, most mainline denomina- tions have made pro-abortion statements il- lustrating their superficial theology, lack of morality, and insensitivity to the eventual reward for their own depravity.' The document that spurred liberals to nick- name the surgeon "Dr. Kook" was a 1979 com- mencement address in which Koop pretended it was 1999. "Secular Humanism" had become the official state anti-religion; "Doctrine Squads" snooped on people and hauled them off to be punished for "speakii of the Lord"; rampant infanticide had resulted in a generation of young people who were "perfect specimens-no defects, no eyeglasses. . . [and] a pmponderance of boys"; talk of "death with dignity" and "living wills" in the seventies had been "the thin wedge!' that cracked open American morality and led to com- pulsory euthanasia for the old and infm; something called the "Rockhead Foundation" supported the culturing of "lCKl,O homosexual and lesbian test-tube babies to give the gay move- ment more political clout!' It's easy to see why liberals regarded Koop as a mean-spirited nut. That was not their only line of attack, though. Just as important, they claim- ed, was his lack of "significant" public health ex- perience The American Public Health Associa- tion (APHA) testified that there was an impor- tant difference between providing preventive health care for large populations, the role of public health professionals, and treating sick in- dividuals, which is the role of most of the rest of medicine, surgeons included. The New York 7imes, along with a dozen other major liberal newspapers, and an army of power- ful liberal groups-from Big Labor to the Na- tional Organization of Women-joined the op- position. Wavering legislators would have been foolish to cross the picket line It was eight months before Koop eventually ahowed to testify, could win Senate confirmation. "He does not have a public health background. He's dogmatically denounced those who d&agree with him, and his intemperate views make me wonder about his, and this administration's, judgment," Rep. Waxman said, summing up the liberal con- sensus. "Dr. Koop frightens me." An academic bully One afternoon in November 1986, Surgeon General Koop woke up from a nap in a friend's house in San Antonio to find himself "essential- ly quadriplegic." He tested his hands, they wouldn't move With some effort, he rolled himself to the edge of the bed. He struggled to his feet. He tried to walk, he recalls, but "it felt like I had cement boots on ." He knew what was happening. He had heen ape&ng it for years. A large man-six feet one, 2% pounds-he hadhunghisheadoverthetinyhodiesofsome 100,000 patients in the course of his 35 years as a pediatric surgeon. Shoulders scnmcw elbows in, sometimes for hours, his large hands work- ing through miniature incisions @pairing a newborn's esophagus, Koop says, is like "sewing together two pieces of spaghetti at the bottom of an ice cream cone"), he had subjected a vertebra in his neck, already fractured in a col- lege ski jumping accident, to "about 12 pounds of constant traction ? Over the years, bone spurs had shrunk the hole through which the spinal cord, and its attendant artery, pass. During his nap, his head had slipped off a small rubber or- thopedic pillow, twisting his neck and pinching off the artery. Surgeons were able to repair the damage. Ex- cept for a numb patch on his hand, he is back to normal. The career that caused this disability began in the forties when there were only five other pediatric surgical specialists in the coun- try and the notion of anesthetizing and opemting on children was considered wildly risky. For 33 years he ruled over the Children's Hospital of Philadelphia as surgeon-in-chief. He and the staff he recruited had pioneered surgical procedures for congenitally deformed infants. In 1962 they had built the country's first neonatal surgical in- tensive care unit. Despite API-IA's contention that he had no "signifkant" public health experience, Koop had worked much of his professional career as a volunteer consultant and organizer of Third World health efforts. For 20 years he had sat on the board of a private medical relief agency, MAP International, that distributed medicines and sanitary and water supplies to 83 countries. He created an organization that sent hundreds of third-year medical students to bush hospitals in remote parts of the world. He helped build a medical school in Ghana, fight a dysentery epidemic in the Dominican Republic, and bring primary medical care to the -cart Indians of southwestern Mexico. (None of this impressed TilE WASHlNGlDN MONTHLY/MARCH 1987 15 API-IA.) Most of Koop's associates tolerated the ar- mgance that came with Koop? compassion. They greatly admired him, but his bellicose style led to incidents of cruel insensitivity. He once en- countered a woman at a party holding an infant. `Thanks for not having an abortion," Koop told the woman. The child was not hers, and she had had an abortion. Robert Kettrick, senior anesthesiologist at Children's, who assisted Koop hundmdsoftimesintheope&ngroom,saysthis arrogance results in part from "too many years in the university!' His rhetorical combativeness is typical of academics, explains I&trick, "but inChickKoop'scase,itcamewithadesiretothen demonstrate his mastery of the subject and the dominance of his logic He likes to play academic bully, as if to say, `I'm right, I've studied the issue, I know the standard retorts and where all the weak spots are in your arguments, and I'm go- ing to beat you up! " As a surgeon, Koop's skills wete universally respected. Indeed, at times during his career, Koop has been accused of saving too many lives, including those of children with birth defects, on whom other surgeons couldn't-or, for the sake of the children, wouldn?-operate "I believe there are times nature has made a mistake and nature should be allowed to correct that n&u&e," says Dr. Audrey Evans, head oncologist at Phila- delphia's Children's Hospital. "Them am some children born with such severe defects that they will never be useful citizens in society? she ex- plains. To Koop, to allow such "quality of life" concerns into the medical decision process not only defies the word of God but is-I&e abortion-a first step onto the slippery slope of the kind of utilitarian ethics that led to Nazi death camps. It would be hard to exaggerate the strength of Koop's conviction on these matters. It arose in part from his work. "[Nlo family has ever come up to me and said: `Why did you work so hard to save the life of my child?' " Koop wrote "And no grown child has ever come back to ask me why, either." But it is also a matter of religious faith. For more than 30 years Koop had been a member of Philadelphia's conservative, evangelical 10th Presbyterian Church. But those who worked with him say his in- sistence on preserving life when possible was always tempered with reason. "Chick Koop didn't try to extend a life at any cost," says Kettrick. "He knew when to give up. I never had the agonizing deaths with his patients that I did with patients of some other surgeons. I never saw him pushing iife at any cost or for any cause." Forthefustfewyearsofhistenure,Koopgave Iittle reason for his critics to think they'd been wrong. He raised some eyebrows by donn(ng the uniform of the Public Health Service, the fust surgeon general to do so regularly in years. True, only a few months after his confirmation, Koop came out with his frrst surgeon general's report on smoking, which The New York Times described as "one of the strongest indictments of cigarettes since the landmark federal report on smoking 18 years ago." But a surgeon general UarningthatdgaretteSIllOkitlgiSharmfUltOyOlU health was not exactly breaking new ground. Then, in 1982, there was the troubling Baby Doe case, which hinted that Koop's right-to-life dogmatism would guide his thinking as surgeon generaI. Though doctors could do nothing about the newborn infant's Downs Syndrom and its in- evitable mental retardation, they could correct life-threatening problems such as an underdeveloped esophagus. On the advice of one physician, and over the objections of two others, the parents decided to forgo treatment. The nur- sing staff rebelled. Pro-life groups protested. Several families offered to adopt the child. An Indiana judge ruled in favor of the parents' right to take their physician's advice Seven days after its birth, the child died. The Baby Doe ease made the front page of newspapers across the country. Influential members of pro-life groups leaned on their White House contacts. Soon, HHS issued regulations that set up toll-free hotlines for reporting Baby Doe-type cases to HHS, created federal "Baby Doe squads" to investigate tips, and threatened to hold hospitals receiving federal funds in viola- tion of civil rights laws if they withheld treatment from handicapped newborns. ' Although Koop was consulted in the drafting of those regulations, and defended them public- ly, his major involvement didn't begin until after the birth in 1983 of an infant that had spina bifida and other complications and was dubbed "Baby Jane Doe." "We're not just fuhting for this baby," Koop proclaimed on "Face the Na- tion." " We're fighting for the principle of this country @at every life is individually and unique- ly sacred." The Justice Department wanted to make the Baby Jane Doe case a test of the prin- ciples underlying its regulations. It was Koop who formally requested copies of the child's medical records, the denial of which led to a major legal battle But it was also Koop, uncom&table with the administration's interventionist approach, who 16 THE WASHINGTON MONTHLYIMARCH lob forged a compromise In a conversation with Margaret Heckler, then secmmry of HI-IS, about Baby Doe, Koop says he told her, "Now, I have been taking all the flack for two years-and I have had no role that could help me deflect some of that stuff. I said if I'm going to take the flack why can't I write the regulations? She was very reasonable She said go ahead and do it ." Over the past several months, Koop had been meeting with some of the fiercest rivals involved in the issue: the American Academy of Pediatrics (AAP), along with pediatric hospital, pro-life, and disability rights groups. The AAP, which adamantly opposed the existing "Baby Doe" regulations, suggested a compromise that appeal- ed to Koop's Republican sensibilities: hospitals would set up their own "infant care committees" to review Baby Doe-like cases. At these meetings, the rival group produced a "Statement of Prin- ciples for the Treatment of Disabled Infants,*' which in essence required physicians to treat in- fants with handicaps unless such treatment only prolonged the dying process. Though Koop clear- ly represented the administration, he played the role of moderator, and was willing to listen. "He and I were flat out adversaries on this thing," recalls Dr. M. Harry Jennison, then executive director of AAP, "but over time I've came to respect him for his intellectual honesty." Koop wrote regulations that incorporated the group's guidelines. A court later struck them down. But by the summer of 1984 Congress, in- spired and guided in part by Koop's compromise, passed overwhelmingly an amendment to the Child Abuse Act, defining refusal to treat han- dicapped newborns as child abuse This allowed Washington to withhold federal money to states that lacked procedures for guaranteeing the medical rights of disabled infants. The Baby Jane Doe case showed a diplomatic side of Koop that liberals hadn't noticed in 1981. "Behind the scenes he really was manipulating and moving the administration to the decentralized, non-federal approach," says Jen- nison. "He was the one who could speak from a medical viewpoint. That had a lot of weight ." Smoke out Liberals would also learn to appreciate Koop's zealous side, at least when he applied it against smoking. Past surgeon generals have warned of the dangers of smoking; Koop has turned that warning into a personal crusade In his reports, he warns of smoking's ruinous effects on the heart; he calls smoking "an addiction"; he attacks smokeless tobacco; he warns of the dangers to nonsmokers of "passive smoking" and cites smoking as the number one hazard in the workplace In May 1984, he began a public rela- tions campaign, calling for "a smokeless society by the year 2000 I In countless press conferences and speeches, Koop has argued that by the end of the century our attitudes should evolve to the point that no smoker will light up in the presence of a nonsmoker without permission. Jesse Helms, who had been Koop's strongest Senate supporter, called for his resignation. The style he'd employed as the pro-life move- ment's most effective propagandist served him here With his steely gaze, Dutchman's beard, summer white uniform and powerful Brooklyn voice, he is an imposing speaker. People don't often light up in front of the man; when they do, he sternly hands them a button that reads, "The surgwn general personally asked me to quit smoking." He has called tobacco companies %leazy" and labeled as "flat-footed ties" their claims that science can't say with certainty that tobacco causes cancer. Antismoking groups, like pro-life groups before them, value Koop's knack for drawing the attention of both the public and the press. To the Reagan administration, however, Koop's antismoking crusade has been a headache It doesn't seem to share Koop's extreme distaste for tobacco and the tobacco industry. Quite the op- posite, in fact. In a 1980 campaign appearance the president promised to "end what has become an increasingly antagonistic relationship between the federal government and the tobacco industry. I can guarantee that my own cabinet members will be far too busy with substantive matters to waste their time proselytizing against the dangers of cigarette smoking !' With Koop running around the country pass- ing out buttons, that's been a hard promise to keep. But some in the administration have tried. Last March, for instance, Koop lost a battle with Defense Secretary Caspar Weinberger. Military personnel have long enjoyed a discount on cigarette purchases. In fact, cheap smokes dur- ing World War II were the chief cause of the great rise in the number of smokers in the late forties and fifties. Koop had been working behind the scenes with the Defense Department's assistant secretary for health affairs, Dr. William Mayer, to eliminate the discount. Wbinberger overruled Mayer, bowing to pressures from tobacco state kgislators, the tobacco industry, and associations of present and former military personnel. The military groups had protested that cuts in 16 THE WASHINGKIN MONTHLY/MARCH 1967 cigarette discounts would provide a dangerous precedent for cuts in other benefits. "it just doesn't make sense to me," Koop said publicly of Ninberger's decision. "How could the removal of cigarettes be viewed as a reduction in benefits when the only benefits would be a lifetime of illness and early death?" Koop took on other administration officials last summer. He had agreed to testify at Henry Waxman's health subcommittee, which was discussingabanonalltobaccoadwx&iii.When White House Chief of Staff Donald Regan was told that Koop planned to endorse the ban, he barred him from testifying. Waxman and Regan exchanged a series of angry letters; with all the bad publicity, Regan &med. Koop would testify, but with a Justice Department representative at his elbow to make sure the adminstration's line was properly aired. The Justice official told the committee that the adminstmtion had `Very serious concerns" about banning tobacco adver- tising and that it was "not convinced that the case has been made that cigarette advertising leads to inaeased consumption I' Koop politely disagreed. Tobacco promotion, he said, "increases the total universe of users and increases consumption by those who already use it. It does this, and does it very effectively." The Justice official said the adminstmtion didn't favor a bill sponsored by Rep. Mike Synar banning tobacco ads. Said Koop, `As a person, I endorse the bill." It was a great victory for the bill's sponsors. Fair warning For a long time there was one issue about which Koop could not speak his mind-AIDS. The surgeon general's duties and responsibilities are delegated by the assistant secretary of health. The assistant secretary during the first Reagan term, Dr. Brandt, said Koop was not to talk about the disease Almost since the disease was first identified, gay groups, outside health cxper& and scientists in the HHS bureaucracy argued to top officials that public education was the only weapon against a disease with no known cure. But those officials resisted the idea, in part to avoid the kind of controversy over sex education currently swirling around Koop. `We were get- ting 5,000 letters a week saying don't do AIDS research because it's God's retribution," recalls a former HHS official who worked closely with Brandt. "It makes you think twice about crafting national messages that will speak to the needs of the risk groups but won't offend other groups." Another reason was money: the administration had budgeted none for AIDS education until fisca) 1984, and then only a paltry Sl.4 million. As Public Health Service personnel leaked memos to Capitol Hill staff members on the need for public education efforts, Congress ap- propriated nearly SlO million in 1985 and S30 million in 1986. In spending this money, federal public health officials were told to be extremely circumspect, which led to vague and misleading public wamings such as "avoid exchanging bodily fluids !' This euphemism policy extended to the education funds HHS funneled through state and local government health departments to private community and gay groups. Finally, in October of last year, the president, whose remarks on the epidemic had amounted to a few cursory answers to reporters' questions, freed Koop's tongue by asking him to write a report. Observers sensed a diversion: the ad- ministration was simultanwusly offering budget cuts for AIDS research. Whatever their motives, Koop's friends in the White House had fair war- ning, Koop recalls. "I told them, I'm going to do a health report. It's not going to he political. And I'm not going to clear it with anybody before delivering it to the White House." For months, Koop invited experts and represen- tatives of AIDS-affected groups, into his office "He listened very carefully, didn't ask too many questions, didn't say too much," recalls Gary MacDonald, executive director of the AIDS Ac- tion Council. "He gave me no sense of what he was thinking or what he planned to write in his report." Few people anticipated what they would hear. "I was stunned," says MacDonald. "A man of his political reputation, exercising the kind of moral leadership that the Public Health Service had not done to date? I was amazed !' ' `Many people-especially our youth," Koop a~ounced at the report's Gctober umeiling, %re not receiving information that is vital to their future health and well-being be-cause of our reticence in dealing with the subjects of sex, sex- ual practices, and homosexuality. This silence must end." His report's frank discussion of the causes of AIDS transmission and ways to prevent its spread has given federal health officials the latitude to educate the public well. "We certain- ly feel he's been very positive His courage on AIDS and smoking is to be commended," says Katherine McCarter, the American Public Health Association's associate aecutive director. As to the wisdom of APHA's pas1 opposition, McCarter replies, "that's all behind us. We real- ly don't like to dwell on that ." ME WASHINQIDN MONTHLWMARCH lS87 19