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A birth defect is a problem that happens while the baby is developing in the mother’s body. Most birth defects happen during the first 3 months of pregnancy. This page presents frequently asked questi... Details >

National Center on Birth Defects and Developmental Disabilities

Also available in: Spanish 

Not all birth defects can be prevented, but a woman can take some actions that increase her chance of having a healthy baby.... Details >

National Center on Birth Defects and Developmental Disabilities

The ectodermal dysplasia (ED) syndromes are a group of about 150 heritable disorders that affect the ectoderm, the outer layer of tissue in a developing baby. ED syndromes affect both males and female... Details >

National Foundation for Ectodermal Dysplasias  

Also available in: Spanish   

Basic consumer health information about this, the most common of all growth defects. Discusses causes, diagnosis, prevention and treatment.... Details >

March of Dimes Birth Defects Foundation  

This page presents facts about alcohol- and other drug-related birth defects. Information cover use of alcohol and other drugs during pregnancy, incidence/prevalence of alcohol and other drug-related ... Details >

National Council on Alcoholism and Drug Dependence, Inc.  

This site provides a list of questions and answers about Apert Syndrome, including other resources of information.... Details >

FACES: The National Craniofacial Association  

Also available in: Spanish   

This consumer information document provides general information on the various types of birth defects and includes causes, detection and diagnosis, treatment and prevention.... Details >

March of Dimes Birth Defects Foundation  

This page links to information on fetal alcohol syndrome, folic acid, smoking, medications, and genetics and the role they play in birth defects.... Details >

National Center on Birth Defects and Developmental Disabilities

This document provides information on the causes of, types of, and treatments for birth defects.... Details >

National Center on Birth Defects and Developmental Disabilities

Learn about genetic factors and genetic disorders and the prevention of birth defects, developmental disabilities, and other unique conditions in children.... Details >

National Center on Birth Defects and Developmental Disabilities

A general overview of cerebral palsy that includes a description and information about treatment, prognosis and research. A list of organizations where users may obtain additional information and link... Details >

National Institute of Neurological Disorders and Stroke, National Institutes of Health

Also available in: Spanish   

This consumer information fact sheet discusses the birth defect oral-facial clefts and includes information about both forms of the disorder -- cleft lip/palate and isolated cleft palate.... Details >

March of Dimes Birth Defects Foundation  

This site provides a list of questions and answers about Cleft Lip and Palete, including other resources of information.... Details >

FACES: The National Craniofacial Association  

Babies with trisomy 18 or 13 generally have some feeding problems related to difficulty in coordination of breathing, sucking and swallowing. ... Details >

Support Organization for Trisomy 18, 13 and Related Disorders  

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when the diaphragm does not fully form, allowing organs to enter the chest cavity preventing lung growth. CDH strikes 1 in every 250... Details >

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support  

This health education information fact sheet provides general information on congenital heart disease including causes, diagnosis, treatment and prevention.... Details >

March of Dimes Birth Defects Foundation  

This site provides a list of craniofacial reconstructive surgeons teams across the country.... Details >

FACES: The National Craniofacial Association  

An overview of the Klippel-Trenaunay (K-T) syndrome, a rare congenital malformation that may include a port-wine stain or "birthmark" (cutaneous capillary malformations), soft tissue and bony hypertro... Details >

Klippel-Trenaunay Syndrome Support Group  

Also available in: Spanish   

This public health education information fact sheet provides general information about Down syndrome -- a combination of birth defects including mental retardation and characteristic facial features.... Details >

NOAH: New York Online Access to Health  

This page provides a list of all the "What You Need To Know" series fact sheets and other brochures related to Fetal Alcohol Syndrome (FAS).... Details >

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

This document discusses the scientific advances and improvements in genetic testing, and increased awareness of fragile X syndrome over the last decade. It also provides information about diagnosis, p... Details >

National Institute of Child Health and Human Development, National Institutes of Health

Also available in: Spanish 

The SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence Web site is a Federal initiative devoted to preventing and treating FASD. This Web site provides information and resources abou... Details >

Center for Substance Abuse Prevention (CSAP), Substance Abuse and Mental Health Services Administration

This list provides Native families, providers, and community members with information, resources, and services related to the prevention and treatment of fetal alcohol spectrum disorders (FASD) availa... Details >

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

This web page highlights CDC's partnership with state health departments and universities for the purpose of identifying FAS cases and developing prevention programs.... Details >

National Center on Birth Defects and Developmental Disabilities

Folic Acid can increase your odds of having a healthy pregnancy by preventing certain birth defects. Take this quiz to find out how much you know about folic acid.... Details >

March of Dimes Birth Defects Foundation  

How much do you know about folic acid? Try your hand at this quiz.... Details >

National Center on Birth Defects and Developmental Disabilities

Professionals, educators, or individuals seeking information on genetic conditions or birth defects can use this directory to locate national and international organizations, or contact a genetic coun... Details >

Educational Institution--Follow the Resource URL for More Information

An index of health and safety topics that are specific to infants and toddlers including childhood diseases, immunization, injuries, developmental disabilities, child abuse, birth defects and more.... Details >

Centers for Disease Control and Prevention, U.S. Department of Health and Human Services

Whether you are a husband, a partner, a relative, or a friend of a woman of childbearing age, you can help give her the support, encouragement, and information she may need to have a healthy baby. Thi... Details >

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

This site contains newsletters with basic information on the diagnosis and treatment of hemangioma and vascular malformation. It also features an area on new research and publications that comes from... Details >

National Organization for Vascular Anomalies  

This site provides all the basic information about the disease; including a link to common questions.... Details >

National Organization for Vascular Anomalies  

A hemangioma is a form of birthmark that usually appears in the head and neck area within one to four weeks after birth. The cause of hemangiomas has not been determined, and accurate diagnosis and ea... Details >

Vascular Birthmarks Foundation  

Native men can have an important role in preventing fetal alcohol spectrum disorders (FASD), mild to severe development problems that may affect a fetus when a woman drinks during pregnancy. ... Details >

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

Native women can help themselves and others have alcohol-free pregnancies and prevent “fetal alcohol spectrum disorders” (FASD), mild to severe problems affecting a baby that include lifelong physical... Details >

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

Fetal Alcohol Spectrum Disorders (FASD) is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These effects may include physi... Details >

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

A general overview of Joubert syndrome that includes a description of the disorder, and treatment, prognosis and research information. Suggested reading for more in-depth information and a list of ref... Details >

National Institute of Neurological Disorders and Stroke, National Institutes of Health

Online information center provides resources, articles and reports related to joubert syndrome. Feeding & oral motor, hearing, legal help, medical journal articles and therapy are addressed.... Details >

Joubert Syndrome Foundation & Related Cerebellar Disorders  

Links to federal agencies, support groups and other nonprofit websites that provide information and resources for joubert syndrome.... Details >

Joubert Syndrome Foundation & Related Cerebellar Disorders  

Basic consumer information about Laurence Moon Syndrome including a list of synonyms and resources where you can get additional information.... Details >

National Organization for Rare Disorders, Inc.  

This information helps define fetal alcohol spectrum disorders (FASD) and provides strategies for Native community members to use to promote alcohol-free pregnancies.... Details >

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

Also available in: Spanish   

The mission of the March of Dimes is to improve the health of babies by preventing birth defects and infant mortality.... Details >

March of Dimes Birth Defects Foundation  

Also available in: Spanish   

This public health education information fact sheet provides general information on Marfan Syndrome including causes, diagnosis, treatment and prevention.... Details >

March of Dimes Birth Defects Foundation  

Basic patient education information about MPS I, a mucopolysaccharide disorder that has also been called Hurler syndrome, Hurler-Scheie syndrome and Scheie syndrome. Document discusses what causes thi... Details >

National MPS Society, Inc.  

A consumer health information mini-fact sheet about this birth defect -- discusses causes, types and diagnosis. Hunter syndrome is one of the mucopolysaccharide disorders.... Details >

National MPS Society, Inc.  

A consumer health information mini-fact sheet about this birth defect -- discusses causes, types and diagnosis. Sanfilippo is one of the mucopolysaccharide disorders.... Details >

National MPS Society, Inc.  

A consumer health information mini-fact sheet about this birth defect -- discusses causes, types and diagnosis. Morquio Syndrome is one of the mucopolysaccharide disorders.... Details >

National MPS Society, Inc.  

A consumer health information mini-fact sheet about Maroteaux-Lamy Syndrome that discusses causes, disease types and diagnosis. Maroteaux-Lamy Syndrome is one of the mucopolysaccharide disorders.... Details >

National MPS Society, Inc.  

Down syndrome is one of the most common genetic disorders affecting about 1 in 800 births. Some problems in Down syndrome involve the bones and joints (musculoskeletal system). ... Details >

American Academy of Orthopaedic Surgeons  

This is the home page for the Myelin Project, which offers hope for Multiple Sclerosis, the Leukodystrophies, and other Myelin Disorders.... Details >

Myelin Project  

Also available in: Spanish 

The mission of the National Center for Environmental Health (NCEH) is to promote health and quality of life by preventing and controlling disease, birth defects, disability, and death resulting from i... Details >

National Center for Environmental Health, Centers for Disease Control and Prevention

This page has provide information on support groups, resources, research, and events on Urea Cycle Disorders.... Details >

National Urea Cycle Disorders Foundation  

This site provides information on parent-matching project. The National Birth Defect Registry can match families of children who have the same or similar birth defects. Children can be matched by a m... Details >

Birth Defect Research for Children, Inc.  

This site provides a list of doctors specialized in this condition; you can search by state and even locate physicians outside the United States.... Details >

National Organization for Vascular Anomalies  

Although we do not know the cause of most birth defects, the good news is that we know how to prevent some birth defects. Learn what you can do during your pregnancy to help prevent birth defects.... Details >

National Center on Birth Defects and Developmental Disabilities

A general overview of Rett syndrome that includes a description of the disorder, and treatment, prognosis and research information. Suggested reading for more in-depth information, a list of referrals... Details >

National Institute of Neurological Disorders and Stroke, National Institutes of Health

Shriners Hospitals are located throughout North America — 20 in the United States and one each in Mexico and Canada. These "Centers of Excellence" serve as major referral centers for children with com... Details >

Shriners Hospitals for Children  

A web site designed to meet the needs of parents of children born with cleft lip, cleft palate and craniofacial deformities.... Details >

Commercial Entity--Follow the Resource URL for More Information

Also available in: Spanish   

This fact sheet defines spina bifida, an incomplete closure of the spinal column. Its incidence, symptoms, characteristics, diagnosis, and treatment options are discussed. Educational implications a... Details >

National Dissemination Center for Children with Disabilities, U.S. Department of Education  

A general overview of Tay-Sachs disease that includes a description of the disorder, treatment, prognosis and research information. Suggested reading for more in-depth information, a list of referrals... Details >

National Institute of Neurological Disorders and Stroke, National Institutes of Health

This public health education information fact sheet provides general information about this inherited birth defect including causes, diagnosis, treatment, and current research. Other information resou... Details >

March of Dimes Birth Defects Foundation  

The CDC, the March of Dimes, and the National Council on Folic Acid have organized the National Folic Acid Campaign to promote the use of folic acid to prevent the serious birth defects spina bifida a... Details >

National Center on Birth Defects and Developmental Disabilities

This site provides information on healthy baby resources.... Details >

Birth Defect Research for Children, Inc.  

The Center for the Evaluation of Risks to Human Reproduction CERHR web site is your resource for the latest information about potentially hazardous effects of chemicals on human reproduction and devel... Details >

National Institute of Environmental Health Sciences, National Institutes of Health

This brochure for Native adolescents explains what FASD is and how preventing it can make a community stronger. It encourages adolescents to learn more about FASD and to share information with others ... Details >

SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

Approximately 150,000 children are born every year in the United States affected by one or more birth defects. Although the cause of over 60% of birth defects are not known, there are things that you ... Details >

American Pregnancy Association  

A hole in the heart (also called an atrial septal defect (ASD) or ventricular septal defect (VSD)) is a type of simple congenital (kon-JEN-i-tal) heart defect. This is a problem with the heart's struc... Details >

National Heart, Lung, and Blood Institute, National Institutes of Health

This page provides information on treatments and symptoms of Urea Cycle Disorders.... Details >

National Urea Cycle Disorders Foundation  

Also available in: Spanish   

A baby can develop birthmarks either before he or she is born or soon after birth. One of the most common types of birthmarks is called a hemangioma. These birthmarks happen when many new blood vessel... Details >

Nemours Foundation  

Information and guidance for parents of children with cerebral palsy. This web site provides a definition of cerebral palsy and discusses CP's causes, prevention, affect on development, treatment, edu... Details >

Nemours Foundation  

Also available in: Spanish 

The B vitamin folic acid helps prevent birth defects. If a woman has enough folic acid in her body before she is pregnant, it can help prevent major birth defects of her baby’s brain and spine.... Details >

National Center on Birth Defects and Developmental Disabilities