Welcome to NQMC. Skip directly to: Search Box, Navigation, Content.


Complete Summary


TITLE

Helpfulness of care provided to parents: proportion of children whose parents reported care provided was helpful or very helpful on core aspects of preventive and developmental health care.

SOURCE(S)

Measure Domain

PRIMARY MEASURE DOMAIN

SECONDARY MEASURE DOMAIN

Does not apply to this measure

Brief Abstract

DESCRIPTION

This measure is used to assess the proportion of children whose parents reported care received was helpful or very helpful in specific areas of parenting such as understanding child's behavior, protecting child from injuries, and helping the parent learn to meet their own needs. The parent is questioned as to whether the care provided was helpful, very helpful, somewhat helpful, not helpful, or item was not discussed.

RATIONALE

Significant opportunities for improvement exist in ensuring that young children and families receive recommended preventive and developmental health care services. A growing body of literature supports the delivery of parental anticipatory guidance, assessment follow-up on the development of children, and assessment of the psychosocial well-being of families.

Few standardized quality measures are available that provide specific information about preventive health care for young children, especially on aspects of care for which parents and families are a reliable source of information about the quality of their child's health care. A majority of the measures currently used provide information about whether children come in for well-child visits (access to care measures) or are based on medical chart reviews which are not accurate for the specific level of information obtained in the Promoting Healthy Development Survey (PHDS).

PRIMARY CLINICAL COMPONENT

Helpfulness of care; preventive and developmental health care

DENOMINATOR DESCRIPTION

Children age 3 months to 48 months who received a well-child visit in the last 12 months, whose parent received the aspect of care*, and whose parent answered at least half of the items in the "Helpfulness of Care Provided" scale on the Promoting Healthy Development Survey (PHDS)

*See the "Description" field.

NUMERATOR DESCRIPTION

Children whose parents responded "Very Helpful" and "Helpful" to all of the items in the "Helpfulness of Care Provided" scale (see the related "Numerator Inclusions/Exclusions" field in the Complete Summary)

Evidence Supporting the Measure

EVIDENCE SUPPORTING THE CRITERION OF QUALITY

  • A clinical practice guideline or other peer-reviewed synthesis of the clinical evidence
  • Focus groups
  • One or more research studies published in a National Library of Medicine (NLM) indexed, peer-reviewed journal

Evidence Supporting Need for the Measure

NEED FOR THE MEASURE

Overall poor quality for the performance measured
Use of this measure to improve performance

EVIDENCE SUPPORTING NEED FOR THE MEASURE

State of Use of the Measure

STATE OF USE

Current routine use

CURRENT USE

Collaborative inter-organizational quality improvement
External oversight/Medicaid
Internal quality improvement
National reporting
Quality of care research

Application of Measure in its Current Use

CARE SETTING

Ambulatory Care

PROFESSIONALS RESPONSIBLE FOR HEALTH CARE

Advanced Practice Nurses
Nurses
Physician Assistants
Physicians

LOWEST LEVEL OF HEALTH CARE DELIVERY ADDRESSED

Individual Clinicians

TARGET POPULATION AGE

Children age 3 months to 48 months

TARGET POPULATION GENDER

Either male or female

STRATIFICATION BY VULNERABLE POPULATIONS

Unspecified

Characteristics of the Primary Clinical Component

INCIDENCE/PREVALENCE

Unspecified

ASSOCIATION WITH VULNERABLE POPULATIONS

Unspecified

BURDEN OF ILLNESS

Unspecified

UTILIZATION

Unspecified

COSTS

Unspecified

Institute of Medicine National Healthcare Quality Report Categories

IOM CARE NEED

Staying Healthy

IOM DOMAIN

Patient-centeredness

Data Collection for the Measure

CASE FINDING

Users of care only

DESCRIPTION OF CASE FINDING

Children age 3 months to 48 months who received a well-child visit in the last 12 months, whose parents received the aspect of care*

*See the "Description" field.

DENOMINATOR SAMPLING FRAME

Patients associated with provider

DENOMINATOR INCLUSIONS/EXCLUSIONS

Inclusions
Children age 3 months to 48 months who received a well-child visit in the last 12 months, whose parent received the aspect of care*, and whose parent answered at least half of the items in the "Helpfulness of Care Provided" scale on the Promoting Healthy Development Survey (PHDS)

*See the "Description" field.

Exclusions
Unspecified

RELATIONSHIP OF DENOMINATOR TO NUMERATOR

All cases in the denominator are equally eligible to appear in the numerator

DENOMINATOR (INDEX) EVENT

Encounter
Patient Characteristic

DENOMINATOR TIME WINDOW

Time window precedes index event

NUMERATOR INCLUSIONS/EXCLUSIONS

Inclusions
Children whose parents responded "Very Helpful" and "Helpful" to all of the items in the "Helpfulness of Care Provided" scale

From the responses, a composite measure score is calculated* in which a higher score is associated with better quality.

*Note: Scoring process:

  1. Individual items are recoded so that "Very Helpful" and "Helpful" responses are recoded into 100, "Somewhat Helpful" and "Not Helpful" responses are recoded into 0, and "Did Not Discuss" responses are recoded into missing.
  2. Mean calculated.
  3. Children whose mean = 100 are recoded to 100 and children whose mean score is less than 100 are recoded to 0.

Exclusions
Unspecified

MEASURE RESULTS UNDER CONTROL OF HEALTH CARE PROFESSIONALS, ORGANIZATIONS AND/OR POLICYMAKERS

The measure results are somewhat or substantially under the control of the health care professionals, organizations and/or policymakers to whom the measure applies.

NUMERATOR TIME WINDOW

Encounter or point in time

DATA SOURCE

Patient survey

LEVEL OF DETERMINATION OF QUALITY

Not Individual Case

PRE-EXISTING INSTRUMENT USED

Unspecified

Computation of the Measure

SCORING

Non-weighted Score/Composite/Scale

INTERPRETATION OF SCORE

Better quality is associated with a higher score

ALLOWANCE FOR PATIENT FACTORS

Analysis by high-risk subgroup (stratification on vulnerable populations)
Analysis by subgroup (stratification on patient factors, geographic factors, etc.)

DESCRIPTION OF ALLOWANCE FOR PATIENT FACTORS

Although no stratification is required, the Promoting Healthy Development Survey (PHDS) includes a number of variables that allow for stratification of the findings by possible vulnerability:

  • Child demographic characteristics (e.g., the child's age, race)
  • Child health and descriptive characteristics (e.g., children at high risk for developmental, behavioral or social delays, special health care needs)
  • Parent health characteristics (e.g., children whose parents are experiencing symptoms of depression)

STANDARD OF COMPARISON

External comparison at a point in time
External comparison of time trends
Internal time comparison

Evaluation of Measure Properties

EXTENT OF MEASURE TESTING

1999: Pilot Testing by Mail in Three Health Plans

  • Psychometric analyses demonstrated that the Promoting Healthy Development Survey (PHDS) quality measure scales have strong construct validity and internal consistency (reliability). Findings are displayed in the article, "Assessing Health System Provision of Well-child Cared: the Promoting Healthy Development Survey."
  • In-depth cognitive testing of the draft survey was conducted with 15 families representing a range of socioeconomic and demographic groups, as well as different types of health insurance coverage, age of child, age and sex or parent, and number of children in family. Survey design and formatting was finalized with input from a group of experts and family representatives. Reliability assessments indicated the PHDS to be written at the 8th-9th grade reading level. Cognitive testing confirmed the readability of the PHDS for people across a range of educational levels.

2000: Implementation by Mail to Medicaid Clients

  • Psychometric analyses demonstrated that the PHDS quality measure scales have strong construct validity and internal consistency (reliability). These findings are displayed in the CAHMI Report, "Summary Testing and Findings of the PHDS in Maine."

2000: Implementation by Mail to Washington Medicaid Clients

  • Psychometric analyses demonstrated that the PHDS quality measure scales have strong construct validity and internal consistency (reliability). These findings are displayed in the CAHMI Report, "PHDS Results: In Washington State."

2000-2001: Implementation by Telephone Three-State Medicaid Clients

  • Cognitive interviews were conducted with 20 parents of children 3 to 48 months old who were enrolled in Medicaid. Five of these interviews were conducted in-person; the remaining 15 were conducted over the telephone in order to assess the response burden and cognitive ease of the PHDS when using a telephone administration. Using behavior coding methods, for each item in the PHDS, instances where the respondent required clarification or did not appropriately answer an item were noted. Also, items where the interviewer had difficulty asking the question without edits to the wording were noted. Survey modifications were made based on findings in order to improve the reliability, validity and cognitive ease of the PHDS items.
  • The PHDS was administered by telephone to parents in 3 state Medicaid programs.
  • Psychometric analyses demonstrated that the PHDS quality measure scales have strong construct validity and internal consistency (reliability). These findings are displayed in the report, "Partnering with Parents to Promote the Healthy Development of Young Children Enrolled in Medicaid."

2000: A Majority of the PHDS Included in the National Survey of Early Childhood Health (NSECH)

  • Psychometric analyses demonstrated that the PHDS quality measure scales have strong construct validity and internal consistency (reliability). These findings are displayed in the article, "Measuring the quality of preventive and developmental services for young children: National estimates and patterns of clinicians' performance."

2001-2003: Development and Implementation of the Provider-Level PHDS. October 2001-March 2003

  • Focus groups and cognitive interviews with 35 health care providers in Vermont and Washington and 20 parents of young children in Vermont to inform item-reduction, administration specifications, and reporting templates.
  • Psychometric analyses demonstrated that the PHDS quality measure scales have strong construct validity and internal consistency (reliability). These findings are displayed in the CAHMI reports, "Overview of the Round 1 Implementation of the PHDS in Mousetrap" and "University Pediatrics: Round 2 -- In-Office Implementation of the PHDS Key Findings."

2002-2004: Implementation by Telephone in Four Medicaid Agencies

  • Psychometric analyses demonstrated that the PHDS quality measure scales have strong construct validity and internal consistency (reliability). These findings are displayed in the CAHMI report, "Hearing the Voices of Parents: Results from a Survey Assessing the Quality of Preventive and Developmental Services for Young Children Enrolled in Medicaid in Four States."

December 2003 - March 2004 Implementation of the PHDS in Kaiser Permanente, System, Office and Provider-Level Analysis Conducted

  • Psychometric analyses demonstrated that the PHDS quality measure scales have strong construct validity and internal consistency (reliability). These findings are displayed in the draft publication, "What drives the quality of preventive and development services provided to young children? Findings from a multi-level, provider and patient-centered method to assess quality."

EVIDENCE FOR RELIABILITY/VALIDITY TESTING

Identifying Information

ORIGINAL TITLE

Helpfulness of care provided: proportion of children whose parents reported care provided was helpful or very helpful on core aspects of preventive and developmental health care.

MEASURE COLLECTION

MEASURE SET NAME

DEVELOPER

Child and Adolescent Health Measurement Initiative

FUNDING SOURCE(S)

The Commonwealth Fund

COMPOSITION OF THE GROUP THAT DEVELOPED THE MEASURE

Christina Bethell, PhD, MBA, MPH; Colleen Reuland, MS; Brooke Latzke, BS

FINANCIAL DISCLOSURES/OTHER POTENTIAL CONFLICTS OF INTEREST

None

ENDORSER

National Quality Forum

ADAPTATION

Measure was not adapted from another source.

RELEASE DATE

2001 Jan

REVISION DATE

2006 Dec

MEASURE STATUS

This is the current release of the measure.

SOURCE(S)

MEASURE AVAILABILITY

COMPANION DOCUMENTS

The following are available:

NQMC STATUS

This NQMC summary was completed by ECRI Institute on November 28, 2007. The information was verified by the measure developer on January 3, 2008.

COPYRIGHT STATEMENT

© CAHMI - Child and Adolescent Health Measurement Initiative

The Child and Adolescent Health Measurement Initiative (CAHMI) quality measure tools (including sampling, administration, analysis and reporting specifications) are available for free on the CAHMI Web site (www.cahmi.org) thanks to past and current support from the Packard Foundation, Commonwealth Fund and the Robert Wood Johnson Foundation. All CAHMI quality measures are copyrighted by the CAHMI. Should you use any of the material from NQMC, please reference it appropriately.

Disclaimer

NQMC DISCLAIMER