Artist: Vito Oporto Original Concept: TODOS Hispanic Student Organization Ohio State University Design Contributions: Executive Planning Committee Surgeon General's National Hispanic/Latino Health Initiative T he symbolic elements of this logo reflect the mission of the Surgeon General's National Hispanic/Latino Health Initiative. The colors of the United States of America represent the effort to unite all Hispanics/Latinos, regardless of their diverse backgrounds and roots, under our flag. The Bald Eagle, the traditional symbol of "supreme power and authority," uses its great wingspan, keen eyesight, and ability to soar over great distances to protect and embrace its territory. The eagle embodies the Office of the Surgeon General, whose %ingsn protect th ose in need. The people repre- sent all Hispanics/L.atinos: the individuals and families, the young and the elderly, all those who need that protection. The circle was used in many ancient civilizations as a symbol representing the Sun, life itself, and the aim to achieve perfection, to do everything right, to live in good health, and to prolong our existence. As a graphic symbol for health, the circle represents the well-being of the body and the freedom from physical disease or pain, not only for the individual or for a people, but for the Nation. The powerful words "organized" and "solidarity" are designed to stir positive reactions beyond the borders of this Nation, bringing to- gether all Hispanics/ Latinos . Finally, the small squares and the borders show the artistic traditions of the Hispanic/Latin0 Heritage. One Voice o One Vision Message from the Surgeon General o o o o + o + + + + + One Voice MessaaefromtheSgeon General 4 I n this melting pot called America, \w Hispanics/ Latinos--soon to hccomc the largest and youngest oE its ethnic minorities h a\ c mereI\- remained on the outside of the pot looking in. Following the path of least resistance, \ve haw let the status quo sustain us for the last 500 years. Rrandcd as one amorphous group, ST haw pcrswcred, but JVC` ha\-c ncwr rcallv been accounted for or counted in collecti\-clv as one . . until now. Speaking \\.ith one loud voice, MY can begin to make America listen to us as ncwr b&i-e. Onlb then can \vc Hispanics/Latinos tinall\. lx@ to come into our ov,n. Toda!., HispanicsILatinos make up 22 million hardworking members of'thc .Amcrican tBmil\-, and by the !-ear 2000, th crc \vill bc 3 I million of us. Pal-crty, undcrcmphn mcnt, absence of true data, lo\\ educational attainment, cultural dislocation, and limited access to health cart and inzurancc ha\ c set man\- of us apart t;om mainstream .-\meric,a ant1 jeopardized our health. To begin to co&ont the challcngc\ that Hispanics/Latinos fhcc in this county, and to dc\ slop a plan to address our complex harricr5 to qualit\ hc>alth care and w-1 ices, the Surgeon Gencral"r landmark Hispanic/ Latino tlcalth Initiatiw 11 as born. 7% (al-- reaching Initiatiw, dcsicgncd to unite the &n-t\ ot` diwrse Hispanic/Latino groups nation\vidc thrc y+ the Of&c oE the Surgeon Gcncral, \\ as charactcri,c~I lx three main goals: m To gather information on the health ncctl,, concerns, and priorities of Iiispanic/Latino .Imcricans. * To proposc cffccti\.e and rcalihtic rccommcn- dations fbr addrrshing thew needs. 6 * To lx-o\ idc a clear focus t;)r coordinating the- activitich of the Ijcpartmcnt of Health and Human Scrviccs with thaw ot'thk- Hispanic/ Latin0 communit\-. antonia Coello Novello, M.D., M.P.H. Surgeon General U.S. Public Health Senicc `l-hi> report documents the activities and tinding\ of the Initiatiw. AS an unprcccdentcd c~ompcntlium of infbrmation, the report dcscribcs the *tatus of 1 lispanic/Latino health in t'i\c regions ot'thc Llnitcd State\, dcfincs the challcngcs and I)riorlt\- isuci cncompassine out- ercatcst disparities L c ant1 harrier\, and lists the rccc,mmcn~lations rclatcd to ~lizpa"ic/L.atino health priorities. The Initiati\c and thih report wvrc madc pos\ihlc through the support ofthc U.S. IIcpart- mcnt of Hcxalth and Human Scrviccs, Public Health Scr\ ice. Ott`icc ot`.Minoritv Health. The Initiati\ c I\ ah guided lx an Excc-uti\ c f'lanninc Committee c c ma& up of48 HispanicILatino leaders from throughout the countr\.. c In Scptemher 1992, in V+`ahhington, D.C., I\ c hcltl the first c\ cnt of the Initiatii c -the Surgeon Gcvwral's Sational \Vorkahop on Hispanic/Latino Hc,alth. hlorc than 200 Hispanic/L.atino Icaclcrs concerned with the health and well-being of the Hispanic/Latin0 community came together to speak at this landmark Workshop. They shared their experience and expertise in developing recommendations for addressing five health concerns critical to Hispanic/Latin0 Amcri- cans. These issues remained as the central focus of our Initiative efforts: . Improved access to health care. * Improved data collection strategies. . Increased representation in the science and health professions. . Development of a relevant and comprehcn- sivc research agenda. . Health promotion and disease prev-cntion efforts. Subsequently, in March and April 1993, x1-c held five Regional Health Meetings in U.S. cities with large Hispanic/Latin0 populations-New York, Miami, Chicago, San Antonio, and Los Angeles. At these intensive Z-day meetings, hundreds of Hispanic/Latin0 leaders and health professionals pooled their expertise to identifv Hispanic/Latin0 health issues specific to each region, to formulate partnerships for action at the State and local levels, and to develop appropriate, communitv-based recommendations. , Following the regional meetings, the Execu- tive Planning Committee members met in Washington, D.C., for a comprehensive, 2-da) followup session at the end of April. At that time, MC reviewed all the recommendations proposed at the National Workshop and the five Regional Health Meetings for possible implementation. This report summarizes the most pertinent recommendations developed by the group in addressing the five critical issues in improving the health and vvell-being of the Hispanic/Latino communitv. i The recommendations come at a time when the Sation is examining health care for all Americans. It `\-as tbc hope of the group that these recommendations could be used by Federal, State, and communitv leaders as thev plan for the health and well-being of Hispanics/ Latinos. When these recommendations were made to the Surgeon General, it was the group's consensus that thev could be used to empower communities and close the gaps between the "haves" and the Uhave-nots." As a result of working together and speaking with one voice, I am confident that we are on the right track and are beginning to make a real difference in dealing with these complex issues. Our collective efforts in cam-ing forth the aims of this Initiative are critical to the health of everv Hispanic/Latin0 Ameri- can. For only with a new, more cohesive, it-depth, and realistic profile of this Nation's Hispanics/Latinos can we trulv begin to plan for the future as true equals in this lancl of opportunity. As we proceed to work together for good health, let us make TODOS (all of us) our watchvvord for vears to come. Antonia Cocllo Novello, M.D., M.P.H. Surgeon General One Voice Vision 44444444444444444 Introduction Chapter 1: Introduction Background H ispanics/Latinos constitute one of the fastest growing ethnic minorities in the United States. Today, there are 22 million Americans of HispanicILatino descent in this country, making up about 9 percent of the Nation's population. Bv the vear 2000, Hispanics/ _ . Latinos will become the largest- and one of the youngest--of America's ethnic minoritv groups, with an estimated 3 1 million members. B\- 2050, the Hispanic/Latin0 population is projected to be 8 I million people or about one-fifth of the predicted American population. More than two-thirds of Hispanics/Latinos no\\ living in the United States arc nativ-c citizens; however, they do not share in America's bountv. Their per-capita income is disproportionately lower than that of African Americans or non-Hispanic/Latin0 whites, and more than one-third of them do not ha\-e health insurance even though Hispanics/Latinos are the most highly employed minority. The disparity in health status between the Hispanic/Latin0 and non-Hispanic/ Latin0 populations in the United States is a recognized problem, and research has been conducted to detcr- mine the magnitude and causes of this disparity. However, the problem defies any generic approaches for solutions because of the diversity of the Hispanic/ Latin0 population in national origin and cultural heritage, economic status, geographical distribution, and demographic characteristics. Numerous groups within the Hispanic/Latin0 community have attempted to address the diverse and complex problems of Hispanic / Latin0 health status. Recognizing the need to address this problem in a united and unified effort, the Congressional Hispanic Caucus, national Hispanic/ Latin0 leaders, and several Hispanic organizations recommended that the Public Health Service (PHS) launch an initiative to develop solutions; they also rccommendcd that Surgeon General Antonia Coelfo No\-ello lead the initiative. Thus, the Surgeon General's National Hispanic/Latin0 Health Initiativ-e was formed. This report documents the activities of the Initiative. The Initiativ-e is dcsigncd to meet three critical goals in support of the Department of Health and Human Services (DHHS) commitment to health for all Americans: to reduce the health disparities of all people in this country, to improv-e delivcrv of health set-v-ices to those in need and those at risk, and to cnsurc access to health care for all. More specifically, the Initiative addresses five crucial health objectiv-es pertinent to the Hispanic/ Latin0 population: . To improve access to health care for all. One * To improve the collection of health data for Hispanics/Latinos across the board. Voice o To develop a relevant and comprehensive research agenda. . To increase Hispanic/ Latin0 representation in the science and health professions. * To expand community-based health promotion and disease prevention outreach activities. To assist her in planning the activities of the Initiative, the Surgeon General enlisted Hispanic/ Latin0 leaders from across the Nation who have expertise in Hispanic/Latin0 health issues. The members of the Executive Planning Committee are listed in the front of this report. One Vision Introduction 44444444444444++4* Events of the Initiative National Workshop on HispanicLatin Health: Implementation Shategies l- his Workshop \vas the critical first step in meeting the goals of the Initiative. Held September 28-30, 1992, at the ANA Westin Hotel in Washington, D.C., the Workshop w-as hosted by Dr. No\-410 and \vas sponsored by the Office of the Assistant Secretan. for Health (OASH), Office of Minority Health, and co-sponsored by the National Institutes of Health, the Centers for Disease Control and Prevention, and the Substance Abuse and Mental Health Services .\dministration. The Workshop brought together more than 200 Hispanic/Latin0 leaders from di\.crse back- grounds and organizations in a unique forum that pooled their strengths and leadership abilities to c promote the health and well-being of the Nation`s c Hispanic/Latino population. The purpose of the Workshop x,-as to document the status of Hispanic/ Latino health and to begin de\-eloping strategies to meet the identified needs. Its specific goals \vc>r( * To gather information about the health nectls, concerns, and priorities of Hispanic/Latin0 .imcricans onr Voice B) . To propose effecti\.c and realistic rccommcn- dations for meeting those needs. . To pro\-idc a clear focus for coordinating the Department's efforts with the efforts of the Hispanic/Latino communitv. To prepare the \\`orkshop participants to onr Vision address the issues in each of these arcas, the Surgeon General commissioned a set of Background Sum- mar? Papers. These Background Summar\- Papers outline the problems in each area, summarize proposed solutions from existing literature, and offer suggestions for implementation strategies. They \\ crc sent to the participants before the \Vorkshop and were presented at the M'orkshop b\ the IIispanic/I.atino Health Issues Panel, composed of the fi\-e corresponding authors. The papers laid the groundwork for and served as a prelude to the important work that occurred at the Workshop. The Background Summary Papers are to be pub- lished in Public Health Reports, the journal of PHS. During the Workshop, the participants were assigned to Work Groups, kvhich were charged with de\-eloping implementation strategies for improving the health and xv&being of the Nation's Hispanic/ Latin0 population. Each Work Group was tasked \vith meeting three objectives: . To identify between 5 and 10 priority problems or issues for the assigned topic (access to health care, data collection, research agenda, representation in the health professions, and health promotion and disease prc\ ention efforts) and to rank them accord- ing to their priority. c * For each problem or issue, to identify at least one aim or desired end. . To tlcvelop a list of implementation stratcgics for reaching each aim. As strategies were tic%\ eloped, some groups also identified at u hat Ic\-el Federal, State, or local---and 1~). 11 hich sector -public, private, or public pi-i\-ate partnerships -~these implementation strategies should be undertaken. On the final da!- of the Workshop, a spokes- person for each IVork Group presented the Work Group's finding\ to LVorkshop participants; to a Rcyondcr Panel composed of kc\. leaders of Federal accncics; and to local, State, and Federal policvmakers. & Regional Health Meetings The findings of the National Workshop provided the basis for the second phase of the Initiative, the Regional Health Meetings, held in the spring of I993 in cities across the country--Ne\\- York, Miami, Chicago, San .\ntonio, and Los .L\ngcles. The Regional Health Meetings dre\\- approximately 1,000 participants from tlivrse Hispanic/ Latin0 populations to address health problems \\-ithin their communities. The objcctivc of each Regional Health Meeting was to identify and focus on the specific needs of the regions and to dc\ clap stratcgich for c creating partnerships for action at the local and State levels, \\-hcrc lacking, and for atrcngthcning the linkages that alreadv exist to promote Hispanic/ Latin0 health and \vcll-being. Folio\\-ing a format similar to the National U'orkshop, groups ot participants dcvrlopcd stratcgics for each critical area of concern and prcscntcd the findings to the entire gathering. This report contains a chapter summarizing the Regional Health Meetings. The full proceeding> for each mcctinq arc` to bc published in wparatc L reports. Executive Planning Committee Meeting On .\pril 22 and 23. 1993. just da\-5 after the la\t ol`thc, Regional Health M cctings took place, the Exccuti\ c Planning Committee for the Initiative met in Washington, D.C., to rc\-iv\\- the findings of thr National Workshop and the Regional Health Meetings and to draft a national plan of action for impro\-ing the health and well-being of Hispanic/Latino r\mericans. L This national plan s~ntbcsizcs and prioritizes the strategies devclopcd at all of the other \\-orkshops; its purpose is to address the divcrsc health needs of the Hispanic/Latin0 communitv. About This Report This report is published in t\vo versions. The first version, entitled Recornmendntior~s fo the Surgeorl General To Improve HispanidLrrtino Health. contains a summary of the Executix-e Planninq Committee c meeting held on April 22 and 23, 1993, and the implementation strategies identified at the meeting as crucial for prompt action, Bccausc this report is a svnthcsis of the findings from all of the activities of the National Hispanic/Latino Health Initiative and prioritizes the recommendations dcvclopcd, it sc'r\.c's as an action plan for the Nation to begin addressing the critical issues related to the health \tatus of the Hispanic/Latin0 population. The second 1 crsion of the report, cntitlcd One I'oice. Our Vi.siorl-RoL.orl?rlzell~i~lfiOlls to the Surgeon Getwrd To lwprm~e Hisllcrrric//Lcttirrn Hedth. docu- mcnts all cycnts of the Initiative with emphasis on the National M'orkshop held in September 1992. Chapter 2 contains Dr. No\-cllo's charge to the participants at the Sational 1Vorkshop. Chapter 3 is the prcscntation of the Background Summarx Papers. Chapter -F lists the implementation \tratc$cs dc\-clopcd at the National Workshop, and Chapter 5 ic the presentation of those implemcnta- tion stratcgic5. Chapter 6 contains Dr. Nowllo's closing remarks from the National CZ'orkshop. Chapter 7 providcb a summarv of the Regional Health Meetings, with highlights of the implemcnta- tion stratcgics dc~elopcd at the meetings. Chapter 8 contains the priorit! recommendations devclopcd at the lipril 22- 2 3, 1993, Executi\,c Planning Com- mittee Meeting. Appendix .% lists the participants of the National Workshop. (Participants of the Regional Health Mwtings arc listed in separate proceedings docu- mcnts for each meeting.) Appendix B contains the agenda for the National Workshop. Appendix C provides the Executiw Planning Committee members and the agenda for each Regional Health Meeting. Appendix D lists the regional sponsors and co-sponsors for each Regional Health Meeting. Appendix E contains the remarks of goyemment and communitv leaders \\.ho took part in the National Workshop. One V&X One Vision Chapter 2: Charge to Participants Antonia Coello Novello, M.D., M.l?H. Surgeon General Buenas tardes y bienvenidos. It is my great pleasure to welcome you all to this landmark National Workshop on Hispanic/Latin0 Health: lmplemen- tation Strategies. As you know, our motto for this important event is TODOS, and it has been precisely in the spirit of togetherness and unity, of solidarity and a vision for a healthier future, that we have been working so hard in the past months to make this Workshop a reality. A heartfelt thank you to everyone on the Executive Planning Com- mittee-and especially to the original five individu- als (Rudy Sanchez, Raul Yzaguirre, Jane Delgado, Helen Rodriguez-Trias, and Castulo de la Rocha). Without the Committee's tireless and diligent efforts, there would be no .workshop today. This group meeting here toda! for the first time is very similar in composition to the Hispanic/ Latin0 population as a whole-multicultural and multidisciplinary. We come from throughout the United States, we can trace our heritage back centuries, and we come from multiple Hispanic/ Latin0 groups. We come from the public and private sectors: we consist of national, State, and local officials; community leaders; and health professionals-clinicians, physicians, researchers, and educators. Whether participant or observer, we are all in this together and have come to mark a great new beginning for Hispanic/Latin0 health. This Workshop will bring to the forefront- * The links between having good health and having a good life. B The reality of farnil! ties that not onlv bind our immediate households and relatives but that go back five centuries. = The true meaning of lost of country, love of heritage, and love of learning. = The application of knowlcdgc to move forward-con rcspcto, confiannza, y honor. Above all, the Workshop will strcngthcn the conviction that, in the words of Pablo Ncruda, "All paths lead to the same goal: to convcv to others what we are." Basically, we plan to get to the heart of what it means to bc a Hispanic/Latin0 man, woman, or child in this country. That is why wc are here. In this historic meeting, it is rn: hope that we will filter out the noise of our separate realities and make our many voices heard in one choir-a choir of voices that will make America listen as never before. TODOS, together, with one voice, we Hispanics/Latinos will live up to the single most important goal positioned for the future: that people from eve? cultural and ethnic group shall be empow- One VOiCt- ered to contribute, not OII(V to themselves but to the common good of all Americans. In that spirit of empowerment, we shall meet here for the next 3 days. These 3 days may bring moderate success for some and laurels for a few on which to rest in the coming months, or they ma? bring unprecedented achievements that will resonate for years to come and well into the next centur>-. As the Surgeon General for all Americans, I ask you to rise to the challenge and aim for the unprecedented achievements that will make it feasible for each one of us to have a future. In doing One Vision One Voice One Vision Charge to Partkipants 444444444444 so, make it happen not only for yourselves but for each member of the Hispanic/Latin0 community. In these critical days, I ask you to use not only vour experience and intellect, but Tour feelings. Bring not only your care and concern but, if necessary, your anger and frustration, your sense of empathy, justice, and fair play. Adding feeling to intellect will temper our data and theories with a healthy dose of reality. At the same time, I am asking you not to let your emotions and feelings overpower you to the extent that we become splintered and lose sight of our overriding goal in this spirit of empowerment: to develop implemen- tation strategies that can cut through talk and result in action. We want to "get real," but in doing so, we must address our pressing concerns with realistic, feasible solutions. I am asking you to bring your honest perceptions of what can help our families and children to be healthier and better prepared for the new age upon us, while allowing us to face our many barriers objectivelv. We have all heard a great deal about Hispanics/Latinos; we have been inundated with statistics that paint a complex and often gloomy picture of what it is to be Hispanic/Latin0 in America. Let me share some of those with you todav. , * WC know that, by the vear 2000, the 22 million Hispanics/Latinos of today will become almost 3 1 million, yielding the single largest and >-oungcst ethnic minority in the United States. * The majoritv of Hispanics/Latinos-67 pcrccnt-were born in the United States. = Hispanics/Latinos live in virtually every part of the Nation but are hcavilv concentrated in the four States of California, Texas, New York, and Florida. Most of our population live in urban arcas. m The Hispanic/Latino population includes many tliffcrcnt nationalit! groups. The majority (63 percent) identify themselves as Mexican Americans; 11 percent are Puerto Rican; 5 percent are Cuban; 14 percent are Central or South American; and 8 percent arc f rom other Hispanic/Latin0 subgroups. * Although Hispanics / Latinos comprise the fastest growing segment of the elderly population, as a group they are younger than other Americans. They have the highest birth rates in the country and have larger families than non-Hispanics/Latinos; 20 percent of these families are headed by a single female. * Hispanics/Latinos have the lowest levels of educational attainment of any major popula- tion group. Only about one-half of adults are high school graduates, and fewer than 1 in 10 has completed college. * The per-capita income for Hispanics/Latinos is disproportionatclv lowcr than for African I Americans or whites. In fact, Hispanics/ Latinos arc less likclv to bc homeowners than other Americans, and more than one-fourth live in poverty. . Hispanics/ Latinos die from various causes. .-\mong the major ones are accidents, diabe- tes, cirrhosis of the liver, homicide, AIDS, and perinatal conditions. m Thhqdu-ee percent of Hispanics/Iatinos lack health insurance, despite the fact that there may well be an adult worker in the family. These facts portray our sociodemographic and c*conomic realities and show who we are today. 1 hclieve that many of the problems we face as Hispanics/Latinos reflect the educational and economic disparities we all know. Yes, we have problems, but they are not insurmountable. &cause we also have great resources and strength-not the least of which is our strong work ethic and our sense of justice. Your commitment and that of the organiza- tions and institutions you represent is critical to our success in this Workshop. With that kind of mutual commitment, we can bring the very best knowledge and resources to bear for each of the five critical issues we will discuss-this time with eves toward , the future. For example, during our Workshop-- m In our discussion of improving access to health care, it means removing cultural barriers that perpetuate fear, mistrust, and misunderstanding. It means access that is culturallv sensitive and culturallv responsible. It means bridging the language gap-r should 1 sav the inability to communicate between those who speak English and those who do not. It means encouraging women who seek out medical care last because of family obligations to put themselves first for once. It means access that is community- based, family-centered, and under one roof. * Increasing representation in the health professions mrans hccoming more in\-olvcxl in our education, eliminating illiteracy, increas- ing the number of college graduates, and reducing the time it takes to get a degree. It also means getting on in the world of bio- technology and science and aspiring to be the best, whether young or old. It means education for everyone. It means encouraging not only our young people but also our adults to get in school and continue to learn. It means aspiring to and preparing for careers in professions that we did not feel were open to us in the past. It means empowering our youth to have a say in their futures. It means having the power to set the educational agenda that fits our needs and not walking around blindfolded to opportunities. * When we talk about improving data collec- tion strategies, it means responsiveness to all ethnic groups and subgroups and account- ability to the truth. It means that our population of 22 million people needs to be accounted for and counted in. It means getting comprehensive data, identifying what is and is not appropriate, and making accurate assessments and reasonable predictions about the real status of Hispanic/Latino health. * Developing a comprehensive research agenda goes hand in hand with collecting better data. We cannot expect to understand where we are headed and where we ought to be in terms of health until we understand, first, where we are today. It means finding a way by which we benefit from what science has to offer by tailoring its benefits to our needs. It means focusing on the diseases that kill us and putting priorities on research aimed at Hispanics/ Latinos and other minorities-in the areas of HIV/AIDS and sexually transmit- ted diseases; alcoholism and other drug abuse; infant mortality and perinatal addiction; child abuse; cancer. tuberculosis. diabetes, and One Voice One Vision Charge to Participants 44444444444444 heart disease; homicides, suicides, accidental injury; and the links between these diseases and the "disease" of poverty. o When we talk about health promotion and disease prevention, it means that promoting health for Americans must be planned to encompass the views, needs, and feelings of the people who require it. Health promoters and policy makers must step, as it were, into the shoes of the unfamiliar if they are to develop programs that are responsive to the needs of those entrusted in their care. It means bilingual, culturally sensitive, and culturally competent programs, materials, and training that address the diverse needs of our pluralistic high-tech society. It means promoting the involvement of everyone to empower their own health and the health of their families. It means, in a sense, making us a part of getting better-by empowering us to understand why getting better is impor- tant, not by patronizing us but by enlightening us and enticing us. One Voice + One Vision If we are to succeed in this coming century, we must work to bridge our differences, uniting in a common bond and speaking with a common voice. We must learn not only to get a piece of the pie but to have a say in how it is baked. Most importantly, we must earn the trust but not arouse the fear of other minorities like us who seek a piece of the same pie. In doing so, we must strive for the following: * We must secure a place for our children in the explosive new century. And while securing their place, let's not forget to include them in the planning process. Being young is no reason for exclusion. o We must also get involved. I would like to hear less of "I want, I need, and I deserve," and more of "What can 1 do? How can I help? When do we start?' * We must foster acceptance of our population and promote our incorporation into a true multicultural society. I would like to see US help mainstream America understand and accept our Hispanic/Latin0 culture with its centuries of knowledge; encourage our contributions; and value our diversity. It is time we put an end to cultural stereotypes once and for all. * We must learn to develop partnerships, not only among ourselves but also among States, local community groups, and businesses. Such partnerships will extend our resources, combine our skills and specialties, and ensure more comprehensive services. * We must also seek help when help is needed. We need help to overcome the difficulties and stress of cultural dislocation and assimilation into American life. These problems can leave wounds that can last a lifetime. * We also must not overlook the silent cries of our children, who are watching us and emulating our behavior. They do what we do, not what we tell them to do. We must set the example of a healthy lifestyle and help them see through the mixed messages about false glamour, affluence, popularity, and the so-called "good life." For how can we expect to raise our children to value our traditions and customs, to respect the cultural traits that shape our individuality, when we ourselves lose our identity and self respect? Now, let me return to remind you of what we all can do together at this Workshop. As health . practitioners and advocates, you have a chance to become the leading architects and designers of our agenda for the future. It will be up to you to make these Work Group sessions meaningful and con- structive. It will be up to you to develop sound objectives and implementation strategies by relying ,=4.4444444444444 Charge to Participants ,,iI the shared expertise and collective wisdom of voiir colleagues in so many fields. I am relying on >ou all to work hard, pull together, and develop a truly lvorkable, useable plan of action-a plan that \vill be the blueprint of our national Hispanic/ Iatino health agenda for years to come. In closing, let me stress that our challenges are far from easy. We must retain our pride jvithout lingering at the altar of personal ambition. me must transform without transgressing, share without imposing, and integrate without interrupt- ing. We must also remember that it is not solel! the responsibility of the Government to sustain us and find a place for us in the next century. Ultimately, no government, no community organization alone, is responsible for our future. We must take command in shaping our destin:. As we work together to solve some of our most pressing problems, let us rely on our strong values and traditions for guidance. Let's rebuild where it is needed, maintain what is essential, learn new skills and strategies, and seek help--if help is what is needed most. Accordingly, do not refrain from speaking out to our leaders-communicate, reach out, be proactive. Let us not fail out of fear of displeasing a few. After all, we empowered our leaders bv our votes; it is our righttul place to seek cmpowcrmcnt in rctum. I believe the time to act is upon us, for we have precious little time to rehearse. A generation is waiting in the wings, and how well the 3 I million are received in the next 8 years depends on how well we perform our roles during the next 3 days. Let me close by reminding you that the Hispanic/ Latin0 community is diverse, very family oriented, very strong, yet, at times, vulnerable. Hispanics/Latinos have succeeded against tremen- dous odds time and again. As a group, we have contributed to making this country strong and diverse, and we have enriched the lives of young and old alike through our many talents in every field. America, it is time you do not forget us! Together, as Hispanics/Latinos and -as Americans, we can make a difference, starting today. For, in the words of the great sage, Hillel, who lived in the 2nd century, "If we are not for ourselves, who are we? If we are only for our- selves, what are we?" As part of this glorious mosaic that is our Hispanic/ Latin0 family, I urge us all to make our minds and hearts converge on one important goal: to remember who we are, and to show America what we are.. As we navigate the uncharted paths ahead, let us remember that intellect alone cannot be our compass; without knowledge, there can be no change, but without heart, there can be no dignity. Lideres de1 futuro: 1 urge you to think clearly, act decisively, and care tenderly. Gracias. Adelante TODOS! One Voice Vision o +44444444444444 Health Issues Panel Chapter 3 : Hispanic/ Latin0 Health Issues Panel- Background Summary Papers -I- he Background Summarv Papers were commis- , sioned to prepare participants for the National Workshop by summarizing the existing literature on the Hispanic/Latin0 health status-the problems identified and solutions recommended. Participants rcccivcd the papers before the Workshop took place so that they could arrive at the Workshop read\- for the task of developing implementation strategies. This chapter contains the presentation of the Background Summary Papers at the Workshop b! the corresponding authors. Improving Access to Health Care in Hispanic/ Latin0 Communities Robert Valdez, Ph.D., M.H.5.A. In the next few minutes I'm going to try to summarize some of the highlights of this working paper, "Improving Access to Health Care in Hispanic/Latin0 Communities," by reviewing the literature on the financial, structural, and institu- tional barriers that Latinos face in acquiring care. Many of these barriers, of course, arc buttrcsscd b! low standards of living in our community, where basic public health and sanitation practices arc not adequately maintained or provided. Next, I'm going to talk about some of the proposed rccom- mcndations, or summarize some of the proposed recommendations, that have hccn offered by health policy analvsts from national Latino organizations. c from academia, and from other communitv organi- zations. Last, we'll talk ahout some of the concerns or considerations as \ve hegin to th4ihcratc implc*- mentation strategies by highlighting some of the issues that I think we need to keep in the forefront of our thinking if we are to improve access to health care for Latinos. Let me first focus on the fmanciaf issues. Most Americans finance their health care through health plans offered as a fringe benefit of their employment, but that link betlveen employment and health insurance is much weaker for Latinos. Generally, employment reaps very low wages and few fringe benefits, as exemplified by the health insurance data. These data on health insurance coverage, or the lack of health insurance coverage-the uninsured-illustrates that Latinos are three times more likely to be uninsured than the Anglo population, and about 60 percent more likely to be uninsured than the black or Asian and other populations. As you recall, about 7 million Latinos are uninsured, but that 7 million is spread out differrn- tially among the various Latin0 ethnic groups. Mexican Americans and Central and South Amcri- can populations appear to have a greater problem in this area. one Voice One Vision Access to Health Care OllC Voice One Vision Part of the problem arises from the fact that, despite v-et-y high cmplovment participation, Latinos arc very unlikely to rcccive fringe benefits, including hcaltb insurance, as compensation for their work. Let mc turn novv to some of the structural issues. Some of the structural issues that I want to talk about are reallv those concerns about how the I svstcm in the United States is put together or not put together, as it were. Part of that system has to do with the public programs that are offered to provide financial coverage, and the major program is Medicaid, a poor program for some of the poor. Manv of the structural problems with Medicaid revolve around pavment fees and procedures that basically, reduce eligibility of the Latin0 population to participate. The system as a whole-that is, the health cart svstcm as a vvholc--is generally characterized as culturallv insensitive and fracgmcntcd, as many of you have tried to put together your own system, by choosing a phvsician who then chooses other c , rcfcrral phvsicians, who then choose hospitals to use on a haphazard basis. The quality of your health care system depends on the qualitv of vour ~ , physician's ability to socialize with other colleagues. Finally, wc touch on the structural issues. The structural issues have to do with the fact that much of our concern focuses on medical cart and ignores the issues of public health. Many of our communities lack clean. safe water and basic sanitation. And clearly. thcrc isn't the kind of focus on reducing violence that is necessary to make headway in the morbidity and mortality in our communities, Let me turn to some of the institutional issues, or institutional ban&s. Man\- of them are the rcflcction of the stereotvpes and racial problems that exist in our current system and that have led to the exclusion in some communities of Latinos from lcadcrship roles. Many of the current reform proposals that focus primarilv on the financial barriers closr out Latino husincss opportunities and community dcvclop- ment opportunities. These arc at the heart of the barriers that we see affecting Latinos. Let me summarize, or at least highlight, a few of the recommendations in the report, Clearly, they can be broken up into three areas: ( 1) modify- ing governmental (Federal, State, and local) policies; (2) expanding the supply of culturally competent providers, either through increasing the number of Latin0 providers or assisting non-Latin0 providers to become much more attuned to the concerns and the issues that affect our communities; and (3) creating incentives for public health and primarv care. As we begin to think about implementation strategies, there are a whole host of strategies that we could come up with. Some of them needn't be mutuallv exclusive. We could follow several diffcrcnt strategies at one time. Some of the considerations that I think we're going to have to deal with have to do with the fact that our populations are highly concentrated locally and in particular States. One implementation strategv would suggest that we concentrate our 2 efforts for change in the 12 States with the largest Latin0 populations; alternatively or in conjunction, we could focus on the 20 largest urban areas, We've seen a reflection of what it means to ignore the urban arcas in Los Angeles with the recent "fit-c sale," or riots, that occurred there in Mav. , The other thing that we have to keep in mind is the development of advocacy among our national, State, and local leaders and our officials. It's our responsibilitv to educate the newly clectcd Latin0 , offtcials who will be joining Congress, who will bc joining the State Houses, and who will bc joining citv councils all across the country. Unless wc take it upon ourselves to educate these offtcials, it's unlikely-given the kinds of community dcvelop- mcnt issues that most of us have to deal with-that health cart will bc on the top of their agenda. Last, wc need to consider how we arc going to portrav oursclvcs to the national media, to the 4444444444444444 Health Issues Panel national public. There appears to bc a lack of Latin0 images, and this lack inhibits our ability to make changes anti gain access to the power that's ncccs- sat-v for increasing access to medical cart and health care for Latinos. Improving Data Collection Strategies Jane Delgado, Ph.D. First, I avant to thank my coauthor, Dr. Leo Estrada, and the COSSMHO [National Coalition of Hispanic Health and Human Services Organizations] staff, who \vere wry important to this paper. I want to start off \\ith a littlc bit of history, which is critical to giw us a pcrspcctivc on this subject. In 1970, the Census first used Spanish origin as an identifier. In 1976 Public Law 94-3 1 I was enacted, instructing Fcdcral agcncics to collect data on ".Amcricans of Spanish origin or dcsccnt ." In 1977, as cvrrvonc knows, the Hispanic Health and Nutrition Examination Survey was cstablishcd. Later, you'll see that data \vas not actually collected until 198 I. In 1978, OMB [Office of Managcmcnt and Budgctl issued Dircctivc 15, which set the standard for Federal agent? data collection rclatcd to persons of Hispanic origin. As you can see, in the 1970s \ve had t\vo things: WC had legislation, and we had an OMB directive. Data Collection Moving on, \vc see that by 1980 the Census started to USC Hispanic idcntificrs for the first time. In 1986, the Hispanic Health Rcscarch Consortium was cstablishcd. In 1987, the National Medical Expenditure Survey began to oversample for Hispanics, In 1988, GAO [U.S. General Account- ing Offcc] released a report on Hispanic health data collection; 1989 \vas a landmark year for us as a community, because that's the scar the national model birth and death certificates began to incluclc a Hispanic identifier with specificity for subpopula- tions. One of the factors related to Hispanic health that this timetable rcvcals is that, until wry recently, wc didn't know how many Hispanics were dying. This explains wh:, for so long, infant mortalitv has driven all of our national health policy, \vhcn in fact that's not an issue affecting Hispanics. Now, looking into the 1990s: Congress passed the Disadvantaged Minority Health Improvc- mcnt Act. This Act is vcrv important, bccausc it is the first health legislation that focuses on the specific needs of Hispanic communities and instructs people to look at us as a unique community, rather than in a "minority community" model. In addition, DHHS rclcascd 300 Healthy People 2000 objcctiscs. Thcrc arc onlv 25 Hispanic objcctivcs bccausc all of the objcctivcs had to have a basclinc. Because \vc did not have a baseline, thcrc lt.crc not Hispanic component objcctivcs in sonic arcas \vhich arc` important: alcohol abuse, substance abuse. mental health, sexually transmitted discascs, c`tc. One Voice e- OIlC Vision Data Coflcction includes Hispanic and Hispanic subpopulation health data. In 1992, the Hispanic Health Research Consortium awarded grants to establish five university-based research teams focused on Hispanic women's health. One Voice These events are the significant ones in the history of our data collection. We have a very short history, and I think that's part of the problem. So, when we look at recommendations in the area of Hispanic health, I think that the first thing we have to look at is data collection. What are the things that we need in data collection? First of all, we need to include a statistically valid sample for Hispanfcs and major Hispanic sub- population groups in major national data collection systems. If you look at the Background Summarv 1 Paper, we have a listing of all the major data sources within DHHS, and it indicates which sources include samples for us. Most of them do not. The second critical factor is the need to redesign samples to collect data with more popula- tion specificity in the Central and South American and other Hispanic subpopulations. Computer technology has made coding pretty straightforward. It is also important to assess the validity of current data collection instruments and procedures for data collection in Hispanic communities. A third key issue is to establish Hispanic component objectives for Healthy People 2000. Man) of our communities at the State and focal level know States are using Healthy People 2000 to drive their local agendas. Because we didn't have baseline data, we are left out of a lot of Hen/thy One People 2000 objectives. We need to have better data collection so States can track our health status and Vision incorporate Hispanic/Latin0 communities into Healthy People 2000 objectives at the State and focal levels. In terms of data anafvsis, it is critical to support the Hispanic health research infrastructure to anafvzc Hispanic-specific information. Wc should provide technical assistance to CBOs [community-based organizations] and Hispanic researchers for research grants for data analysis award, include Hispanic researchers in development of RFAs and RFPs, and also submit an annual report on progress made toward improving Hispanic health data collection and percentage data analysis dollars granted to Hispanic focus programs. In addition, it is critical that we include rating criteria that would give people points on being able to demonstrate they can work in our community. It should not be controversial that, if you are dealing with a bifingual/bicuftural community, somebody on your team should be able to do that, too. Considering that we are the g&up with the least amount of information about us, we should be getting not only our proportionate share but more, so we can catch up for all the lost time we've had. f think that's one of the things that we have to be much more aggressive about. We are way behind in data collection research. We don't know what our community is dying of. We know it's not infant mortality. We know that we tend to five longer than non-Hispanic whites. There are other things we are dying of, though. We need to be able to document that and make sure people are getting research monies for that. The final issue, which is also crucial, is the whole idea of data dissemination. We need to educate people about who we are as a community. It's good to do research, but make sure that the data we get and the data we collect are then disseminated. We need to be included in every issue of Health U.S., which is a document that non-Hispanic health communities use as their data bible. The categories should not be "White/Other." Thev should not read, "White, Black, Other." We need to have a category that holds our information, because our communities are different. WC have different issues, and it's a disservice to health planners across the country not to provide that information. Also, we have to make the data more accessible to people. If people want to know us, \\`C have to give them the information. Those are the recommendations that we started off with in the area of data collection. Increasing the Representation of Hispanics / Latinos in the Health Professions Fernando Trevino, Ph.D., M.t?H. I would like to thank my coauthors, Dr. Ciro Sumaya, Magdalena Miranda, Laudelina Martinez, and Jose Manuel Saldana, without whom we would not have been able to put this paper together. The issue we want to talk about is health professions. Very few career choices exist for students that are more competitive and more demanding than the health professions. In addition, they require a very long educational period. You have to studv and successfully complete anywhere from 12 to 16 years of an education before vou even , begin to study health. For us, this is a problem, because the sad thing is that, at the present time, somewhere between 60 and 75 percent of our young students never go to college at all and, of those that do go to college, fewer than 10 percent will graduate. The problem is that 90 percent of our students are in urban schools, which sufTer from a limited tax base and have to deaf with all the additional problems of society that we're ail too familiar with. .4ltfiough school segregation fias decreased for blacks and whites, it has actualI\ I increased for the Hispanic population. Our parents do everything they can to support us, but all too many of them have ver\ limited experience with educational svstcms and can offer only limited help to us. So w-c need to look to the teachers and the administrators and others to guide us along. Yet, unfortunatcfy, when vou look L at this, vou find that fcwcr than 3 fjcrccnt of all the tcachcrs in the llnitctf Statrs arc Hispanic. Tfic\ o o o o Health Issues Panel result is that too many of our students (approxi- mately 75 percent) who do stay in school are focusing on nonacademic tracks that will not prepare them for the health professions. Only 5 1 percent of Hispanics older than the age of 25 have completed high school, compared with 8 1 percent of non-Hispanics. Between 1975 and 1990, high school graduation rates increased by 12 percent for black students and 2 percent for white students. Yet they actually decreased 3 percent for Hispanic students. As of 1989, Hispanics were approximately twice as likely as black students to drop out of school, and almost three times as likely as Anglo students. Hcafth Professions 0I-W At the current time, about 9.7 percent of Hispanics older than the age of 25 have a college degree. If you look at it by national origin, you see that Cuban Americans have the best experience. Approximately 18.5 percent of Cuban Americans older than 25 have a college degree. Now this is the best that any of our people have been able to do. That's still below the rate for non-Hispanics. It drops all the way down to 6.2 percent of Mexican Americans. Not only is the situation bad; it's getting worse. In 1976, 36 percent of Hispanic high school graduates went on to college. Ten vcars fatcr, in 1986, we had lost 7 pcrccnt. WC Voice * . One Vision Health Issues Panel 444444444444444.4` Hcafth Professions went to 29 pcrccnt of our students who arc going to coffcgc. Our group fookcd at the work force that wc currcntf~ have, and we found that there is not a singfc ticftl \vhcrc we haw achieved cxpccted rcprcscntation, based on our population. Wc come cfosc in things fikc radiologic technofogv and in one c that won't surprise you-health aides. We come cfosc to \vhat wc shoulcf be at that point, but \ve tfrop consitferablv as the cducationaf level increases for a given profession. We've had some succcsscs, though. I think it was in 1968 \vhen the effort to educate minority professionals really kicked in, and it was needed. At that time - f968-minoritv students composed onfv 3.6 pcrccnt of all U.S. medical students. Now, three-fourths of these minority students were black, antf three-fourths of them were enrolled at two prctfominantlv African American schools, Mcharry antf Howard Medical Schools. There were practically no minoritv students in any of our other metficaf schools. So the Fcderaf government rcafh kicketf in and devcfopctf some programs and, as you can tcfl, thcv'w had some success. 0nc Of interest to mc is the fact that, in 1968, nursing hatf the best rcprescntation for Hispanics, antf vet that's the one field that tfidn't rcaffv do Voice much. It sort of pfatcaucd out thcrc. The others incrcasctf tframaticaffy, as YOU can tcff. In 1968, thcrc wcrc onfv 23 Hispanic first-war mcdicaf stutfents in affopathic mcdicaf schools. In 1988. 20 wars fatcr, wc hatf 949. So wc'\c matfc great increases. Unfortunatcfy, thcv stiff rcprcscnt onf! Onr 5.6 percent of all first-scar mctficaf students. In tfcntistry, in 197 1 wc hatf 40 Hispanic first- Vision war tfcntaf students. In 1988, wc had 316, constituting 7.6 pcrccnt of'thc total in that ficfd. Data aren't availabfc on first-war cnroffmcnts in the ficftf of optomctr~, fwt in I97 I total Hispanic stucfcnts constituted 1 fw-cent of all ofatomctr\ sttufcnts in tfac Nation; 20 vc'ars later, tfwv consti tutccf 3. I fw-cent. In tact, thci-c arc onfv t\\`o schools of optometry in the entire United States that have more than 5 percent Hispanic enrollment. One is in California, and the other is in Texas. BY the nay, I should mention that all thcsc f_gurcs exclude the island of Puerto Rico and all their schools because, obviously, that is a different situation. I can go on and on. Pharmacy: 3.4 percent of our first-year students are Hispanic. Podiatry: 3.6 pcrccnt. Veterinary medicine: 2.8 percent. And again, nursing: Rcgrettabfy, in 1971, 2.5 percent of all students admitted to any RN program at whatever level were Hispanic. In 1985, that increased 0.2 percent, going to 2.7 pcrccnt of our nursing students. In public health we've tafkcd a lot about the need to address prcvcntion efforts and rcafly focus on cfcvcfoping delivery systems, and I'm a littfc conccrnecf . If you exclude the island of Puerto Rico's School of Public Health (and you need to, because the University of Puerto Rico School of' Public Health employs one-half of all Hispanic public health faculty in the country and it's graduat- ing t\vo-thirds of all Hispanic public health gradu- ates), YOU \vifl find that all the other schools of public hcafth put togcthcr have a student body of' onlv 3.2 pcrccnt that is Hispanic. .\fficd health (this is a big, broatf ficltf that \\c fumf> togcthcr antf lvhich constitutes 60 pcrccnt ot L all of' our .\mcrican hcafth cart workers) has no database to speak of. We could not find any one people who arc not going to bc well prepared to unified database for the field of allied health. So all find a suitable and productive career. We think the t1-c \vcrc able to find was data from 26 disciplines health profession, if you look at it, is one of the that arc accredited by CAHEA. In 1989, these professions that's growing, and thcrc's going to hc 26 disciplines had a Hispanic participation rate of continued demand. This could produce some 5.7 percent. productive contributing citizens for us. Why should we be worried about educating Hispanic health professionals? Well, first, it's the right thing to do. But that hasn't gotten us very far. Second, and I credit my colleague, Bob Montoya, for this one-he has shown very clearly that this is a vcrv cost-effective way of meeting the health needs of our country. Last, I do want to tell you there are some positives. The hope for us reallv is the fact that most surveys have repeatcdlv found that, of the Hispanic college students and Hispanic students who are planninq to go to college, a health career is L one of their top three professional choices. We hear all the time that maybe n-e have a surplus of phvsicians in other categories. We kno\\ well, and these figures show, that we don't have a surplus of Hispanic health professionals. .\ Federal survey found that fewer than 10 percent of Anglo medical students stated that they planned to practice in a critical manpower shortage area. Less than 10 percent were even thinking about it. B! contrast, the research done by Bob Monte\-a and others has found that 75 percent of Hispanic medical students-in this case, it was Mexican American medical students-go back and provide care to minorities. They go back and provide care in critical shortage areas. They are more likely to accept Medicaid payment and all the kinds of things that we're talking about doing. The Development of' a S. Relevant anld Comprehensive Research Agenda To Improve Hispanic / Latin0 Health Gerardo Marin, Ph.D. This paper was developed with the collabora- tion of Hortcnsia Amaro, Carola Eisenberg, and Susan Opara-Stitzer. Bob Montoya has made a good argument. That is, should we as a Federal Government or State government inwst ~350,000 to ~400,000 for the education of a single physician who's going to go in a surplus area, or should we be investing the same L S400,OOO to produce the kind of physician or other health provider who is going to go serve where wc need them as a country? The two words that arc critical in dewloping a relevant and comprehensive research agenda arc "relevant" and "comprehensive." The dcvclopmcnt of a relevant and comprehensive behavioral and biomedical research agenda must address at least three arcas, and I was very pleased to hear Sccrctar\ Sullivan saying that earlier today. Ra? Marshall, former Sccrctars of Labor, has estimated that 90 percent of the growth in the work force that is going to occur in the United States from 1990 to the war 2000 \vill bc composed ot women and minoritics. WC ha\c large numbcw of First, there is the need for the rcscarch infra- structure that is central to the design, implcmcntation, and support of research programs. Second is the need for appropriate research instrumentation that provides valid and reliable information about Hispanics. The third area is the definition of rcscarch priority arcas that arc based on the kind of data that we alrcadv have about our health status. As the basis of this, there arc three other important concerns: ( 1) that Hispanics, Hispanic rcscarchc'rs, must bc in\-olvcsd in this process; Research Agenda one Voice One . Vision Health Issues Panel 444444444444444444 I One Voice One Vision &search Agenda (2) that we need an increased representation of Hispanic and Latin0 professional staff within DHHS; and (3) that our research must include an analysis of the realities and needs of all Hispanics, including those living in Puerto Rico. Let me mention some of the issues relevant to the three major areas that we feel should be addressed. In terms of a lack of appropriate research infrastructure, more than 6 years ago the Surgeon General's office produced a report on minority health, and yet now we find that very little funding goes to Hispanic issues. Less than 2 per- cent of DHHS research funding is spent on Hispanic health research issues or in support of Hispanic researchers. By the same token, very few Hispanics work for DHHS, and very few Hispanics are part of the process to make decisions about research. Unofficial data provided to us by PHS show that this year only 83 of the 2,342 members of IRGs are Hispanics. That's about 3 percent. Given this, it's difficult to understand how an IRG can under- stand the cultural significance and appropriateness and relevance of the proposals being submitted. The issue of appropriate research instrumen- tation was mentioned before, and we want to reinforce that very significant need, as we see research that is being carried out without attention to our cultural characteristics, to group-specific attitudes, perceptions, norms, and values, or even to the requirements of an appropriate translation. Priority areas of needed research have been mentioned throughout the day. So in the interest of time, I won't mention them here, but rather I'm going to list some of the suggestions that we have made for dealing with some of these issues. In terms of increasing the research infrastruc- ture, as I mentioned before, there's a very signih- cant need to increase the representation of Hispanics in health-related research. I'd like to suggest that those who make decisions about RFAs and RFPs and about funding take into consideration the kind of research that's being carried out in the States that have high Hispanic representation and demand that Hispanics be included in those samples. I'd like to suggest that oversampling of Hispanics/ Latinos be required of proposals in critical areas of health concern for Hispanics. There is a need to educate members of IRGs, and this needs to be done by DHHS. There is a need to prepare IRGs, again, to be competent in making appropriate decisions about funding. In order to increase the number of Hispanic/ Latin0 researchers, there is a need to provide pre- infrastructural training for Hispanic researchers in behavioral and biomedical research. Programs directed at senior Hispanic/Latin0 researchers must .., . be developed to allow them to become better equipped and to improve their methodological expertise. There is a need to educate the young researchers coming this way, to provide grantsman- ship and workshops, to provide training that will help them be competitive. We need to improve the train@ and cross- cultural competence of non-Hispanic researchers. It's very clear that we cannot do all the research that we need to do. We need help from other researchers, but they need to be educated about how to conduct culturally appropriate research with our populations. To increase the number of Hispanics participat- ing in the funding process, we suggest again that sign&ant effort be made to identify Hispanics who can serve in IRGs, as ad hoc reviewers, at national advisory councils and scientific councils, and as program staff at PHS and, certainIy, in the Centers for Disease Control and Prevention. We'd like to suggest that IRGs try to include at least one Hispanic member to properly assess the appropriateness of proposals, and that special recruiting efforts be developed in order to bring some of the expertise that is in the field to the Federal government. The dearth of appropriate instruments is a very dilficult issue to address, but it something that needs to be taken care of. Again, there's a need to create a kind of a repository where all of the data, as well as the 4444444444444444 Health issues Panel instnunents, and the procedures that can be used to do appropriate research, can be found. We also suggest that, to define a specific research agenda, at least five steps be taken: . That we pay attention to a proper understand- ing of the issues related to the kind of health problems that we mentioned are critical to our population--diabetes, HIV, cancer, and so on. * That a high-level committee be appointed to follow through on the results of the Surgeon General's Initiative. o That special funding programs or initiatives be developed to fund research on factors such as acculturation, poverty, national origin or background, and migrational history, and the effects they have on Hispanic health. = That special programs be developed to study the health status of Hispanics who work in particular environments such as migrant agriculture, assembly plants, service profes- sionals, and other industrial concerns. * That special health services research be addressed in order for them to file character- istics of the health care delivery, personnel, utilization, and effectiveness. Health Promotion and Disease Prevention Marilyn Aguirre-Molina, Ed.D. All of the presentations that have preceded mine provide a framework for understanding why Latinos face so many problems in the area of health promo- tion and access to preventive services. I think it's probably safe to assume two things. The first is that the reduction of one or two risk factors for the leading causes of morbidity and mortality can add years to a person's life and reduce medical costs. The second assumption is that the most cffcctive way to reduce risk factors is through health promo- tion and disease prevention strategies. It's generally accepted that, for many sectors of U.S. society, these two assumptions are true. People are accessing preventive services, and we are beginning to see the resuItsi.e., changes in morbidity and mortality patterns in the United States. Health Promotion and Disease Prevention When it comes to Latinos, it's a very different situation. Nevertheless, if you look at the leading causes of morbidity and mortality among Latinos, there's another thing we'll agree on, that indeed we can add years to people's lives or keep them alive through prevention, and the leading causes of morbidity and mortality can truly be influenced by health promotion and disease prevention programs. The real question here is, why are Latinos not sharing the benefits of health promotion and disease prevention to improve their well-being? There are a number of factors. We don't want to ignore the fact that, nationally, prevention is probably a very low priority. That can be measured by the amount of resources allocated to prevention efforts. A recent CDC report indicates that in 1988, $3 2.8 billion were allocated to prevention. Although that may seem like a lot, it represents only 3 percent of the total health care expenditures, or only 0.7 percent of the gross national product. We don't know what percentage-how many of those dollars-are allocated to Latin0 programs, but again, it's safe to assume that they are not enough. Voice Other factors that prevent Latinos from accessing preventive care services include the following. Latinos have poor or low access to the health or medical care settings where these preventive services are likely to be offered. As indicated in other presentations, Latinos are just not approaching-much less fully utilizing-those systems. Shortage of primary care providers and, most importantly, the lack of Latin0 and cross- culturally competent care providers partially explains this phenomenon, Additionally, there's a Vision Health Issues Panel 44444444444444444 Health Promotion and Disease Prevention shortage of primary care facilities servicing Latinos. Therefore, if those services and those facilities are not available, those institutions that would be the most appropriate sources for providing preventive services are not available to the Latin0 community. There are also financial barriers. My colleagues have already addressed financial barriers, and the impact they have on access to regular sources of care. Things like inadequate insurance and Medicaid coverage complicate and reduce access to settings where health promotion services are offered. One voice One Vision There's another important issue to address, and this is the participation of Latinos in the labor force. Latinos are overrepresented in secondary labor markets, for example, in agricultural and manufacturing industries. Unfortunately, these jobs provide the lowest rates of health insurance and fringe benefit packages, thus having an impact on access to health care and health promotion and disease prevention services. An added concern tied to these occupational settings is the high risk and rates of on-the-job injury. One must note that all those wonderful corporate health promotion programs that many of us have learned to enjoy and appreciate are just not available to a large majority of working people in the Latin0 community. We also need to look at institutional or systemic barriers. A 1991 report by the Health Resources and Services Administration clearly describes the problem. Let me read a quote from this report to you: "The health care system in this country has been designed to serve the majority population and possesses limited flexibility in meeting the needs of populations that are poor or may have different illnesses, cultural practices, diets, or languages. Barriers faced by Latinos/ Hispanics in receiving primary and preventive care are magnified due to their special linguistic and cultural differences." In other words, institutions are just not adequately geared up to serve the needs of our communities. I think other presenters did an excellent job of demonstrating the glaring disparity and the lack of bilingual/bicultural and cross-culturally competent health care personnel who can effectively deliver health promotion and disease prevention services. I want to underscore the need: bilingual, bicultural, and cross-culturally competent professionals. They are in critical need. Let me just mention other institutional barriers worthy of consideration. One of them is bureaucratic patient intake processes, many of which produce fear of deportation among people who are undocumented. Some of these institutions also have incredibly long waiting periods for appointments, and, when one a&ally gets an appointment, the waiting period to receive services is excessive. In many of these institutions, service hours do not respond to the needs of the communi- ties they serve. Professionals may be able to afford to take a day off for a doctor's appointment, but the vast majority of our population cannot. They will not be able to receive services unless they are provided in the evenings or on Saturdays. All of these conditions constitute what can be described as non-user-friendly environments which discourage patient access. As a result, Latinos ignore early warning signs, and do not utilize screening services. Therefore, Latinos end up in emergency rooms. The last two points that I want to make deal with the programs themselves. We've talked about financial considerations and institutional considerations. We also need to discuss programmatic issues. In sum, culturally appropriate and competent programs are in short supply. Most health promo- tion and disease prevention programs of proven effectiveness are mainstream programs. An effective mainstream program, however, may not necessarily work in the Latin0 community. Some- times we see programs that are translated into Spanish, which go on to become disasters in our communities, proving that translations are not enough. That's a central problem with many of the 444444444444444 Health l&sues Panel prevention programs that are transported into Latin0 communities. Many programs are devoid of cultural competence. For example, there's a complete misperception of the role that family and the social support systems play or can play in promoting health and preventing disease among Latinos . Successful programs cannot ignore important cultural traits that are specific to Latinos. Some existing programs are totally inadequate when it comes to outreach activities. They ignore, for example, that the church is a very important institution for Latinos. Additionally, programs often lack expertise on how to use the Hispanic media effectively for outreach purposes. Often, those responsible for designing programs ignore important variables. One is the intergenerational variation that exists among Latinos. We really have to take intergenerational variations into account when designing programs. We also need to look at degrees of acculturation- that is, to what extent an individual is adapted to the U.S. culture. There seems to be a monolithic notion of a generic Latin0 individual, when in reality, we must acknowledge the intergroup diversity. As we al1 know, a Puerto Rican is not a Cuban. A Dominican is not a Central American. The result is that many of the existing programs are based on poor information and poor understanding of our communitv. i I will highlight only a few recommendations. First of all, as a nation, we have to reshift our priorities and start to think about prevention as a critical component of our community's health. It's less costly. It's easier. It's better. Of course, among other things, this will imply political advocacy to ensure this shift in priorities. Data is another key element. We must be able to identifv gaps in health promotion and disease , prevention data, data for minority groups to determine health disparities, the USC of alternate care svstcms, the cxtcnt of morbiclitv and mortality, , and so forth. We want to, of course, increase and improve access to primary and preventive care. This topic will be addressed by another work group. Institutional barriers must be removed. That's where our advocacy capabilities must be directed. There are a lot of concrete things that can be discussed in our workshops to increase and enhance institutions and, in particular, community- based organizations' capacity to deliver effective preventive programs. I say community-based organizations, because CBOs play an important role in our communities. They started out as social clubs and moved on to become more comprehen- sive health and human services organizations that now have credibility and the ability to reach our communities. We have to upgrade their ability to deliver health promotion and prevention services and help them move away from funding by sectors of the disease-promoting corporate world. That's one of the big problems that we face in our commu- nities: contradictions. Much'can be done by Federal incentives in the way of financial incentives. We must also prepare individuals to be able to enter these institutions. Health Promotion and Disease Prevention I'm hoping that the health professions group will help us define the direction and implementation strategies for increasing the pool of people who are going not just into medical care but into public health. We have to begin to make these lucrative and attractive career tracks. One Voice I believe that much of what the different working groups will be exploring and discussing is going to overlap. Topics are interconnected; our ability to gain access to prevention is based on our ability to gain access to the systems where preven- tion services are provided and on having personnel in those systems who are prepared and cross- culturally competent to design the kinds of pro- grams that will be effective and respond to our community's needs. One Vision