A total of 152 survey forms was completed by a population summarized in Table 1. Most participants were from the United States (126, 82.9%); with representatives from Australia (3, 2.0%); Canada (15, 9.9%); England (4, 2.6%); and other countries (Belgium, France, Ireland, New Zealand [4, 2.6%]).
| Table 1 Characteristics of the survey population |
Summaries of quantitative data are presented in Tables 2 to 6. Data analysis demonstrated that there was a clear increase in the frequency of approaching a medical librarian by nonlibrarian GLBT health professionals and students when they knew that the librarian was also a GLBT person. This was demonstrated by the responses to the question: “When in need of information for the benefit of a patient's care for which you have some difficulty in finding the necessary materials and for which the concept of being GLBT must be included in the search for information, would you approach a medical librarian?” Responses were recorded as Often = 15 (30%); Occasionally = 23 (46%); and Never = 12 (24%) for an unknown librarian, but Often = 29 (58%); Occasionally = 17 (34%); and Never = 4 (8%) for a known GLBT librarian.
| Table 2 Responses of nonlibrarian health professionals and students to yes/no questions |
| Table 6 Responses of medical librarians/students to: How comfortable are you (or would you be) if approached by a person seeking reference help where the concept of being GLBT was part of the reference question? |
Respondents gave a variety of reasons why GLBT health consumers have special information needs. There were 125 responses from both librarian and nonlibrarian health care professionals and students, 74 of which were made by GLBT persons. A few felt that this group had no special information needs, but it is apparent from the large majority of answers that many health issues are of particular importance, need to be dealt with in special ways, or are unique to this population. Examples include sexual health and practices, “coming out,” health care proxies, durable power of attorney for medical decisions, visitation rights, same-sex marriage, substance abuse, breast cancer, rectal cancer, anal pap smears for men who have sex with men, adolescent depression and suicide, reproduction, adoption, HIV infection, hepatitis, immunizations, parenting, foster parenting, surrogate parenting, mental health issues, intimate partner violence, intimate partner loss, and preventative health. In addition, information specific to transgendered persons, such as the neo-vagina, hormone therapy, and special surgeries such as phalloplasty and vaginoplasty were mentioned. One librarian commented on the survey:
there's a real dearth of GLBT specific information about some serious life issues, e.g., parenting and, most especially, widowhood. Given that there are probably on the order of 2 million gay parents in the country and untold numbers of gay people who have lost partners, this absence is really quite staggering.
GLBT persons require GLBT-friendly sources of health literature and directories to special resources that can help to ameliorate problems, point to further sources of help, as well as emphasize the wholesomeness of diverse lifestyles in spite of a sometimes hostile social environment. Said one respondent:
As a consumer health information librarian in a public library, I'm often asked for guides for lesbians who want to become pregnant. I'm aware of the bias GLBT persons often face when dealing with health professionals and wish they were more comfortable approaching me for information.
Many of those surveyed pointed out that many GLBT people have been subject to such frequent negative responses from providers as well as the assumption by most providers of the heterosexuality of all patients, that they do not, for the most part, trust the clinician enough to reveal either their sexuality or special health concerns. “We are seen in a different light by health professionals—almost one of neglect. The health issues that face us are cast aside or are unreal, when they very much exist.” Several commented that most of the standard literature and information sources are heterosexually oriented and make little or no mention of the GLBT population. This bias was described as a “put off” to many GLBT people who require a different presentation of health information than what is commonly available. “GLBT persons need access to sources of health information without fear of discrimination or recrimination.”
There were 105 responses, 56 of which were made by GLBT persons, regarding reasons why GLBT health care professionals have special information needs. A few respondents felt that this population did not have special information needs. Many participants stressed that because GLBT health consumers specifically seek GLBT clinicians for their care, these health professionals need access to the most current information pertaining to the special issues of health care for this population. Many commented that the answers to a number of questions dealing with GLBT persons are either not in the standard literature or else are very hard to find, thus requiring special sources of information. These sources are needed to meet the special requirements for knowledge and training specifically necessary for working and interacting with the GLBT patient.
Not only do GLBT health care workers need information about taking care of their patients, they also require the knowledgebase necessary to help them in dealing with the persistent societal misconceptions and stigmatization that all GLBT persons routinely encounter. “In addition to needing information for GLBT patients, we sometimes need information about working/studying in a predominantly straight workplace/academic setting.” Information on dealing with the prejudice and stigmatization from peers who happen to be non-GLBT is also a perceived special need. One person stated: “Prejudice requires special information needs.” Another said that confidentiality and trust are important issues for those GLBT professionals who are not “out” to the general medical or hospital community and are unwilling to communicate information needs when doing so might reveal aspects of their own sexuality or interest in treating GLBT patients. One person with experience at a major academic medical center mentioned that there is an overwhelming concern among many providers and students about revealing sexual orientation and the likely impact it might have on careers, confirming that privacy and confidentiality are extremely important factors to consider when serving this group. Medical students may feel particularly vulnerable in seeking help with finding information relating to their own sexuality or to GLBT-related information for a patient. Students need access to information about the “coming out” process as well. Special resources are needed that point providers and students to other GLBT providers and students for general information sharing, socializing with peers, and referrals. Also mentioned was the need to have access to legal data about the personal rights of the GLBT professional, including employment discrimination, partner's rights in obtaining benefits, and other domestic life issues. Some commented that because not all medical librarians are comfortable with exploring GLBT topics, special reference services are needed.
One hundred and fifty respondents (79 of them GLBT persons) addressed the questions concerning how medical reference services can be changed so as to be perceived as GLBT-friendly and how access for this population can be enhanced. Advertising or displaying within the library the presence of special resources for the GLBT health professional and health consumer was indicated as one way to start. Having GLBT and pro-diversity pamphlets, signs, stickers, rainbow flags, or posters displayed as prominently as any other material and having showcases and exhibits on GLBT issues and events was also stressed. Displaying an equal access statement in addition to appropriate declarations on the library Web page expressing support of GLBT persons and a commitment to be sensitive to the needs of all persons may also be beneficial. Librarians should be open, nonjudgmental, accepting, caring, and willing to help. They may need to “win the trust” of the GLBT person. The use of nonsexist (gender-neutral) language, such as using the word “partner” instead of “spouse,” “husband,” or “wife” may be of benefit. Asking the patron if the information being sought is intended for a GLBT audience or patient was also proposed. “Much in the way schools can create a “gay-safe” space, so can reference services.”
Having a link on the library's Web page leading to resources for GLBT health care providers as well as consumers will be a message to all that being GLBT and seeking health information is welcome at that library. Easily found resources on sexuality and sexual and gender orientation would be particularly helpful to those patrons unable to directly ask a librarian for help. Posting useful Websites containing GLBT health information on commonly used medical and general librarian email discussion groups along with posing questions on these themes can increase awareness as well as inform people of good resources.
Reference services should respect the privacy and confidentially of the patron. One person felt that it might be a good idea to provide to medical librarians the option of referral to another, more comfortable, colleague if they are uncomfortable in dealing with GLBT topics. Hiring more “out” GLBT people to staff the reference department was recommended. Other recommendaions included creating an NLM fact sheet, finding aid, or subset in MEDLINE for GLBT topics and indexing the Journal of the Gay and Lesbian Medical Association in MEDLINE. Diversity training in professional schools might help the recently graduated health care provider and medical librarian to be comfortable in serving the needs of all peoples. Similar topics given as courses for continuing professional development may be appropriate for established practicing professionals.
No respondent reported having a negative experience with a medical librarian when requesting help on a GLBT topic. One patron was reported as being self-conscious and using hints and euphemisms, thus giving the reference interview a “furtive” atmosphere. There were also a few instances in which the patrons acted “horrified” that their patient had HIV infection, thus making for an uncomfortable reference interaction. There were many positive reference interactions reported by 50 persons, of which 21 were GLBT persons. The following were typical remarks:
“They treated my question like any other and were very helpful.”
“The person went beyond the scope of routine duties to assist with informational resources.”
“All of the librarians have been professional and there was no perceived discrimination.”
“Our reference librarian is awesome and has no trouble with any search on any topic no matter how different or potentially controversial.”
Perhaps the following sentence summarizes most of the responses in this section: “I have never experienced anything but friendly, helpful, and unbiased service at our medical library.” Medical librarians were happy to be able to make patrons feel comfortable when asking their questions. Many patrons were thankful for respectful, confidential, nonjudgmental assistance. Teenagers were very happy to get information about homosexuality from the librarian because they felt they could not ask parents or school counselors. One information specialist found that email reference help tended to make the interaction easier and more positive since the patron could question quite directly without being (or worrying about being) confronted with any judgmental looks or words from the librarian.
Some of the general comments illuminated the subject of this report. Stated one person: “I would rather go to a GLBT person in any department, if I had the opportunity, for the same reason (support in a typically conservative, heterosexual environment).” Another noted:
For those medical librarians in academic settings, I think it is very important to present a GLBT-friendly face to medical students and residents. This is the time when GLBT students are forming important opinions about the profession they are entering. Furthermore, and more importantly, it is the time when so many of our colleagues are forming or solidifying the ingrained biases and homophobia that have characterized and, in fact, plagued our profession. Open access to GLBT issues in a professional manner sends an important message—intolerance is no longer acceptable.
Finally:
Many health professionals may not be as “out” and comfortable in their own sexuality or gender identity to be advocates for their patients. Having a GLBT friendly reference librarian would increase the likelihood that they would be able to research issues that arise.