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    @1E.1,MORANDUM                          DEPAItTNfl-"NT Of-' III-' 'AT.Til, EDUCATION, AND NVI-ILFARE
                                                            IIUBI,IC 111@AI,I'll Si@'[tVICE
                                                                       AD,%IINISTRATION
                                                     BUREAU OF IIEALTII RESOURCF-'.S DR%'ELOIINIENT
    TO       The record                                           DATE: November 18, 1974
    FRO.%L      hew SI)e@@"/
             Public Health Advisor

    SUBJECT: Organization for a national arthritis conference

             A discussion was held at O'Hare International airport, Chicago, Illinois, on
             Sunday, November 17, to explore the feasibility of convening a conference to
             develop coordinated activities, including program reporting and evaluation,
             among 29 Regional Medical Programs (PI.T's) conducting pilot arthritis grant
             programs.  Participants in the discussion were:
                Dr. Roger D. Mason, discussion moderator; Chairman of the former Arthritis
                        ad hoc Review Committee
                Mr. Kevin Anderson, staff member, Michigan PIT
                Dr. William F. Donaldson, lst Vice President, American Academy of Ortho-
                        paedic Surgeons (Pittsburgh)
                Dr. Ephraim P. Engleman, UCLA; chairman of the ARA "committee of five"
                        designated to provide liaison with DMT (San Francisco)
                Dr Satoru lzutsii, Executive Director, Hawaii iOiP
                Dr: Lawrence M. Petrocelli, Chief Arthritis Activities, NIAlg)D
                Mr. David Shobe, Arthri-tis Foundation  (Washington, D.C., and N.Y.)
                Dr. Clement W. Sledge, Robert Breck Brigham Hospital    (Boston)
                Dr. Isaac Taylor, Deputy Director, Tri-State RT
                Dr. Charles D. Tourtelotte, Chief of Rheumatology, Temple University
                        (Philadelphia)

                From the Division of Regional Medical Programs:

                Mr. Gerald T. Gardell, Acting Director
                Mr. Matthew Spear, Staff member
             The consensiisses reached by the discussion participants are the following:
             1. There should be a conference to develop coordination, evaluation, and follow-
                up activities among the 29 funded pilot arthritis programs.
             2. The conference should be convened at a site which results in least cost for
                .both the conduct of the conference, and the attendance of the participants.
             3. Total cost of the conference proper (site and services costs) should not
                exceed $10,000.





             4.  Conference sponsors will be, jointly:

                       Arthritis Foundation
                       American Academy of Orthopaedic Surgeons
                       LN'ational Institute of Arthritis, Metabolism, and Digestive Diseases.
                       Regional Medical Programs (29 collectively)
             5.  The sponsors will jointly contrive to pay the costs of the conference.
             6.  Participating program attendees will be required to meet their travel and
                 other costs from local sources.
             7.  Program attendance/participation will be limited to Coordinators of the
                 29 P-NIP's with funded pilot arthritis programs, their arthritis Project
                 Directors, and others directly associated with the conduct of the
                 conference..
             8.  SDecial guests, and expert resource personnel will be invited.  Their costs
                 of participation will be reimbursed by the sponsors, when necessary.
             9.  The conference will be'schedulled for 2 days in the period between
                 January 18, and February 2, 1975. .
             10. DR-NIP will provide staff support -- in effect, an  Executive Secretariat
                 for development, conduct, and perhaps followup of the conference.

             11. The tentative program structure is:

                         I.  Educational impact
                             A.  Physicians
                             B.  Paramedical
                             C.  Patients


                       II.   Delivery Impact
                             A.  Demographic aspects
                             B.  Types of services
                             C.  Distribution of services

                       III.  Objective analysis of results
                             A.  Each of the above
                             B.  Functional analysis of therapy

                       IV.   Continuation funding
             12.  The structure relates to the following tentative agenda:
                         a.  short introductory plenary session
                         b.  workshops on sections I, and II
                         c.  plenary session for reports and discussions
                         d.  workshops on sections III, and IV
                         e.  summary plenary session





               Special resource people should be available in both the workshop, and
              plenary sessions.  Types (or specialties noted):

                        demography
                        program evaluation
                        program funding
                        program information disseminators
                        program image builders

              Names   mentioned:

                        demograpliy   William Ranke (?), Johns Hopkins, Md.

                        evaluation    Dennison, Mich.; Plotz, N.Y.; Dr. Smyth, Colo.;
                                      Confree, Cal.; Joseph Barbaccia, Cal.

                        funding ---   David Rogers, Johnson Foundation
                                      Kellogg Foundation
                                      State Health Department specialists

                        program delivery -- Ed. Smlth, Va.; John Sharp, 'Houston, and
                                      Smiley, Dallas, Texas; Neustadt, touiseville;
                                      Ivan Duff, Mich.; Dr. Klineberg,  and George
                                      Freo      Cal.

                        program information    one or two widely known science writers

                        program image    Sen. Cranston; Anne Landers





























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